S. 1183Senate110th Congress (2007-2009)In Committee

Christopher and Dana Reeve Paralysis Act

Sponsored by Tom HarkinSen. Tom Harkin (D-IA)
Introduced April 23, 2007

Legislative Activity

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4 earlier actions
SenateCalendars Latest Action

Placed on Senate Legislative Calendar under General Orders. Calendar No. 326.

August 3, 2007

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SenateIntro Referral

Introduced in Senate

April 23, 2007

SenateIntro Referral

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

April 23, 2007

SenateCommittee

Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.

July 25, 2007

SenateCommittee

Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.

August 3, 2007

SenateCalendars

Placed on Senate Legislative Calendar under General Orders. Calendar No. 326.

August 3, 2007

Floor Debate

14 members

What members said about S. 1183 on the floor

9 Republicans5 Democrats
Tom Harkin
Sen. Tom HarkinD-IA · Sep 29, 2008

Mr. President, I ask unanimous consent that the order for the quorum call be rescinded. Mr. President, parliamentary inquiry: Is the Senate in morning business? Mr. President, I come to the Senate…

Tom Harkin
Sen. Tom HarkinD-IA · Dec 12, 2007

Mr. President, I wish to speak on two bills that should have passed by unanimous consent because they are so widely supported, but there are objections to them by some Republicans. The first is the…

Tom Coburn
Sen. Tom CoburnR-OK · Sep 29, 2008

Reserving the right to object, first let me say to my colleague, I know he is dedicated to this cause. It is an important cause. I have four basic problems with what we are doing here. We did…

Jeff Sessions
Sen. Jeff SessionsR-AL · Sep 29, 2008

Well, Madam President, we certainly need to confront the challenges we are facing now with this banking situation. I know Senator Domenici is so eloquent and speaks with such conviction on it and…

Arlen Specter
Sen. Arlen SpecterR-PA · Jul 31, 2008

Mr. President, I have sought recognition to discuss my vote on July 28 against cloture--to end debate--on the motion to proceed to S. 3297, the so-called Reid omnibus bill or ``Coburn package.'' As I…

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Barbara Boxer
Sen. Barbara BoxerD-CA · Aug 1, 2007

Mr. President, I ask unanimous consent that the Committee on Banking, Housing, and Urban Affairs be authorized to meet during the session of the Senate on August 1, 2007, at 9:30 a.m., to mark up S.…

Jim Webb
Sen. Jim WebbD-VA · Sep 29, 2008

Mr. President, I ask unanimous consent that the order for the quorum call be rescinded. Mr. President, I ask unanimous consent to speak as in morning business. Mr. President, I know this afternoon at…

Pete V. Domenici
Sen. Pete V. DomeniciR-NM · Sep 29, 2008

Are we in morning business? I ask unanimous consent to speak for 6 minutes as in morning business. Madam President, the House of Representatives today defeated the proposed financial rescue plan…

Patty Murray
Sen. Patty MurrayD-WA · Jul 26, 2007

Mr. President, I ask unanimous consent that the Committee on Commerce, Science, and Transportation be authorized to hold a hearing during the session of the Senate on Thursday, July 26, 2007, at 10…

Benjamin L. Cardin
Sen. Benjamin L. CardinD-MD · Jul 25, 2007

Mr. President, I ask unanimous consent that the Committee on Commerce, Science, and Transportation be authorized to hold a hearing during the session of the Senate on Wednesday, July 25, 2007, at…

John Warner
Sen. John WarnerR-VA · Sep 29, 2008

Mr. President, I am very deeply moved by this moment. As a matter of fact, now--this is just a month or so short of 30 years--I can't think of another opportunity or moment in the Senate when I have…

Thad Cochran
Sen. Thad CochranR-MS · Sep 29, 2008

Madam President, it is with mixed feelings of remorse and pleasure that I speak on the subject of the retirement from the Senate of my colleague and friend from New Mexico, Pete Domenici. He and his…

John Cornyn
Sen. John CornynR-TX · Dec 12, 2007

I would ask that 2 more minutes be added to our time; otherwise, I have no objection. Mr. President, may I ask how much time remains on this side of the aisle in morning business? I would ask, Mr.…

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Tom Coburn
Sen. Tom CoburnR-OK · Dec 12, 2007

Mr. President, I object to both, and I will give my reasons why during our time.

