I thank my good friend, Mr. Pitts, for yielding. Madam Speaker, I rise in strong support of H. Res. 1033, a resolution designating April 2010 as National Autism Awareness Month. I thank my friends…
I thank my good friend, Mr. Pitts, for yielding.
Madam Speaker, I rise in strong support of H. Res. 1033, a resolution designating April 2010 as National Autism Awareness Month.
I thank my friends and colleagues Messrs. Reichert, Gerlach, and Bachus. I especially want to thank my good friend and colleague, the cochair of the House caucus, who is Mike Doyle, and Mr. Pitts for their leadership on this very important resolution and, most importantly, on this very important issue.
This resolution serves an important function of increasing awareness of the 1.5 million individuals who are living with autism spectrum disorder and of the extreme dedication and efforts of their families in providing the best possible care and environments for their children, grandchildren, brothers, and sisters.
I want to especially note that the parents and the grandparents of children with autism have earned our enormous respect. I know many families with autism. It can be a very harrowing ordeal. Yet they do it with such class and with such love and dedication to their children. The concerns of the parents are validated in the community, and have since been found to be true nationwide in terms of the numbers.
I will point out to my colleagues that I've been involved in autism since 1981,
since my first term. I'll never forget visiting Eden Institute in Princeton, which does tremendous breakthrough research and work with autism children and young adults. Frankly, for me, it wasn't until 1998 when two parents, Bobbie and Billy Gallagher from Brick Township, New Jersey, came to me after hours and said, Congressman, we'd like you to sit down and look over some of the evidence and data we've accumulated because it is our belief that there is a prevalent spike in autism in Brick.
We brought in all of the good players. We brought in the CDC; we brought in the NIH folks, and we brought in public health experts. We put together a study to find out what was or is the trigger that was seemingly causing this huge spike in autistic children in one particular town in the State of New Jersey. To our shock and dismay, as this was going on, we discovered that there was a prevalence spike for sure, but it was most likely throughout the rest of New Jersey and probably, as it was highly suggestive, throughout the entire country of the United States.
So we put together a piece of legislation to establish what we called the Centers of Excellence to look at, especially, and to apply the best principles and prevalence techniques to determine what was causing this and to determine how many children were being malaffected by autism. To our shock and dismay, again we discovered that the United States didn't have a one in 10,000 prevalence, which is what the expectation was when I was elected in 1981, but that it was much higher. At that point, it was put at about one out of every 150 children.
So the Centers of Excellence were funded. The legislation was passed. I'll never forget that Congressman Mike Bilirakis was kind enough to accept our legislation as Title I of the Children's Health Act, which was a very comprehensive law designed to help children. Title I not only put more money into the CDC but also into the National Institutes of Health, which then was very much underfunding this effort to try to help autistic children.
Just for the record, we were spending $287,000 per year on autism at CDC. As my colleagues know, that falls off the table at some of our bureaucracies. That number has now gone up significantly to about $15 million, and now we have a critical mass of money working very synergistically with local health departments and the Centers for Disease Control and Prevention as well as on these prevalence efforts to find out what the parameters are of this developmental disability, because you can't combat something unless you know the who, what, when, where, and why of it, and that is what we are trying to do.
In the early 2000s, Mr. Doyle and I launched the Autism Caucus. We have tried throughout these years to be very supportive of every legislative effort, including the cure autism efforts of these past several years. The key has been more money for research, more money for early childhood interventions and trying to deal with the issue of what happens after a child reaches adulthood. It seems to me that every dollar we spend early-on means that we can have a higher functioning autistic child, now young adult, who can get a job, who can become gainfully employed, and who can become as independent as humanly possible. So every dollar we spend on autism is a dollar well spent.
Mr. Doyle and I have already entered into a compact with friends in Northern Ireland, in Wales, and in Scotland where they have an autism problem. This is a global phenomenon, as my friends and colleagues know, and we need to do more.
I have introduced a bill which would provide small grant money to fledgling nongovernmental organizations throughout the world.
In my travels to places like Nigeria, I met up with a small nongovernmental organization which was like David versus Goliath. I was trying to get the government there to realize that they have an autistic problem that is estimated to affect about 1 million children in Nigeria alone. Nobody knows how accurate that is, but the best and most well-intentioned people in Nigeria have come to that number.
