H.R. 5265House110th Congress (2007-2009)Enacted

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008

Introduced February 7, 2008

Legislative Activity

Stay on top of the latest movement without scrolling through every action

24 earlier actions
Became Law Latest Action

Became Public Law No: 110-361.

October 8, 2008

View full timeline
HouseIntro Referral

Introduced in House

February 7, 2008

HouseIntro Referral

Referred to the House Committee on Energy and Commerce.

February 7, 2008

HouseCommittee

Referred to the Subcommittee on Health.

February 7, 2008

HouseCommittee

Committee Consideration and Mark-up Session Held.

September 17, 2008

HouseCommittee

Ordered to be Reported (Amended) by Voice Vote.

September 17, 2008

HouseFloor

Mr. Pallone moved to suspend the rules and pass the bill, as amended.

September 23, 2008 • 8:26 PM

HouseFloor

Considered under suspension of the rules. (consideration: CR H8676-8678)

September 23, 2008 • 8:26 PM

HouseFloor

DEBATE - The House proceeded with forty minutes of debate on H.R. 5265.

September 23, 2008 • 8:26 PM

HouseFloor

At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Burgess objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.

September 23, 2008 • 8:30 PM

HouseFloor

Considered as unfinished business. (consideration: CR H9305-9306)

September 24, 2008 • 3:48 PM

HouseFloor

Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by recorded vote (2/3 required): 418 - 2 (Roll no. 633).(text: CR 9/23/2008 H8676-8677)

September 24, 2008 • 3:56 PM

HouseFloor

On motion to suspend the rules and pass the bill, as amended Agreed to by recorded vote (2/3 required): 418 - 2 (Roll no. 633). (text: CR 9/23/2008 H8676-8677)

September 24, 2008 • 3:56 PM

HouseFloor

Motion to reconsider laid on the table Agreed to without objection.

September 24, 2008 • 3:56 PM

SenateIntro Referral

Received in the Senate.

September 25, 2008

SenateFloor

Measure laid before Senate by unanimous consent. (consideration: CR S9605-9606)

September 26, 2008

SenateFloor

Passed Senate with an amendment by Unanimous Consent.

September 26, 2008

SenateFloor

Message on Senate action sent to the House.

September 26, 2008

HouseResolving Differences

Mr. Pallone asked unanimous consent that the House agree to the Senate amendment. (consideration: CR H10176-10177)

September 27, 2008 • 1:45 PM

HouseNot Used

Resolving differences -- House actions: On motion that the House agree to the Senate amendment Agreed to without objection.(text as House agreed to Senate amendment: CR H10176-10177)

September 27, 2008

HouseResolving Differences

On motion that the House agree to the Senate amendment Agreed to without objection. (text as House agreed to Senate amendment: CR H10176-10177)

September 27, 2008 • 1:46 PM

HouseResolving Differences

Motion to reconsider laid on the table Agreed to without objection.

September 27, 2008 • 1:46 PM

HouseAction

Cleared for White House.

September 27, 2008

President

Presented to President.

September 30, 2008

Became Law

Signed by President.

October 8, 2008

Became Law

Became Public Law No: 110-361.

October 8, 2008

Floor Debate

24 members

What members said about H.R. 5265 on the floor

12 Republicans12 Democrats
Michael K. Simpson
Rep. Michael K. SimpsonR-ID-2 · Sep 24, 2008

Mr. Speaker, in accordance witt House earmark reforms, I would like to place in the Record a listing of the congressionally- directed projects I have requested in my home State of Idaho that are…

David R. Obey
Rep. David R. ObeyD-WI-7 · Sep 24, 2008

Mr. Speaker, pursuant to House Resolution 1488, I call up the bill (H.R. 2638) making appropriations for the Department of Homeland Security for the fiscal year ending September 30, 2008, and for…

Jerry Lewis
Rep. Jerry LewisR-CA-41 · Sep 24, 2008

Mr. Speaker, I yield myself such time as I may consume. Mr. Speaker, I come to the floor today with serious reservations about the process, or rather the lack of process, governing the development of…

Steny H. Hoyer
Rep. Steny H. HoyerD-MD-5 · Sep 24, 2008

I thank the distinguished chairman of the Appropriations Committee for yielding. I rise obviously in very strong support of this continuing resolution and the three full bills that are attached to it…

