S. 286Senate108th Congress (2003-2005)Enacted

Birth Defects and Developmental Disabilities Prevention Act of 2003

Introduced February 4, 2003

Legislative Activity

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21 earlier actions
Became Law Latest Action

Became Public Law No: 108-154.

December 3, 2003

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SenateIntro Referral

Introduced in Senate

February 4, 2003

SenateIntro Referral

Sponsor introductory remarks on measure. (CR S1888-1889)

February 4, 2003

SenateIntro Referral

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

February 4, 2003

SenateCommittee

Committee on Health, Education, Labor, and Pensions. Ordered to be reported without amendment favorably.

February 12, 2003

SenateCommittee

Committee on Health, Education, Labor, and Pensions. Reported by Senator Gregg with an amendment in the nature of a substitute. With written report No. 108-188.

November 6, 2003

SenateCalendars

Placed on Senate Legislative Calendar under General Orders. Calendar No. 369.

November 6, 2003

SenateFloor

Measure laid before Senate by unanimous consent. (consideration: CR S14459-14461; text of measure as reported in Senate: CR S14459-14461)

November 11, 2003

SenateFloor

Passed Senate with an amendment by Unanimous Consent. (text: CR S14461)

November 11, 2003

SenateFloor

Message on Senate action sent to the House.

November 12, 2003

HouseFloor

Received in the House.

November 12, 2003 • 2:01 PM

HouseFloor

Held at the desk.

November 12, 2003 • 2:31 PM

HouseFloor

Mr. Bilirakis moved to suspend the rules and pass the bill.

November 19, 2003 • 4:59 PM

HouseFloor

Considered under suspension of the rules. (consideration: CR H11577-11580)

November 19, 2003 • 4:59 PM

HouseFloor

DEBATE - The House proceeded with forty minutes of debate on S. 286.

November 19, 2003 • 4:59 PM

HouseFloor

At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.

November 19, 2003 • 5:10 PM

HouseFloor

Considered as unfinished business. (consideration: CR H11665-11666)

November 20, 2003 • 11:23 AM

SenateFloor

Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by the Yeas and Nays: (2/3 required): 415 - 1 (Roll no. 646).(text: CR 11/19/2003 H11577-11578)

November 20, 2003 • 11:33 AM

HouseFloor

On motion to suspend the rules and pass the bill Agreed to by the Yeas and Nays: (2/3 required): 415 - 1 (Roll no. 646). (text: CR 11/19/2003 H11577-11578)

November 20, 2003 • 11:33 AM

HouseFloor

Motion to reconsider laid on the table Agreed to without objection.

November 20, 2003 • 11:33 AM

President

Presented to President.

November 21, 2003

Became Law

Signed by President.

December 3, 2003

Became Law

Became Public Law No: 108-154.

December 3, 2003

Amendments

1 amendment

Offered to this bill

Floor Debate

22 members

What members said about S. 286 on the floor

14 Republicans8 Democrats
Ben Nighthorse Campbell
Sen. Ben Nighthorse CampbellR-CO · Feb 4, 2003

Mr. President, today I am pleased to be joined by Senator Inouye in reintroducing the ``Indian Tribal Surface Transportation Improvement Act of 2003'', a bill to reform and improve Indian Reservation…

Lisa Murkowski
Sen. Lisa MurkowskiR-AK · Feb 4, 2003

Mr. President, during his State of the Union speech this week, President Bush emphasized the importance of local and charitable initiatives that help define the character of the many communities that…

John McCain
Sen. John McCainR-AZ · Feb 4, 2003

Mr. President, today, I am joined by my colleague, Senator Dorgan, in introducing the Professional Boxing Amendments Act of 2003. This legislation is designed to strengthen existing Federal boxing…

Christopher J. Dodd
Sen. Christopher J. DoddD-CT · Oct 3, 2003

Mr. President, I rise today to remind my colleagues that October is National Spina Bifida Awareness Month and to pay tribute to the more than 70,000 Americans and their family members who are…