Larry E. Craig
Sen. Larry E. CraigR-ID · Sep 29, 2008

May I inquire of the Senator how much more floor time he will take?

John Barrasso
Sen. John BarrassoR-WY · Sep 29, 2008

Mr. President, I suggest the absence of a quorum.

Bill Text

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Reported to SenateIssued August 3, 2007

II

Calendar No. 326

110th CONGRESS

1st Session

S. 1183

IN THE SENATE OF THE UNITED STATES

April 23, 2007

Mr. Harkin (for himself, Mr. Cochran, Mr. Kennedy, Mr. Burr, Mrs. Clinton, Mr. Coleman, Mr. Bingaman, Mr. Smith, Mrs. Boxer, Mr. Durbin, Mr. Inouye, Mr. Leahy, Mr. Levin, Ms. Mikulski, Mr. Reed, Mr. Brown, Mr. Graham, Mr. Whitehouse, Mrs. Murray, Mr. Johnson, Mr. Schumer, Mr. Menendez, Mr. Lautenberg, Mr. Kerry, Mr. Specter, Mr. Casey, Mrs. Feinstein, Mr. Dodd, Mr. Sanders, and Mr. Obama) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions

August 3, 2007

Reported by Mr. Kennedy, with an amendment

Strike out all after the enacting clause and insert the part printed in italic

A BILL

To enhance and further research into paralysis and to improve rehabilitation and the quality of life for persons living with paralysis and other physical disabilities, and for other purposes.

1.

Short title

This Act may be cited as the Christopher and Dana Reeve Paralysis Act.

2.

Table of contents

Sec. 1. Short title.

Sec. 2. Table of contents.

Title I—Paralysis research

Sec. 101. Expansion and coordination of activities of the National Institutes of Health with respect to research on paralysis.

Title II—Paralysis rehabilitation research and care

Sec. 201. Expansion and coordination of activities of the National Institutes of Health with respect to research with implications for enhancing daily function for persons with paralysis.

Title III—Improving quality of life for persons with paralysis and other physical disabilities

Sec. 301. Programs to improve quality of life for persons with paralysis and other physical disabilities.

I

Paralysis research

101.

Expansion and coordination of activities of the National Institutes of Health with respect to research on paralysis

(a)

In general

(1)

Enhanced coordination of activities

The Director of the National Institutes of Health (in this section referred to as the Director) may expand and coordinate the activities of such Institutes with respect to research on paralysis. In order to further expand upon the activities of this section, the Director may consider the methods outlined in the report under section 2(b) of Public Law 108-427 with respect to spinal cord injury and paralysis research (relating to the Roadmap for Medical Research of the National Institutes of Health).

(2)

Administration of program; collaboration among agencies

The Director shall carry out this section acting through the Director of the National Institute of Neurological Disorders and Stroke (in this section referred to as the Institute) and in collaboration with any other agencies that the Director determines appropriate.

(b)

Coordination

(1)

In general

The Director may develop mechanisms to coordinate the paralysis research and rehabilitation activities of the agencies of the National Institutes of Health in order to further advance such activities and avoid duplication of activities.

(2)

Report

Not later than December 1, 2008, the Director shall prepare a report to Congress that provides a description of the paralysis activities of the Institute and strategies for future activities.

(c)

Christopher and Dana Reeve paralysis research consortia

(1)

In general

The Director may under subsection (a)(1) make awards of grants to public or nonprofit private entities to pay all or part of the cost of planning, establishing, improving, and providing basic operating support for consortia in paralysis research. The Director shall designate each consortium funded under grants as a Christopher and Dana Reeve Paralysis Research Consortium.

(2)

Research

Each consortium under paragraph (1)—

(A)

may conduct basic and clinical paralysis research;

(B)

may focus on advancing treatments and developing therapies in paralysis research;

(C)

may focus on one or more forms of paralysis that result from central nervous system trauma or stroke;

(D)

may facilitate and enhance the dissemination of clinical and scientific findings; and

(E)

may replicate the findings of consortia members for scientific and translational purposes.

(3)

Coordination of consortia; reports

The Director may, as appropriate, provide for the coordination of information among consortia under paragraph (1) and ensure regular communication between members of the consortia, and may require the periodic preparation of reports on the activities of the consortia and the submission of the reports to the Director.