David E. Price
Rep. David E. PriceD-NC-4 · Sep 24, 2008

Mr. Speaker, I am pleased that the package we are considering today includes the fiscal year 2009 funding for the Department of Homeland Security. The Homeland Security provisions are the product of…

Show 8 more
John P. Murtha
Rep. John P. MurthaD-PA-12 · Sep 24, 2008

The House Appropriations Subcommittee on Defense has held 22 hearings and our members and staff have visited over 100 military bases and facilities, both here at home and throughout the world. The…

Zach Wamp
Rep. Zach WampR-TN-3 · Sep 24, 2008

I thank the distinguished ranking member for the time and for the courtesies and instruction and help along the way that he has given me. It is an honor to follow the majority leader. I know that he…

Harold Rogers
Rep. Harold RogersR-KY-5 · Sep 24, 2008

Mr. Speaker, let me start by echoing Ranking Member Lewis's misgivings about this so-called process. While I am certainly no stranger to omnibus appropriations bills, I must say we could have avoided…

C. W. Bill Young
Rep. C. W. Bill YoungR-FL-10 · Sep 24, 2008

Mr. Speaker, the Defense part of this bill is a very important part of the package, although it's only one of three appropriations bills. It's a good bill. The Republican members and the Democratic…

Henry A. Waxman
Rep. Henry A. WaxmanD-CA-30 · Sep 24, 2008

Mr. Speaker, this Congress, the House and Senate have passed important Federal contracting reforms, but neither body has assembled them into a comprehensive package. The ``Clean Contracting Act'' in…

John A. Boehner
Rep. John A. BoehnerR-OH-8 · Sep 24, 2008

Let me thank my colleague for yielding and thank my friend from Wisconsin for his kindness. Here we are, we have a bill where we're going to spend $800 billion of taxpayers' money, a bill that has…

Frank Pallone, Jr.
Rep. Frank Pallone, Jr.D-NJ-6 · Sep 23, 2008

Mr. Speaker, I move to suspend the rules and pass the bill (H.R. 5265) to amend the Public Health Service Act to provide for research with respect to various forms of muscular dystrophy, including…

Chet Edwards
Rep. Chet EdwardsD-TX-17 · Sep 24, 2008

Mr. Speaker, less than 2 years ago, a new Speaker of the House, Nancy Pelosi, made a solemn promise to America's veterans. The gentlewoman from California said that the new 110th Congress would honor…

Show 11 more
Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Sep 24, 2008

Mr. Speaker, while there are some positive steps taken in this legislation to help those hurt by recent disasters, additional funding for cleaning up unexploded ordnance around the country, and some…

Tom Latham
Rep. Tom LathamR-IA-4 · Sep 24, 2008

Mr. Speaker, I rise in support of this funding package, and to tell my colleagues that there is much in this measure that should be supported. I also want to say that we should not be put in the…

Eliot L. Engel
Rep. Eliot L. EngelD-NY-17 · Sep 23, 2008

Mr. Speaker, I am so proud that today we will move to pass H.R. 5265, the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008. Today we have over 120…

John M. Spratt, Jr.
Rep. John M. Spratt, Jr.D-SC-5 · Sep 24, 2008

Mr. Speaker, I rise in support of H.R. 2638, as amended, but I wish to draw particular attention to the $5 million of funding provided within this bill for a space-based kinetic interceptor study,…

James T. Walsh
Rep. James T. WalshR-NY-25 · Sep 24, 2008

Mr. Speaker, I am disappointed. After the disappointment of moving to the minority in 2007, I took some solace in the fact that the three highest elected Democratic leaders are all former members of…

Nita M. Lowey
Rep. Nita M. LoweyD-NY-18 · Sep 24, 2008

Mr. Speaker, on August 16, 2007, the U.S. Government signed a new Memorandum of Understanding, MOU, with Israel to establish the security assistance framework for $30 billion in U.S. military…

Betty McCollum
Rep. Betty McCollumD-MN-4 · Sep 25, 2008

Mr. Speaker, I rise today in strong support of H.R. 5265, the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments Act of 2008. This legislation is…

Fred Upton
Rep. Fred UptonR-MI-6 · Sep 24, 2008

Mr. Speaker, last year the Congress, this Congress, authorized $25 billion to help the auto industry. But, as we know, an authorization is no good unless you appropriate the money. The auto industry…

