S.Amdt. 3805

SA 3805. Mr. NELSON (for himself and Mr. Cassidy) submitted an
amendment intended to be proposed to amendment SA 3695 proposed by Mr.
Shelby to the bill H.R. 6157, making appropriations for the Department
of Defense for the fiscal year ending September 30, 2019, and for other
purposes; which was ordered to lie on the table; as follows:

At the appropriate place, insert the following:
Sec. __. (a) The Secretary of Health and Human Services
shall seek to enter into a contract with the National Academy
of Sciences under which the National Academy of Sciences
conducts a study on amyotrophic lateral sclerosis and, not
later than 1 year after the date of enactment of this Act,
submits a report on such study to Congress.
(b) The report under this section shall--
(1) address--
(A) the nationwide state of research on amyotrophic lateral
sclerosis, including the state of research and development of
assistive technologies and drug treatments for such disease;
(B) key gaps in research on amyotrophic lateral sclerosis;
(C) the nationwide state of medical and care services for
individuals with amyotrophic lateral sclerosis;
(D) key gaps in access to medical and care services for
individuals with amyotrophic lateral sclerosis; and
(E) the higher incidence of amyotrophic lateral sclerosis
in both active duty military and veterans causing them to be
more than twice as likely to be diagnosed with the disease;
and
(2) include recommendations to Congress for advancing
research as well as access to medical and care services with
respect to amyotrophic lateral sclerosis.
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