Mr. Speaker, I rise today in strong support of this important bill. I have met with constituents with afflictions such as Alzheimer's disease, Parkinson's disease, childhood leukemia, heart disease, Lou Gehrig's disease, diabetes, several…
Mr. Speaker, I rise today in strong support of this important bill.
I have met with constituents with afflictions such as Alzheimer's disease, Parkinson's disease, childhood leukemia, heart disease, Lou Gehrig's disease, diabetes, several cancers, spinal cord injuries, and other diseases, disorders and injuries. Embryonic stem cell research offers them hope.
I have also met with an amazing young woman named Brooke Ellison from Long Island. In 1990, when she was eleven years old, Brooke was hit by a car, which left her paralyzed from the neck down. Even with this hardship, she graduated from Harvard University in 2000, Harvard's Kennedy School of Government in 2004, and she is currently a Ph.D. candidate in political science at Stony Brook University. Her inspiring story was made into a movie on A&E and was directed by the late Christopher Reeves.
I have worked with her to raise public awareness of the importance of stem cell research, and under the Unanimous Consent agreement, I am including an essay that Brooke wrote on the issue in the Congressional Record.
As everyone here knows, on August 9, 2001, President Bush announced that embryonic stem cell research would be limited; he limited federal funds by limiting eligible lines for research.
Although scientists were expecting a big number of available lines, less than one third of the allowed 78 lines are available for distribution.
The Stem Cell Research Enhancement Act would expand research on embryonic stem cells by increasing the number of lines stem cells that would be eligible for federally funded research.
This bill should not be controversial. The bill ensures that strict ethical guidelines would be met: the embryos would have been donated with informed written consent and without any financial payment or other inducement to make the donation. These are embryos that will be discarded. Finally, the bill would not use any federal funds to derive the stem cells.
It is a good bill, but I wish this bill went further. There is still a need for other funding, because state or private funding would be needed to fund deriving the stem cells.
California and New Jersey have already set up funding sources for embryonic stem cell research, and a number of other states have announced intentions to fund this research. We must ensure that all entities can work together. Scientists still need funding for the aspects of research that the Federal government will not cover.
Today, I am introducing a resolution that expresses the sense of Congress that the Federal government should not infringe on states or private organizations that fund embryonic stem cell research. I hope that my colleagues will show support for all embryonic research, by supporting my resolution.
Many of us have family members suffering from devastating illnesses, and the prospect of helping them to be healthy and free of pain is a worthy goal. Make no mistake; this goal is what we are debating today.
Enticingly Close . . . Yet Painfully Far
(By Brooke Ellison)
The ability to view the world through another's eyes is the
essence of altruism. When putting their pens to the paper of
policy, those who legislate ought to take into keen
consideration the world as it is seen through others' eyes,
wrought with the problems they face and conditions they
endure. This is the basic tenet of a representative
democracy, the basic belief upon which the United States was
founded. Yet, despite this underlying and widely accepted
notion of several voices speaking on behalf of many, this
does not always appear to be the case and, in fact, those
making collective decisions can become inextricably linked to
their own, myopic ideology, failing to understand the
situations of others or hear their voices.
In September of 1990, when I was eleven years old, I was
hit by a car while walking home from my first day of 7th
grade. That accident left me paralyzed from my neck down and
dependent on a ventilator for every breath I take. Living as
a person with a physical disability or debilitating disease,
each day is a struggle. Tasks that, to others, might seem
mundane or be taken for granted are strenuous challenges,
sometimes taking long hours instead of mere minutes, causing
frustration both from what cannot be at present and potential
being lost in the future. When we place our hopes and visions
for our world into the hands of those making broad decisions,
we do it with the belief that they will act on behalf of our
best interest and not on an isolated viewpoint. To do
otherwise is bad policy. To undermine the interests of a
majority of citizens is bad policy. To ignore the voices and
dash the hopes of those most in need is bad policy. In the
context of stem cell research legislation, these are bad
policies, yet policies that are being upheld. This forces
millions to wonder things like, ``If I could be freed from
the confines of my physical condition, what a miracle it
would be.'' Or, ``If, for an entire day, I could once again
be completely whole and my body was somehow irrelevant, what
a renewed gift that would be.'' Or, maybe, ``If, for a single
moment, I could wrap my arms around those I love, what a
treasure that would be.'' And even, ``If, by some chance,
those making policy decisions might heed some of my recurrent
thoughts and change their stance on stem cell research, what
a potentially groundbreaking step it would be.'' The reality
is that, based on current federal legislation, these ``ifs''
likely won't change into ``thens''.