So we do have a serious spike. What is the trigger? Is it too many vaccines given at one time, you know, where the megadosing that occurs today in that little child can't metabolize and where the body can't deal with it in a way that leads to the child's being safe from those other diseases? Is it thimerosal? For our children and for our young adults who have autism, we need to continue to leave no stone unturned in finding what the trigger is or what the multiple triggers are.
Finally, again, I want to thank Bobbie and Billy Gallagher, who are the two parents in Brick Township who came forward with a stack of papers and who said, Please, will you take this up?
I took it up, and I've enjoyed working closely with friends and colleagues on the other side of the aisle so that we can cure autism now. The sooner the better.
Madam Speaker, I rise today in support of H. Res. 1033, a resolution designating April 2010 as ``Nation Autism Awareness Month.'' I thank my friends and colleagues, Representatives Reichert,
Gerlach and Bachus for introducing this resolution--and my friend and co-chair of the House Autism Caucus, Mike Doyle.
This resolution services an important function of increasing awareness of the 1.5 million individuals living with an autism spectrum disorder (ASD) and the extreme dedication and efforts of their families in providing the best possible care and environment for their children, grandchildren and brothers and sisters. Especially the parents and grandparents of individuals with autism deserve our enormous respect and support. Also deserving recognition are the many ASD advocacy groups who have been working hard for so long and the many providers of care and services for individuals with autism.
From my first session in Congress in 1981, I have been a consistent advocate for individuals with developmental disorders, including autism. In 1998, I became much more deeply involved after learning and listening to parents in a local community in my district--Brick Township--about their concerns that the frequency of autism was much higher than was being reported by officials at the time. The concerns of those parents were validated for their community and have since been found to be true nationwide. As stated in the resolution before us, autism is now known to affect every 1 in 110 children--my own state of NJ has among the highest rates in the nation at 1 in 94.
Autism generally is a life-long disability that can overwhelm families, as their lives become consumed with the considerable challenges of identifying appropriate biomedical and psychosocial treatments, schooling and other needed support systems for their autistic child--and eventually for an autistic adult.
Our nation is in the midst of an autism crisis that becomes more severe each passing month, a crisis that costs our nation tens of billions of dollars annually in medical care, behavioral therapy, special child care, and a range of child and adult services needed to care for these individuals. The resolution before us provides the staggering financial costs of autism--$80,000 per year to provide specialized treatment in a medical center, $30,000 per child per year for special education services, and a nationwide costs of over $90 billion per year.
The resolution appropriately recognizes the critical importance of early diagnosis and early treatment for children with autism in order to have the greatest positive impact on their lives, and it recognizes the extremely important need to provide worker training for young adults and adults with autism so that they can active members of the workforce.
Thankfully, Madam Speaker, in December 2006, this Congress passed and then President Bush signed the Combating Autism Act, which added significant provisions to broaden and strengthen activities related to autism. Among its provisions, that law requires the National Institutes of Health to expand ASD-related research--including investigating possible environmental causes of autism, authorizes grant programs to improve the epidemiology of autism, and also includes a very robust section ``Autism Education, Early Detection, and Intervention,'' to improve the early screening, diagnosis, interventions, and treatments for ASDs.
While we all were gratified with passage of the Combating Autism Act, we also recognized that there is a tremendous unmet need to improve services for both children and adults with autism. That is why I am extremely gratified to have joined my friend Mike Doyle, along with Rep. Eliot Engel, in introducing, the Autism Treatment Acceleration Act (H.R. 2413), to provide for enhanced support, services and treatment, as well as research for individuals with autism spectrum disorders and their families.
To mention only two provisions of the bill--it would establish an Adult Services Demonstration Project to provide an array of services to adults with autism spectrum disorders including: post secondary education, vocational and self advocacy skills, employment; residential services, supports and housing; nutrition, health and wellness; recreational and social activities; and transportation and personal safety. And it would establish a ``National Network for Autism Spectrum Disorders Research and Services'' to strengthen linkages between research and service initiatives at the federal, regional, state and local levels, and facilitate the translation of research on autism into services and treatments.
I know that all of us here share the commitment to dramatically improve the lives for the well over a million American children and adults who have an autism spectrum disorder and improve the outlook for their families and other loved ones. I thank my friends Representatives Reichert, Gerlach and Bachus for introducing this resolution. And I thank my friend Mike Doyle for his leadership in establishing new programs to help individuals with autism.