Mr. President, I rise today to introduce the Keeping All Students Safe Act to create a safe environment for students and school personnel by creating minimum standards around the use of seclusion and restraint in schools. In December, I…
Mr. President, I rise today to introduce the Keeping All Students Safe Act to create a safe environment for students and school personnel by creating minimum standards around the use of seclusion and restraint in schools. In December, I introduced a similar bill. But today, I come to the floor with my good friend and colleague Senator Burr, with a revised act that incorporates additional protections for students.
In 1998, the Hartford Courant ran an award-winning series of stories about the use of seclusion and restraint in hospitals, residential facilities, and group homes for individuals with psychiatric and developmental disabilities. The Courant uncovered a hidden epidemic, confirming 142 deaths occurring during or after the use of seclusion or restraint.
One of those 142 cases was an 11-year-old boy from my home State of Connecticut. He was restrained face-down in a position that restricted his air flow. He died as a result.
In response, I led the charge to establish Federal standards to prevent the misuse of these practices. I helped pass The Children's Health Act of 2000, which included the Compassionate Care Act that I originally drafted to put these standards in place in certain hospitals and residential facilities. We
wanted to include schools in this legislation, but were unable to do so. Sadly, the need could not have been greater.
Over the past year, reports from the National Disability Rights Network, NDRN, the Alliance to Prevent Restraint, Aversive Interventions, and Seclusion, APRAIS, the Council of Parent Attorneys and Advocates, Inc., COPAA, and the Government Accountability Office, GAO, have painted a picture disturbingly similar to the one the Hartford Courant discovered more than a decade ago.
The statistics are chilling--hundreds of incidents of physical injury, psychological trauma, even death--but the stories are even more devastating.
The GAO found many examples of the inappropriate use of seclusion and restraint in the report it released on May 19, 2009.
A 14 year-old boy was restrained face-down by a teacher because he would not stay seated in class. The 230 lb. teacher sat on the 129 lb. boy, restricting his airflow and resulting in the boy's death.
A 4 year-old girl with cerebral palsy and autism was restrained in a wooden chair with leather straps for being ``uncooperative.''
In one school district, children with disabilities as young as six years old were allegedly placed in strangleholds, restrained for extended periods of time, confined to dark rooms, and tethered to ropes and prevented from using the restroom until they urinated on themselves.
To be clear, school personnel go to work every day with the goal of educating children, not harming them. I have the utmost respect and appreciation for the difficult job they do and want to make it clear that my concern signifies no disrespect for their challenging jobs, or the dangers they sometimes face.
However, these tragic stories reflect inadequate training and a lack of resources on the state and local levels to implement effective interventions, such as school-wide positive behavioral interventions and supports. According to a report by COPPA, over 71 percent of the 185 incidents they identified occurred in schools with no positive behavioral interventions or supports. If school personnel are provided with the necessary tools to prevent dangerous situations, the number of incidents requiring restraint and seclusion will decrease.
Just as students have a right to learn in a safe environment, educators have a right to work in a safe environment. They should be provided with the proper training and support to prevent injury to themselves and others.
In some states, parents have successfully advocated for laws that provide these resources, as well as guidelines to ensure that they are used effectively.
But the patchwork of state laws and regulations is confusing and especially troublesome for transient students.
According to the GAO study, 19 states have no law or regulations concerning seclusion and restraint in schools. Some laws apply to only certain schools or situations, and some apply to restraint but not seclusion. Only 19 states require parental notification, only 17 states require staff training, and only eight specifically prohibit restraints that restrict air flow.
Therefore, Senator Burr and I will today introduce the Keeping All Students Safe Act, a bill that will address these issues.
Our bill will establish clear minimum standards for the use of restraint and seclusion in schools, closely based on the Children's Health Act of 2000. It will also provide resources to assist with policy implementation and provide school personnel with necessary tools, training, and support.
It will improve data collection, analysis, and identification of effective practices to prevent and reduce seclusion and restraint in schools, so we may better understand the scope of the problem and the effectiveness of our solutions.
Specifically, the legislation will prohibit the use of seclusion and restraint in schools unless a student's behavior poses an immediate danger of serious physical injury and less restrictive interventions would be ineffective.
It will prohibit the use of mechanical, chemical, and physical restraints that restrict air flow to the lungs.
This legislation will require adequate training and state certification of school personnel imposing seclusion or restraint, immediate parental notification when such an incident occurs, and a debriefing session to prevent future incidents.