Olympia J. Snowe
Sen. Olympia J. SnoweR-ME · Feb 4, 2003

Mr. President, I rise today to introduce the ``High School Sports Information Collection Act of 2003''. This legislation directs the Commissioner of the National Center for Education Statistics to…

Show 8 more
Jeff Bingaman
Sen. Jeff BingamanD-NM · Feb 4, 2003

Mr. President, I rise today to introduce legislation that will enhance the future economic vitality of communities in Otero, Lincoln, Torrance, Guadalupe, and Quay Counties. The purpose of this…

Martin Frost
Rep. Martin FrostD-TX-24 · Nov 20, 2003

Mr. Speaker, I yield myself such time as I may consume. (Mr. FROST asked and was given permission to revise and extend his remarks.) Mr. Speaker, here we go again. Another month has passed and this…

Robert F. Bennett
Sen. Robert F. BennettR-UT · Feb 4, 2003

Mr. President, I rise today to introduce the Bear River Migratory Bird Refuge Visitor Center Act. Long a haven for migratory birds, the Bear River marshes provide millions of birds with habitat and…

Patrick J. Leahy
Sen. Patrick J. LeahyD-VT · Feb 4, 2003

Mr. President, I rise today with Senator Bennett to introduce the ``Artist-Museum Partnership Act of 2003.'' Our bipartisan legislation will enable our country to keep cherished art works in the…

Orrin G. Hatch
Sen. Orrin G. HatchR-UT · Feb 4, 2003

Mr. President, today I rise to introduce, along with my colleagues Senators Grassley and Kohl, S. 274, the ``Class Action Fairness Act of 2003.'' Over the past decade, it has become clear that abuses…

Chuck Grassley
Sen. Chuck GrassleyR-IA · Feb 4, 2003

Mr. President, I rise today to introduce The Class Action Fairness Act of 2003, a bill that will help curb class action lawsuit abuse. For the last several Congresses, Senators Kohl, Hatch and others…

Sherrod Brown
Rep. Sherrod BrownD-OH-13 · Nov 19, 2003

Mr. Speaker, I yield myself such time as I may consume. I want to thank my colleague, the gentleman from Maryland (Mr. Hoyer), for his tireless work on the issue of developmental disabilities, as…

Max Baucus
Sen. Max BaucusD-MT · Feb 4, 2003

Mr. President, Saturday, February 1 was a sad day for America, and a sad day for the world. In the blink of an eye, we lost the cream of our astronaut corps when the Space Shuttle Columbia…

Show 11 more
Craig Thomas
Sen. Craig ThomasR-WY · Feb 4, 2003

Mr. President, I am pleased to introduce a bill today to authorize the exchange of State lands inside Grand Teton National Park. Grand Teton National Park was established by Congress on February 29,…

Christopher S. Bond
Sen. Christopher S. BondR-MO · Feb 4, 2003

Mr. President, I rise today to introduce the Birth Defects and Developmental Disabilities Prevention Act. It is a pleasure to work, once again, on this important issue with Senators Dodd, Frist and…

Christopher S. Bond
Sen. Christopher S. BondR-MO · Feb 4, 2003

Mr. President, I rise today to introduce the Birth Defects and Developmental Disabilities Prevention Act. It is a pleasure to work, once again, on this important issue with Senators Dodd, Frist and…

Susan M. Collins
Sen. Susan M. CollinsR-ME · Feb 4, 2003

Mr. President, I am pleased to join my colleague, Senator Olympia Snowe, in introducing legislation that will modify the borders of the Aroostook County Empowerment Zone to include the entire County…

Byron L. Dorgan
Sen. Byron L. DorganD-ND · Feb 4, 2003

Mr. President, today I'm joined by Senators Kerry and Snowe in re-introducing the Public Good IRA Rollover Act, legislation to allow taxpayers to make tax-free distributions from their individual…

