Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.

Whereas Ehlers-Danlos Syndrome represents multiple genetic disorders involving mutations in connective tissue that are characterized by looseness, instability, and dislocation of the joints and fragile skin that easily bruises and scars;

Whereas there are 13 types of Ehlers-Danlos Syndrome caused by genetic defects in collagen, one of the major structural components of the body;

Whereas it is estimated that the prevalence of all types of the syndrome affect at least 1 in 5,000 people worldwide;

Whereas a network of Ehlers-Danlos Syndrome support groups can help connect those managing life with the disease as well as better inform the health care community and the public;

Whereas early and accurate diagnosis can provide the opportunity to create lifesaving medical plans and ensure the quality of life;

Whereas there is currently no treatment for Ehlers-Danlos Syndrome and no known cure;

Whereas further medical research and awareness bring hope for treatment and a cure; and

Whereas the month of May would be an appropriate month to designate as Ehlers-Danlos Syndrome Awareness Month: Now, therefore, be it