As a result of this act, the Department of Education will conduct, and provide to Congress, a national assessment that analyzes data on seclusion and restraint and determines effective practices in preventing and reducing the number of incidents. This assessment will provide us with a more accurate picture of the extent of seclusion and restraint in schools, and will help direct additional future efforts to ensure that our children and those who educate them are safe.
The Keeping All Students Safe Act includes language that solidifies Protection and Advocacy agencies', P&A, abilities to serve the students who are in need of protection. This legislation is meant to ensure that these P&As are spending their time and resources protecting our Nation's children in schools, and not in court about this already settled issue.
Finally, this legislation will amend the Elementary and Secondary Education Act, as well as the Higher Education Act, to provide additional planning for and training on the use of positive behavioral interventions and supports.
I want to thank the many organizations representing individuals with disabilities, students, teachers, and schools that all came to the table with recommendations. Their time, energy, and input made this a much stronger and more effective bill, and I truly appreciate their hard work and support. I am especially thankful for Senator Burr's commitment to this issue and his insights that have strengthened the bill. I am also grateful to Secretary Duncan for his leadership on this issue at the Department of Education. Finally, I want to thank my colleague and good friend, Chairman George Miller in the House of Representatives. Earlier this year, he introduced companion legislation that passed the House in March. Senator Burr and I look forward to working with him to pass this into law.
Every child has a right to be safe in the place where he or she goes to learn and grow. Every educator deserves the training and support he or she needs to do his or her job safely and effectively. The Keeping All Students Safe Act will help to prevent tragedies in our schools. I am proud to introduce it today, and I urge my colleagues to join me.
Mr. President, I rise today to discuss a very serious issue that affects many Americans, and that is premature births. More than half a million babies will be born preterm this year and approximately 28,000 babies will die before they turn 1 year old.
In my home State of Connecticut, there were more than 4,000 preterm births in 2007, representing approximately 11 percent of all live births in the State. Between 1997 and 2007, the rate of infants born preterm in Connecticut increased 3 percent.
The incidence of preterm birth represents a huge disconnect between our scientific knowledge and our capacity to meet basic and critical needs in maternal-child health. According to the Centers for Disease Control and Prevention, CDC, babies who died from preterm birth-related causes accounted for more than 36 percent of infant deaths in 2006. For newborns, prematurity is the leading cause of death.
Of the surviving preemies, approximately one-fourth will have serious health complications including hearing loss, cerebral palsy, intellectual disabilities, acute respiratory diseases, and other maladies. These health problems not only affect the child, but also place a financial and emotional burden on many families. According to the Institute of Medicine, the annual societal costs associated with preterm birth were $26.2 billion in 2005 or $51,600 per infant born preterm. Nearly two-thirds of this cost was for medical care. More importantly, the $26.2 billion estimate does not include the cost of medical care beyond early childhood or caretaker costs such as lost wages.
In nearly half of all cases, physicians and scientists cannot pinpoint a cause for preterm labor and delivery. However, research has shown that causes of preterm birth may include neighborhood characteristics, environmental exposures, biological factors, and medical conditions. Many of these factors can occur in combination, particularly for those who are socioeconomically disadvantaged and minority groups. Accordingly, there are significant disparities in the rates of preterm birth across these groups, with the highest rate of preterm births for non-Hispanic African Americans at 17.5 percent in 2008, according to the National Center for Health Statistics. It is clear that a greater commitment to eliminating these inequalities is needed. As the chairman of the U.S. Senate's Health, Education, Labor, and Pensions' Subcommittee on Children and Families, ensuring the health of America's children has been my life's work, making the correction of these inequalities an issue of great importance.
In 2006, my colleague Senator Alexander and I worked to pass the Prematurity Research Expansion and Education for Mothers who deliver Infants Early Act or PREEMIE Act, Public Law 109-450, which authorized finding to enhance Federal research related to preterm labor and delivery and increased public and provider education and support services. Among the results of the PREEMIE Act were the 2008 Surgeon General's Conference on Preterm Birth and expanded research activities at CDC. The most notable accomplishment to date is a 3 percent decline in the preterm birth rate from 2007 to 2008. But there is still much work to be done. We must build on the progress recently achieved and use both public and private efforts to accelerate this decrease in the rate of preterm birth.
For these reasons, I rise today to join my colleague from Tennessee to introduce the PREEMIE Act to reauthorize these vital activities. It is my hope that this legislation will complement many of the efforts being conducted by the private sector, such as the March of Dimes campaign to raise public awareness and reduce the rate of preterm births. I urge my colleagues to join me in promoting a healthy start for America's children by supporting this legislation.