(4)

Organization of consortia

Each consortium under paragraph (1) may use the facilities of a single lead institution, or be formed from several cooperating institutions, meeting such requirements as may be prescribed by the Director.

(d)

Public input

The Director may under subsection (a)(1) provide for a mechanism to educate and disseminate information on the existing and planned programs and research activities of the National Institutes of Health with respect to paralysis and through which the Director can receive comments from the public regarding such programs and activities.

(e)

Authorization of appropriations

For the purpose of carrying out this section, there are authorized to be appropriated such sums as may be necessary for the fiscal years 2008 through 2011. Amounts appropriated under this subsection are in addition to any other amounts appropriated for such purpose.

II

Paralysis rehabilitation research and care

201.

Expansion and coordination of activities of the National Institutes of Health with respect to research with implications for enhancing daily function for persons with paralysis

(a)

In general

(1)

Expansion of activities

The Director of the National Institutes of Health (in this section referred to as the Director) may expand and coordinate the activities of such Institutes with respect to research with implications for enhancing daily function for people with paralysis.

(2)

Administration of program; collaboration among agencies

The Director shall carry out this section acting through the Director of the National Institute of Child Health and Human Development and the National Center for Medical Rehabilitation Research and in collaboration with the National Institute of Neurological Disorders and Stroke, the Centers for Disease Control and Prevention, and any other agencies that the Director determines appropriate.

(b)

Paralysis clinical trials networks

(1)

In general

The Director may make awards of grants to public or nonprofit private entities to pay all or part of the costs of planning, establishing, improving, and providing basic operating support to multicenter networks of clinical sites that will collaborate to design clinical rehabilitation intervention protocols and measures of outcomes on one or more forms of paralysis that result from central nervous system trauma, disorders, or stroke, or any combination of such conditions.

(2)

Research

Each multicenter clinical trial network may—

(A)

focus on areas of key scientific concern, including—

(i)

improving functional mobility;

(ii)

promoting behavioral adaptation to functional losses, especially to prevent secondary complications;

(iii)

assessing the efficacy and outcomes of medical rehabilitation therapies and practices and assisting technologies;

(iv)

developing improved assistive technology to improve function and independence; and

(v)

understanding whole body system responses to physical impairments, disabilities, and societal and functional limitations; and

(B)

replicate the findings of network members for scientific and translation purposes.

(3)

Coordination of clinical trials networks; reports

The Director may, as appropriate, provide for the coordination of information among networks and ensure regular communication between members of the networks, and may require the periodic preparation of reports on the activities of the networks and submission of reports to the Director.

(c)

Report

Not later than December 1, 2008, the Director shall submit to the Congress a report that provides a description of research activities with implications for enhancing daily function for persons with paralysis.

(d)

Authorization of appropriations

For the purpose of carrying out this section, there are authorized to be appropriated such sums as may be necessary for the fiscal years 2008 through 2011. Amounts appropriated under this subsection are in addition to any other amounts appropriated for such purpose.

III

Improving quality of life for persons with paralysis and other physical disabilities

301.

Programs to improve quality of life for persons with paralysis and other physical disabilities

(a)

In general

The Secretary of Health and Human Services (in this title referred to as the Secretary), acting through the Director of the Centers for Disease Control and Prevention, may study the unique health challenges associated with paralysis and other physical disabilities and carry out projects and interventions to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities. The Secretary may carry out such projects directly and through awards of grants or contracts.

(b)

Certain activities

Activities under subsection (a) may include—

(1)

the development of a national paralysis and physical disability quality of life action plan, to promote health and wellness in order to enhance full participation, independent living, self-sufficiency and equality of opportunity in partnership with voluntary health agencies focused on paralysis and other physical disabilities, to be carried out in coordination with the State-based Comprehensive Paralysis and Other Physical Disability Quality of Life Program of the Centers for Disease Control and Prevention;

(2)

support for programs to disseminate information involving care and rehabilitation options and quality of life grant programs supportive of community based programs and support systems for persons with paralysis and other physical disabilities;

(3)

in collaboration with other centers and national voluntary health agencies, establish a hospital-based paralysis registry and conduct relevant population-based research; and

(4)

the development of comprehensive, unique and innovative programs, services, and demonstrations within existing State-based disability and health programs of the Centers for Disease Control and Prevention which are designed to support and advance quality of life programs for persons living with paralysis and other physical disabilities focusing on—

(A)

caregiver education;

(B)

physical activity;

(C)

education and awareness programs for health care providers;

(D)

prevention of secondary complications;

(E)

home and community-based interventions;

(F)

coordinating services and removing barriers that prevent full participation and integration into the community; and

(G)

recognizing the unique needs of underserved populations.