Michael C. Burgess
Rep. Michael C. BurgessR-TX-26 · Sep 23, 2008

Mr. Speaker, I yield myself such time as I may consume, and I rise in support of H.R. 5265, the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008.…

Ted Poe
Rep. Ted PoeR-TX-2 · Sep 24, 2008

Mr. Speaker, I'm glad that this package includes disaster assistance. Eleven days ago Hurricane Ike came blasting through the Southeast Texas area. To give some magnitude of how large this hurricane…

Joe Knollenberg
Rep. Joe KnollenbergR-MI-9 · Sep 24, 2008

Mr. Speaker, I rise today in support of the appropriations package before us. It includes money that is very important to Michigan and to the domestic auto industry. I want to thank Mr. Obey, I want…

Bill Text

6 versions available

Reading Mode
Latest
Enrolled BillIssued September 28, 2008

One Hundred Tenth Congress of the United States of America

At the Second Session

Begun and held at the City of Washington on Thursday, the third day of January, two thousand and eight

H. R. 5265

AN ACT

To amend the Public Health Service Act to provide for research with respect to various forms of muscular dystrophy, including Becker, congenital, distal, Duchenne, Emery-Dreifuss facioscapulohumeral, limb-girdle, myotonic, and oculopharyngeal, muscular dystrophies.

1.

Short title

This Act may be cited as the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008.

2.

Expansion, intensification, and coordination of activities of NIH with respect to research on muscular dystrophy

(a)

Technical correction

Section 404E of the Public Health Service Act (42 U.S.C. 283g) is amended by striking subsection (f) (relating to reports to Congress) and redesignating subsection (g) as subsection (f).

(b)

Amendments

Section 404E of the Public Health Service Act (42 U.S.C. 283g) is amended—

(1)

in subsection (a)(1), by inserting the National Heart, Lung, and Blood Institute, after the Eunice Kennedy Shriver National Institute of Child Health and Human Development,;

(2)

in subsection (b)(1), by adding at the end of the following: Such centers of excellence shall be known as the Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.; and

(3)

by adding at the end the following:

(g)

Clinical research

The Coordinating Committee may evaluate the potential need to enhance the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy by prioritizing the achievement of the goals related to this topic in the plan under subsection (e)(1).

.

3.

Development and expansion of activities of CDC with respect to epidemiological research on muscular dystrophy

Section 317Q of the Public Health Service Act (42 U.S.C. 247b–18) is amended—

(1)

by redesignating subsection (d) as subsection (f); and

(2)

by inserting after subsection (c) the following:

(d)

Data

In carrying out this section, the Secretary may ensure that any data on patients that is collected as part of the Muscular Dystrophy STARnet (under a grant under this section) is regularly updated to reflect changes in patient condition over time.

(e)

Reports and study

(1)

Annual report

Not later than 18 months after the date of the enactment of the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008, and annually thereafter, the Director of the Centers for Disease Control and Prevention shall submit to the appropriate committees of the Congress a report—

(A)

concerning the activities carried out by MD STARnet site funded under this section during the year for which the report is prepared;

(B)

containing the data collected and findings derived from the MD STARnet sites each fiscal year (as funded under a grant under this section during fiscal years 2008 through 2012); and

(C)

that every 2 years outlines prospective data collection objectives and strategies.

(2)

Tracking health outcomes

The Secretary may provide health outcome data on the health and survival of people with muscular dystrophy.

.

4.

Information and education

Section 5 of the Muscular Dystrophy Community Assistance, Research and Education Amendments of 2001 (42 U.S.C. 247b–19) is amended—

(1)

by redesignating subsection (c) as subsection (d); and

(2)

by inserting after subsection (b) the following:

(c)

Requirements

In carrying out this section, the Secretary may—

(1)

partner with leaders in the muscular dystrophy patient community;

(2)

cooperate with professional organizations and the patient community in the development and issuance of care considerations for Duchenne-Becker muscular dystrophy, and other forms of muscular dystrophy, and in periodic review and updates, as appropriate; and

(3)

widely disseminate the Duchenne-Becker muscular dystrophy and other forms of muscular dystrophy care considerations as broadly as possible, including through partnership opportunities with the muscular dystrophy patient community.

.

Speaker of the House of Representatives.

Vice President of the United States and President of the Senate.