Christopher H. Smith
Rep. Christopher H. SmithR-NJ-4 · Nov 19, 2003

Mr. Speaker, I rise today to support this important bill, the Birth Defects and Developmental Disabilities Prevention Act, which will bolster our Federal Government's efforts to prevent unborn babies…

Michael Bilirakis
Rep. Michael BilirakisR-FL-9 · Nov 19, 2003

Mr. Speaker, I move to suspend the rules and pass the Senate bill (S. 286) to revise and extend the Birth Defects Prevention Act of 1998. Mr. Speaker, I ask unanimous consent that all Members may…

John Linder
Rep. John LinderR-GA-7 · Nov 20, 2003

Mr. Speaker, by direction of the Committee on Rules, I call up House Resolution 450 and ask for its immediate consideration. Mr. Speaker, for purposes of debate only, I yield the customary 30 minutes…

John F. Kerry
Sen. John F. KerryD-MA · Feb 4, 2003

Mr. President, I am proud to join today with my good friend Senator McCain to introduce our bill to award Jackie Robinson the Congressional Gold Medal. Bestowing upon Jackie Robinson this great honor…

William H. Frist
Sen. William H. FristR-TN · Feb 4, 2003

Mr. President, I am pleased to join Senator Bond in reintroducing the Birth Defects and Developmental Disabilities Prevention Act of 2003. This bill reauthorizes the National Center on Birth Defects…

William H. Frist
Sen. William H. FristR-TN · Feb 4, 2003

Mr. President, I am pleased to join Senator Bond in reintroducing the Birth Defects and Developmental Disabilities Prevention Act of 2003. This bill reauthorizes the National Center on Birth Defects…

Bill Text

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Enrolled BillPublication date not provided
        [Congressional Bills 108th Congress]
[From the U.S. Government Publishing Office]
[S. 286 Enrolled Bill (ENR)]

S.286

One Hundred Eighth Congress

of the

United States of America

AT THE FIRST SESSION

Begun and held at the City of Washington on Tuesday,
the seventh day of January, two thousand and three

An Act

To revise and extend the Birth Defects Prevention Act of 1998.

Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

This Act may be cited as the ``Birth Defects and Developmental
Disabilities Prevention Act of 2003''.
SEC. 2. NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL
DISABILITIES.
Section 317C of the Public Health Service Act (42 U.S.C. 247b-4) is
amended--
(1) in subsection (a)(2)--
(A) in subparagraph (A)--
(i) by striking ``and developmental disabilities'' and
inserting ``, developmental disabilities, and disabilities
and health''; and
(ii) by striking ``subsection (d)(2)'' and inserting
``subsection (c)(2)'';
(B) in subparagraph (B), by striking ``and'' at the end;
(C) in subparagraph (C), by striking the period and
inserting a semicolon; and
(D) by adding at the end the following:
``(D) to conduct research on and to promote the prevention
of such defects and disabilities, and secondary health
conditions among individuals with disabilities; and
``(E) to support a National Spina Bifida Program to prevent
and reduce suffering from the Nation's most common permanently
disabling birth defect.'';
(2) by striking subsection (b);
(3) in subsection (d)--
(A) by striking paragraph (1) and inserting the following:
``(1) contains information regarding the incidence and
prevalence of birth defects, developmental disabilities, and the
health status of individuals with disabilities and the extent to
which these conditions have contributed to the incidence and
prevalence of infant mortality and affected quality of life;'';
(B) in paragraph (3), by inserting ``, developmental
disabilities, and secondary health conditions among individuals
with disabilities'' after ``defects'';
(C) in paragraph (4), by striking ``and'' at the end;
(D) by redesignating paragraph (5) as paragraph (7); and
(E) by inserting after paragraph (4) the following:
``(5) contains information on the incidence and prevalence of
individuals living with birth defects and disabilities or
developmental disabilities, information on the health status of
individuals with disabilities, information on any health
disparities experienced by such individuals, and recommendations
for improving the health and wellness and quality of life of such
individuals;
``(6) contains a summary of recommendations from all birth
defects research conferences sponsored by the Centers for Disease
Control and Prevention, including conferences related to spina
bifida; and'';
(4) by redesignating subsections (c), (d), and (e) as
subsections (b), (c), and (d), respectively;
(5) by inserting after subsection (d) (as so redesignated), the
following:
``(e) Advisory Committee.--Notwithstanding any other provision of
law, the members of the advisory committee appointed by the Director of
the National Center for Environmental Health that have expertise in
birth defects, developmental disabilities, and disabilities and health
shall be transferred to and shall advise the National Center on Birth
Defects and Developmental Disabilities effective on the date of
enactment of the Birth Defects and Developmental Disabilities
Prevention Act of 2003.''; and
(6) in subsection (f), by striking ``$30,000,000'' and all that
follows and inserting ``such sums as may be necessary for each of
fiscal years 2003 through 2007.''.
SEC. 3. TECHNICAL CORRECTIONS FOR STATE COUNCILS ON DEVELOPMENTAL
DISABILITIES.
(a) In General.--Section 122(a) of the Developmental Disabilities
Assistance and Bill of Rights Act of 2000 (42 U.S.C. 15022(a)) is
amended--
(1) in paragraph (3)(A)(ii), by inserting before the period the
following: ``, the amount received by the State for the previous
year, or the amount of Federal appropriations received in fiscal
year 2000, 2001, or 2002, whichever is greater''; and
(2) in paragraph (4)(A)(ii), by inserting before the period the
following: ``, the amount received by the State for the previous
year, or the amount of Federal appropriations received in fiscal
year 2000, 2001, or 2002, whichever is greater''.
(b) Effective Date.--The amendments made by subsection (a) shall
take effect on October 1, 2003 and apply to allotments beginning in
fiscal year 2004.

