S.Amdt. 6609Senate117th Congress (2021-2023)2nd degree
S.Amdt. 6609
Sponsored by
Sen. Lisa Murkowski (R-AK)
Submitted December 21, 2022
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Senate amendment submitted
December 21, 2022
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Submitted
SA 6609. Ms. MURKOWSKI (for herself and Ms. Klobuchar) submitted an amendment intended to be proposed to amendment SA 6552 proposed by Mr. Leahy to the bill H.R. 2617, to amend section 1115 of title 31, United States Code, to amend the description of how performance goals are achieved, and for other purposes; which was ordered to lie on the table; as follows: At the end of division FF, add the following: TITLE VII--ADVANCING FETAL ALCOHOL SPECTRUM DISORDERS RESEARCH, SERVICES, AND PREVENTION SEC. 7101. SHORT TITLE. This Act may be cited as the ``Advancing FASD Research, Services and Prevention Act'' or the ``FASD Respect Act''. SEC. 7102. HHS PROGRAM ON FETAL ALCOHOL SPECTRUM DISORDERS. (a) In General.--Part O of title III of the Public Health Service Act (42 U.S.C. 280f et seq.) is amended-- (1) by amending the part heading to read as follows: ``fetal alcohol spectrum disorders prevention and services program''; (2) in section 399H (42 U.S.C. 280f)-- (A) in the section heading, by striking ``establishment of fetal alcohol syndrome prevention'' and inserting ``fetal alcohol spectrum disorders prevention, intervention,''; (B) by striking ``Fetal Alcohol Syndrome and Fetal Alcohol Effect'' each place it appears and inserting ``FASD''; (C) in subsection (a)-- (i) by amending the heading to read as follows: ``In General''; (ii) in the matter preceding paragraph (1)-- (I) by inserting ``or continue activities to support'' after ``shall establish''; (II) by striking ``FASD'' (as amended by subparagraph (B)) and inserting ``fetal alcohol spectrum disorders (referred to in this section as `FASD')''; (III) by striking ``prevention, intervention'' and inserting ``awareness, prevention, identification, intervention,''; and (IV) by striking ``that shall'' and inserting ``, which may''; (iii) in paragraph (1)-- (I) in subparagraph (A)-- (aa) by striking ``medical schools'' and inserting ``health professions schools''; and (bb) by inserting ``infants,'' after ``provision of services for''; and (II) in subparagraph (D), by striking ``medical and mental'' and inserting ``agencies providing''; (iv) in paragraph (2)-- (I) in the matter preceding subparagraph (A), by striking ``a prevention and diagnosis program to support clinical studies, demonstrations and other research as appropriate'' and inserting ``supporting and conducting research on fetal alcohol spectrum disorders, as appropriate, including''; and (II) in subparagraph (B), by striking ``prevention services and interventions for pregnant, alcohol-dependent women'' and inserting ``evidence-based services and interventions for preventing prenatal alcohol exposure, which may co-occur with exposure to other substances''; and (v) by amending paragraph (3) to read as follows: ``(3) building State and Tribal capacity for the identification, treatment, and support of individuals with FASD and their families, which may include by developing, implementing, and evaluating targeted intervention programs for FASD, increasing awareness of FASD, providing training for professionals across relevant sectors, and disseminating information about FASD and support services to affected individuals and their families.''; (D) in subsection (b)-- (i) by striking ``described in section 399I''; (ii) by striking ``The Secretary'' and inserting the following: ``(1) In general.--The Secretary''; and (iii) by adding at the end the following: ``(2) Eligible entities.--To be eligible to receive a grant, or enter into a cooperative agreement or contract under this section, an entity shall-- ``(A) be a State, Indian Tribe or Tribal organization, local government, scientific or academic institution, or nonprofit organization; and ``(B) prepare and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require, including a description of the activities that the entity intends to carry out using amounts received under this section.''; and (E) by striking subsections (c) and (d); and (3) by striking sections 399I, 399J, and 399K (42 U.S.C. 280f-1, 280f-2, 280f-3) and inserting the following: ``SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CENTERS FOR EXCELLENCE. ``(a) In General.--The Secretary shall, as appropriate, award grants, cooperative agreements, or contracts to public or nonprofit entities with demonstrated expertise in the prevention of, identification of, and intervention services with respect to, fetal alcohol spectrum disorders (referred to in this section as `FASD') and other related adverse conditions. Such awards shall be for the purposes of establishing Fetal Alcohol Spectrum Disorders Centers for Excellence to build local, Tribal, State, and national capacities to prevent the occurrence of FASD and other related adverse conditions, and to respond to the needs of individuals with FASD and their families by carrying out the programs described in subsection (b). ``(b) Programs.--An entity receiving an award under subsection (a) may use such award for the following purposes: ``(1) Initiating or expanding diagnostic capacity for FASD by increasing screening, assessment, identification, and diagnosis. ``(2) Developing and supporting public awareness and outreach activities, including the use of a range of media and public outreach, to raise public awareness of the risks associated with alcohol consumption during pregnancy, with the goals of reducing the prevalence of FASD and improving the developmental, health (including mental health), and educational outcomes of individuals with FASD and supporting families caring for individuals with FASD. ``(3) Acting as a clearinghouse for evidence-based resources on FASD prevention, identification, and culturally- aware best practices, including the maintenance of a national data-based directory on FASD-specific services in States, Indian Tribes, and local communities, and disseminating ongoing research and developing resources on FASD to help inform systems of care for individuals with FASD across their lifespan. ``(4) Increasing awareness and understanding of efficacious, evidence-based FASD screening tools and culturally- and linguistically-appropriate evidence-based intervention services and best practices, which may include by conducting national, regional, State, Tribal, or peer cross-State webinars, workshops, or conferences for training community leaders, medical and mental health and substance use disorder professionals, education and disability professionals, families, law enforcement personnel, judges, individuals working in financial assistance programs, social service personnel, child welfare professionals, and other service providers. ``(5) Improving capacity for State, Tribal, and local affiliates dedicated to FASD awareness, prevention, and identification and family and individual support programs and services. ``(6) Providing technical assistance to grantees under section 399H, as appropriate. ``(7) Carrying out other functions, as appropriate. ``(c) Application.--To be eligible for a grant, contract, or cooperative agreement under this section, an entity shall submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require. ``(d) Subcontracting.--A public or private nonprofit entity may carry out the following activities required under this section through contracts or cooperative agreements with other public and private nonprofit entities with demonstrated expertise in FASD: ``(1) Prevention activities. ``(2) Screening and identification. ``(3) Resource, development, dissemination, training and technical assistance, administration and support of FASD partner networks. ``(4) Intervention services. ``SEC. 399J. AUTHORIZATION OF APPROPRIATIONS. ``There are authorized to be appropriated to carry out this part such sums as may be necessary for each of fiscal years 2023 through 2027.''. (b) Report.--Not later than 4 years after the date of enactment of this Act, the Secretary of Health and Human Services shall submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives a report on the efforts of the Department of Health and Human Services to advance public awareness on, and facilitate the identification of best practices related to, fetal alcohol spectrum disorders identification, prevention, treatment, and support. ______