[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[H. Con. Res. 357 Enrolled Bill (ENR)]
H.Con.Res.357
Agreed to May 24, 2006
One Hundred Ninth Congress
of the
United States of America
AT THE SECOND SESSION
Begun and held at the City of Washington on Tuesday,
the third day of January, two thousand and six
Concurrent Resolution
Whereas cystic fibrosis is one of the most common life-threatening
genetic diseases in the United States and one for which there is no
known cure;
Whereas the average life expectancy of an individual with cystic
fibrosis is 35 years, an improvement from a life expectancy of 10
years in the 1960s, but still unacceptably short;
Whereas approximately 30,000 people in the United States have cystic
fibrosis, more than half of them children;
Whereas one of every 3,500 babies born in the United States is born
with cystic fibrosis;
Whereas more than 10,000,000 Americans are unknowing, symptom-free
carriers of the cystic fibrosis gene;
Whereas the Centers for Disease Control and Prevention recommends that
all States consider newborn screening for cystic fibrosis;
Whereas the Cystic Fibrosis Foundation urges all States to implement
newborn screening for cystic fibrosis to facilitate early diagnosis
and treatment which improves health and longevity;
Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis
can extend the lives of people who have the disease;
Whereas recent advances in cystic fibrosis research have produced
promising leads in gene, protein, and drug therapies beneficial to
people who have the disease;
Whereas innovative research is progressing faster and is being
conducted more aggressively than ever before, due, in part, to the
Cystic Fibrosis Foundation's establishment of a model clinical trials
network;
Whereas although the Cystic Fibrosis Foundation continues to fund a
research pipeline for more than two dozen potential therapies and
funds a nationwide network of care centers that extend the length and
quality of life for people with cystic fibrosis, lives continue to be
lost to this disease every day;
Whereas education of the public about cystic fibrosis, including the
symptoms of the disease, increases knowledge and understanding of
cystic fibrosis and promotes early diagnosis; and
Whereas the Cystic Fibrosis Foundation will conduct activities to honor
National Cystic Fibrosis Awareness Month in May, 2006: Now,
therefore, be it
Resolved by the House of Representatives (the Senate concurring),
That the Congress--
(1) honors the goals and ideals of National Cystic Fibrosis
Awareness Month;
(2) promotes further public awareness and understanding of
cystic fibrosis;
(3) advocates for increased support for people who have cystic
fibrosis and their families;
(4) encourages early diagnosis and access to quality care for
people with cystic fibrosis to improve the quality of their lives;
and
(5) supports research to find a cure for cystic fibrosis by
fostering an enhanced research program through a strong Federal
commitment and expanded public-private partnerships.
Attest:
Clerk of the House of Representatives.
Attest:
Secretary of the Senate.