III
113th CONGRESS
1st Session
S. RES. 85
IN THE SENATE OF THE UNITED STATES
March 20, 2013
Mr. Sessions (for himself and Mr. Cardin) submitted the following resolution; which was considered and agreed to
RESOLUTION
Designating April 2013 as National
Congenital Diaphragmatic Hernia Awareness Month
.
Whereas congenital diaphragmatic hernia occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and prevent lung growth;
Whereas the Centers for Disease Control and Prevention defines congenital diaphragmatic hernia as a birth defect;
Whereas congenital diaphragmatic hernia occurs in 1 of every 2,500 births;
Whereas congenital diaphragmatic hernia affects approximately 1,600 babies each year in the United States;
Whereas the majority of congenital diaphragmatic hernia patients have underdeveloped lungs or poor pulmonary function;
Whereas congenital diaphragmatic hernia patients often endure long-term complications, including pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflex, feeding disorders, and developmental delays;
Whereas congenital diaphragmatic hernia survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition, and hypoxic brain injury;
Whereas congenital diaphragmatic hernia patients have a survival rate ranging from 62 percent to 90 percent depending on the severity of the defect, the treatment available at delivery, and whether extracorporeal membrane oxygenation must be used;
Whereas congenital diaphragmatic hernia has affected more than 600,000 babies throughout the world since 2000;
Whereas babies born with congenital diaphragmatic hernia endure extended hospital stays in intensive care with multiple surgeries;
Whereas congenital diaphragmatic hernia is as common a birth defect as spina bifida and cystic fibrosis;
Whereas congenital diaphragmatic hernia is diagnosed in utero in only 75 percent of cases;
Whereas congenital diaphragmatic hernia is treated through
mechanical ventilation, extracorporeal membrane oxygenation machines (commonly
known as heart and lung bypass machines
) and surgical
repair;
Whereas patients often outgrow congenital diaphragmatic hernia surgical repair, leading to reherniation and requiring additional surgery;
Whereas the occurrence of congenital diaphragmatic hernia does not discriminate based on race, gender, or socioeconomic status;
Whereas the cause of congenital diaphragmatic hernia is unknown;
Whereas the average hospital bill for a congenital diaphragmatic hernia patient is $500,000; and
Whereas the total annual cost of medical care for children with congenital diaphragmatic hernia in the United States is more than $800,000,000: Now, therefore be it
That the Senate—
designates April
2013 as National Congenital Diaphragmatic Hernia Awareness
Month
;
declares that steps should be taken to—
raise awareness of and increase public knowledge about congenital diaphragmatic hernia;
inform minority populations in the United States about congenital diaphragmatic hernia;
disseminate information on the importance of good neonatal care for congenital diaphragmatic hernia patients;
promote good prenatal care and the use of ultrasounds to detect congenital diaphragmatic hernia in utero; and
encourage research on congenital diaphragmatic hernia in order to discover its causes, develop treatments, and find a cure; and
calls on the people of the United States, interest groups, and affected persons to—
promote awareness of congenital diaphragmatic hernia;
take an active role in the fight against this devastating birth defect; and
observe National Congenital Diaphragmatic Hernia Awareness Month with appropriate ceremonies and activities.