On August 9th, 2001, from his ranch in Crawford, Texas,
President Bush announced that he would significantly limit
federal funds to stem cell research, only agreeing to fund
research conducted on to stem cell lines already in existence
at the time. According to this limitation, federally
supported research could be done on no more than 78 existing
genetic cell lines, although even the most optimistic
estimates of viable cells were estimated to be far fewer,
less than two dozen. To the delight of some and the grief of
others, Mr. Bush indicated that the use of embryonic cells
for medical research was a violation of the sanctity of life,
analogous to abortion or euthanasia. In the President's own
words, ``I worry about a culture that devalues life, and
believe as your President I have an important obligation to
foster and encourage respect for life in America and
throughout the world. . . . Embryonic stem cell research
offers both great promise and great peril. So I have decided
we must proceed with great care''. Despite millions of
testimonies and pleas to the contrary since that day, over
three years ago, the opinion of the administration has
remained constant and has not eased any restrictions. Despite
strides being made in other countries around the world in the
field of stem cell research, the U.S. government has remained
resolute in its opposition to it.
Research that holds so much promise for so many now remains
unsupported by the federal government. Similar to other
issues facing our nation today, the decision of whether or
not to fund embryonic stem cell research is now left in the
hands of the States, with the Legislatures and Governors
picking up where the U.S. Congress and President have left
off. California, with its Proposition 71, has been the most
recent State to make substantive progress on the issue,
passing a referendum to support research conducted in the
state. California joins New Jersey in leading the charge for
state-funded stem cell research. But the cause should not and
must not stop there, as two States out of our fifty is simply
not enough. With researchers, scientists, and human lives
waiting in the wings for advances, opportunity wasted is
opportunity lost.
Therapeutic stem cell research, also known as somatic cell
nuclear transfer, has the potential to provide cures for a
considerable number of neurological and degenerative
conditions, including Alzheimer's disease, Parkinson's
disease, childhood leukemia, heart disease, ALS, several
different types of cancer, and spinal cord injuries. In its
most basic description, stem cells are the undifferentiated,
unspecialized cells that can be extracted from embryos in
their earliest stages of development, three to five days
after fertilization. The embryos, known in this initial
developmental form as blastocysts, contain only about 30
cells. Importantly, the cells taken from the blastocysts can
be placed in different conditions to become other types of
cells, such as heart muscle or nerve tissue, which can be
used to repair similar damaged tissue in children and
adults. The procedure has the potential to affect directly
the lives of nearly 100 million Americans who face
different conditions, equaling over one-third of the U.S.
population and more than the entire populations of New
York, California, Texas, and Florida, combined. As complex
as embryonic stem cell research is in its design, it is
equally so in its moral debate. Therapeutic stem cell
research can sometimes be confused with reproductive stem
cell procedures, such as genetic engineering, which have
sparked controversy in some political camps. The two types
of research differ considerably, though, both in terms of
procedure and intent, and represent two diverse ends on a
very long, complex spectrum--an understanding which often
goes ignored.
Well, some have argued, isn't using stem cells just the
destruction of one life for the sake of another? Aren't we
simply judging some lives as more important than others? To
hold such a belief is to view the world in black and white
terms, thereby ignoring the much more complex gray areas.
Yes, it is possible that, if a blastocyst, from where stems
cells are derived, were to be inserted into a womb and
allowed to grow for nine months there is the potential a life
could be born. However, that is not the case for any of the
blastocysts that yield stem cells that are used for research.
These blastocysts are those that will go unused after in
vitro fertilization procedures and will never be used to
bring about life. These blastocysts, which some proclaim
represent the sanctity of life, will only be kept in freezers
at fertility clinics until they have expired and then will be
discarded completely. Under current federal legislation, they
are of no use to anybody.
To rob the stem cells of their other potential of life,
which is to cure diseases or to help regenerate parts of the
body that are not regenerating on their own, is really to
devalue life in another, otherwise avoidable way.
Well, others have argued, isn't the work done on stem cells
just the same as cloning? Aren't these cells essentially
promoting the creation of another person? The once almost
incomprehensible, futuristic ideas of ``cloning'' and ``body-
doubles'' are now considered feasible and fearsome
possibilities, and therapeutic stem cell research has been
the unwitting victim of the prevalent fears. Orwell's 1984
has somehow come to life in 2004, with the speculations made
by some of about unintended, science-fiction consequences.
But, the connection between human reproduction and human
therapy is a foggy one at best. The real fear, though, is not
the potential of mad scientists reproducing people but the
lost potential of sound scientists curing people.
Fourteen years ago, I could have never imagined having to
advocate for something that could potentially restore for me
the very basic aspects of life and humanity. But, that is
something that no one should have to imagine. Science has
given medicine more promise than ever before, with the
potential
to heal and restore people in ways once unfathomable. Stem
cells, which would otherwise serve no other purpose, hold the
promise of life, not just for the newly born but now for the
already living and this opportunity must be seized. The time
is now. If the federal government chooses not to do it, then
the States must tend to it, themselves. The time has come
when we can change the lives of so many, giving to them the
fundamental parts of life and dignity.