(c)

Grants

The Secretary may award grants in accordance with the following:

(1)

To State and local health and disability agencies for the purpose of—

(A)

establishing paralysis registries for the support of relevant population-based research;

(B)

developing comprehensive paralysis and other physical disability action plans and activities focused on the items listed in subsection (b)(4);

(C)

assisting State-based programs in establishing and implementing partnerships and collaborations that maximize the input and support of people with paralysis and other physical disabilities and their constituent organizations;

(D)

coordinating paralysis and physical disability activities with existing State-based disability and health programs;

(E)

providing education and training opportunities and programs for health professionals and allied caregivers; and

(F)

developing, testing, evaluating, and replicating effective intervention programs to maintain or improve health and quality of life.

(2)

To nonprofit private health and disability organizations for the purpose of—

(A)

disseminating information to the public;

(B)

improving access to services for persons living with paralysis and other physical disabilities and their caregivers;

(C)

testing model intervention programs to improve health and quality of life; and

(D)

coordinating existing services with State-based disability and health programs.

(d)

Coordination of activities

The Secretary shall ensure that activities under this section are coordinated as appropriate with other agencies of the Public Health Service.

(e)

Report to Congress

Not later than December 1, 2008, the Secretary shall submit to the Congress a report describing the results of the evaluation under subsection (a), and as applicable, the strategies developed under such subsection.

(f)

Authorization of appropriations

For the purpose of carrying out this section, there are authorized to be appropriated such sums as may be necessary for the fiscal years 2008 through 2011.

1.

Short title

This Act may be cited as the Christopher and Dana Reeve Paralysis Act.

2.

Table of contents

Sec. 1. Short title.

Sec. 2. Table of contents.

Title I—Paralysis research

Sec. 101. Expansion and coordination of activities of the National Institutes of Health with respect to research on paralysis.

Title II—Paralysis rehabilitation research and care

Sec. 201. Expansion and coordination of activities of the National Institutes of Health with respect to research with implications for enhancing daily function for persons with paralysis.

Title III—Improving quality of life for persons with paralysis and other physical disabilities

Sec. 301. Programs to improve quality of life for persons with paralysis and other physical disabilities.

I

Paralysis research

101.

Expansion and coordination of activities of the National Institutes of Health with respect to research on paralysis

(a)

Coordination

The Director of the National Institutes of Health (referred to in this Act as the Director), pursuant to the general authority of the Director, may develop mechanisms to coordinate the paralysis research and rehabilitation activities of the Institutes and Centers of the National Institutes of Health in order to further advance such activities and avoid duplication of activities.

(b)

Christopher and Dana Reeve paralysis research consortia

(1)

In general

The Director may under subsection (a) make awards of grants to public or private entities to pay all or part of the cost of planning, establishing, improving, and providing basic operating support for consortia in paralysis research. The Director shall designate each consortium funded under grants as a Christopher and Dana Reeve Paralysis Research Consortium.

(2)

Research

Each consortium under paragraph (1)—

(A)

may conduct basic, translational and clinical paralysis research;

(B)

may focus on advancing treatments and developing therapies in paralysis research;

(C)

may focus on one or more forms of paralysis that result from central nervous system trauma or stroke;

(D)

may facilitate and enhance the dissemination of clinical and scientific findings; and

(E)

may replicate the findings of consortia members or other researchers for scientific and translational purposes.

(3)

Coordination of consortia; reports

The Director may, as appropriate, provide for the coordination of information among consortia under paragraph (1) and ensure regular communication between members of the consortia, and may require the periodic preparation of reports on the activities of the consortia and the submission of the reports to the Director.

(4)

Organization of consortia

Each consortium under paragraph (1) may use the facilities of a single lead institution, or be formed from several cooperating institutions, meeting such requirements as may be prescribed by the Director.