SEC. 4. REPORT ON SURVEILLANCE ACTIVITIES.

Not later than 18 months after the date of enactment of this Act,
the Secretary of Health and Human Services jointly with the Secretary
of Education shall submit to the Committee on Health, Education, Labor,
and Pensions of the Senate and the Committee on Energy and Commerce and
Committee on Education and the Workforce of the House of
Representatives a report concerning surveillance activities under
section 102 of the Children's Health Act of 2000 (Public Law 106-310),
specifically including--
(1) a description of the current grantees under the National
Autism and Pervasive Developmental Disabilities Surveillance
Program and the Centers of Excellence in Autism and Pervasive
Developmental Disabilities, the data collected, analyzed, and
reported under such grants, the sources of such data, and whether
such data was obtained with parental consent as required under the
Family Educational Rights and Privacy Act of 1974 (20 U.S.C.
1232g);
(2) a description of current sources of data for the
surveillance of autism and developmental disabilities and the
methods for obtaining such data, including whether such data was
obtained with parental or patient consent for disclosure;
(3) an analysis of research on autism and developmental
disabilities with respect to the methods of collection and
reporting, including whether such research was obtained with
parental or patient consent for disclosure;
(4) an analysis of the need to add education records in the
surveillance of autism and other developmental disabilities,
including the methodological and medical necessity for such records
and the rights of parents and patients in the use of education
records (in accordance with the Family Educational Rights and
Privacy Act of 1974);
(5) a description of the efforts taken by the Centers for
Disease Control and Prevention to utilize education records in
conducting the surveillance program while obtaining parental or
patient consent for such education records, including the outcomes
of such efforts;
(6) a description of the challenges provided to obtaining
education records (in the absence of parental or patient consent)
for the purpose of obtaining additional surveillance data for
autism and other developmental disabilities; and
(7) a description of the manner in which such challenges can be
overcome, including efforts to educate parents, increase confidence
in the privacy of the surveillance program, and increase the rate
of parental or patient consent, and including specific quantitative
and qualitative justifications for any recommendations for changes
to existing statutory authority, including the Family Educational
Rights and Privacy Act of 1974.

Speaker of the House of Representatives.

Vice President of the United States and
President of the Senate.