Mr. President, as a co-chair of the Congressional Spina Bifida Caucus, I rise today to introduce the Debbie Blanchard Access to Health Care for Individuals with Disabilities Act of 2010 with my colleague, Senator Sherrod Brown. This legislation provides an excellent opportunity to address a critical disparity that exists in our Nation's health care system.
Individuals with disabilities can face a myriad of challenges in accessing the health care they need and deserve. Such was the case for Debbie Blanchard, a woman who lived with Spina Bifida for nearly 56 years, and who passed away in August 2008 from cervical cancer. Due to the challenges she faced in finding a physician whose office and examination tables were accessible for individuals with disabilities, Debbie was not able to seek regular well-woman exams, including cervical cancer screenings. The barriers Debbie faced in physically accessing the regular preventive care she needed unfortunately contributed to her cervical cancer going undetected until it was too late. The lack of accessible care clearly contributed to her untimely death.
The Spina Bifida community is devastated by Debbie Blanchard's tragic passing, and we in the Congressional Spina Bifida Caucus wish to help ensure that the challenges and barriers that contributed to her illness and death are eliminated. To that end, we have developed the Debbie Blanchard Access to Health Care for Individuals with Disabilities Act in an effort to help facilitate access to health care by individuals with disabilities, including, but not limited to, those with Spina Bifida, and help them to identify providers whose offices and examination rooms are accessible for individuals with disabilities.
Before I discuss the details of this bill, I believe it is important to recognize the scope of the problem we are dealing with. According to the U.S. Census, more than 54 million Americans, about one out of every five, live with some level of disability. Approximately 34 million of those are classified as having a severe disability. In Connecticut, more than 540,000 individuals are living with some level of disability. Of those individuals, close to 22,000 have physical disabilities.
Studies conducted by the Centers for Disease Control and Prevention have found that individuals with disabilities have difficulty in accessing routine and specialized health care. Numerous barriers exist for these patients, including the inability to find a health care provider who understands how to treat individuals with disabilities and is willing to have those individuals as patients. According to a survey commissioned by the National Organization on Disability, 19 percent of persons with disabilities reported they needed medical care within the previous year and did not get it. This is a number more than three times the percentage for those without disabilities.
Women with disabilities are particularly vulnerable. A study by the Center for Research on Women with Disabilities showed that nearly one- third of women with disabilities surveyed reported being denied services at a physician's office solely because of their disability, and 56 percent described their physicians' offices and hospitals as ill-prepared to accommodate their specific needs. Research by the National Institute on Disability and Rehabilitation Research shows that women with disabilities are less likely to have Pap smears and mammograms and are more likely to be diagnosed at a later stage of breast cancer. These women are less likely to receive standard treatments and more likely to have poor outcomes.
The Patient Protection and Affordable Care Act, PL 111-l48, includes an important component to establish standards for medical diagnostic equipment such as examination tables and chairs to improve access to health care for individuals with disabilities and I applaud Senator Harkin for his leadership on that provision. As such, the legislation I propose today seeks to complement existing programs and other pending proposals. The Debbie Blanchard Access to Health Care for Individuals with Disabilities Act would empower individuals with disabilities with the information and tools they need to identify accessible providers. It would also increase awareness among health professionals of the need to provide an accessible environment. The bill provides for four key programs to achieve these goals.
First, this bill authorizes the Secretary of the Department of Health and Human Services to provide formula-based grants to States to create on-line directories of health care providers accessible to individuals with disabilities. States would not be required to engage in this activity, and the grants are strictly voluntary.
Second, it authorizes HHS to develop a pilot program to increase health care provider awareness of the need to provide accessible environments, examination rooms, and examination tables for individuals with disabilities.
Third, it authorizes the HHS Office on Disability, with the help of national organizations representing individuals with disabilities, to develop resources to support individuals with disabilities in their efforts to find accessible providers. Such resources include ``tips cards'' and questions to ask when calling a provider for the first time to make an appointment.
Finally, the bill authorizes HHS to create a National Advisory Committee on Access to Health Care for Individuals with Disabilities to ensure intra-agency coordination of efforts to improve access to care for individuals with disabilities.
The Debbie Blanchard Access to Health Care for Individuals with Disabilities Act would be a significant step in ensuring health care equity for the more than 50 million Americans who live with a disability. Debbie Blanchard's tragic passing should serve as a lesson on the barriers that exist for individuals with disabilities in accessing basic quality health care. We should take action to ensure that these barriers are eliminated to prevent Debbie's story from being repeated. I urge my colleagues to cosponsor this important legislation.