H.Res. 1613House119th Congress (2025-2027)In Committee

Expressing support for the recognition of October 5th as "National Peroxisomal Disorder Awareness Day".

Sponsored by Young KimRep. Young Kim (R-CA)
Introduced October 5, 2026

AI-Generated Summary

Updated October 6, 2026 at 8:27 AM UTC

H.Res. 1613 is a House resolution that asks Congress to recognize October 5th each year as National Peroxisomal Disorder Awareness Day. The resolution aims to raise public understanding of peroxisomal genetic disorders, which affect many organ systems and have limited treatment options. It also highlights the financial and emotional strain these conditions place on patients, families, and caregivers across the United States.

Key Provisions

  • Expresses support for designating October 5th as National Peroxisomal Disorder Awareness Day.
  • Expresses concern for the severe health and financial burdens faced by American families affected by peroxisomal disorders.

Legislative Activity

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HouseIntro Referral Latest Action

Referred to the House Committee on Energy and Commerce.

October 5, 2026

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HouseIntro Referral

Submitted in House

October 5, 2026

HouseIntro Referral

Referred to the House Committee on Energy and Commerce.

October 5, 2026

Bill Text

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Introduced in HouseIssued October 5, 2026

IV

119th CONGRESS

2d Session

H. RES. 1613

IN THE HOUSE OF REPRESENTATIVES

October 5, 2026

Mrs. Kim submitted the following resolution; which was referred to the Committee on Energy and Commerce

RESOLUTION

Expressing support for the recognition of October 5th as National Peroxisomal Disorder Awareness Day.

Whereas National Peroxisomal Disorder Awareness Day will help to foster understanding of the impact that peroxisomal disorders, including peroxisome biogenesis disorder-Zellweger spectrum disorder and the related single enzyme deficiencies, like D-bifunctional protein deficiency, have on patients and their families;

Whereas peroxisomal disorders are progressive genetic disorders that affect peroxisome function and can impact multiple organ systems, often resulting in neurological, liver, kidney, vision, hearing, gastrointestinal, endocrine, and other serious health complications;

Whereas there are very few treatments and still no cure for peroxisomal disorders;

Whereas all patients with peroxisomal disorders suffer from a variety of health issues, causing a strain on resources and on the delivery of healthcare in the United States;

Whereas peroxisomal disorders can have a devastating impact on the health and finances of people of all ages, and equally affect people of all races, genders, nationalities, geographic locations, and income levels;

Whereas peroxisomal disorders instill in patients and their caregivers a fear of an unknown future with a life-threatening genetic disease and apprehension over possible discrimination, including the risk of losing their health and life insurance, their jobs, and their chances for promotion;

Whereas countless friends, loved ones, spouses, and caregivers of patients with peroxisomal disorders must shoulder, the physical, emotional, and financial burdens;

Whereas people who have chronic, life-threatening diseases like peroxisomal disorders and their caregivers have a predisposition to depression because of their anxiety over pain, suffering, and premature death; and

Whereas spreading awareness on October 5th is crucial to reducing barriers to health care access, including complicated and burdensome systems, limited supply of health care providers with an understanding of peroxisomal disorders, an arduous process for diagnosis, and limited resources to invest in new therapies and treatments: Now, therefore, be it

That the House of Representatives—

(1)

expresses support for the recognition of National Peroxisomal Disorder Awareness Day; and

(2)

expresses concern for the severe strain on American families impacted by peroxisome disorders.