(c)

Public input

The Director may provide for a mechanism to educate and disseminate information on the existing and planned programs and research activities of the National Institutes of Health with respect to paralysis and through which the Director can receive comments from the public regarding such programs and activities.

II

Paralysis rehabilitation research and care

201.

Expansion and coordination of activities of the National Institutes of Health with respect to research with implications for enhancing daily function for persons with paralysis

(a)

In general

The Director, pursuant to the general authority of the Director, may make awards of grants to public or private entities to pay all or part of the costs of planning, establishing, improving, and providing basic operating support to multicenter networks of clinical sites that will collaborate to design clinical rehabilitation intervention protocols and measures of outcomes on one or more forms of paralysis that result from central nervous system trauma, disorders, or stroke, or any combination of such conditions.

(b)

Research

Each multicenter clinical trial network may—

(1)

focus on areas of key scientific concern, including—

(A)

improving functional mobility;

(B)

promoting behavioral adaptation to functional losses, especially to prevent secondary complications;

(C)

assessing the efficacy and outcomes of medical rehabilitation therapies and practices and assisting technologies;

(D)

developing improved assistive technology to improve function and independence; and

(E)

understanding whole body system responses to physical impairments, disabilities, and societal and functional limitations; and

(2)

replicate the findings of network members for scientific and translation purposes.

(c)

Coordination of clinical trials networks; reports

The Director may, as appropriate, provide for the coordination of information among networks and ensure regular communication between members of the networks, and may require the periodic preparation of reports on the activities of the networks and submission of reports to the Director.

III

Improving quality of life for persons with paralysis and other physical disabilities

301.

Programs to improve quality of life for persons with paralysis and other physical disabilities

(a)

In general

The Secretary of Health and Human Services (in this title referred to as the Secretary) may study the unique health challenges associated with paralysis and other physical disabilities and carry out projects and interventions to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities. The Secretary may carry out such projects directly and through awards of grants or contracts.

(b)

Certain activities

Activities under subsection (a) may include—

(1)

the development of a national paralysis and physical disability quality of life action plan, to promote health and wellness in order to enhance full participation, independent living, self-sufficiency and equality of opportunity in partnership with voluntary health agencies focused on paralysis and other physical disabilities, to be carried out in coordination with the State-based Disability and Health Program of the Centers for Disease Control and Prevention;

(2)

support for programs to disseminate information involving care and rehabilitation options and quality of life grant programs supportive of community based programs and support systems for persons with paralysis and other physical disabilities;

(3)

in collaboration with other centers and national voluntary health agencies, establish a population-based database that may be used for longitudinal and other research on paralysis and other disabling conditions; and

(4)

the replication and translation of best practices and the sharing of information across States, as well as the development of comprehensive, unique and innovative programs, services, and demonstrations within existing State-based disability and health programs of the Centers for Disease Control and Prevention which are designed to support and advance quality of life programs for persons living with paralysis and other physical disabilities focusing on—

(A)

caregiver education;

(B)

promoting proper nutrition, increasing physical activity, and reducing tobacco use;

(C)

education and awareness programs for health care providers;

(D)

prevention of secondary complications;

(E)

home and community-based interventions;

(F)

coordinating services and removing barriers that prevent full participation and integration into the community; and

(G)

recognizing the unique needs of underserved populations.

(c)

Grants

The Secretary may award grants in accordance with the following:

(1)

To State and local health and disability agencies for the purpose of—

(A)

establishing a population-based database that may be used for longitudinal and other research on paralysis and other disabling conditions;

(B)

developing comprehensive paralysis and other physical disability action plans and activities focused on the items listed in subsection (b)(4);

(C)

assisting State-based programs in establishing and implementing partnerships and collaborations that maximize the input and support of people with paralysis and other physical disabilities and their constituent organizations;

(D)

coordinating paralysis and physical disability activities with existing State-based disability and health programs;

(E)

providing education and training opportunities and programs for health professionals and allied caregivers; and

(F)

developing, testing, evaluating, and replicating effective intervention programs to maintain or improve health and quality of life.

(2)

To private health and disability organizations for the purpose of—

(A)

disseminating information to the public;

(B)

improving access to services for persons living with paralysis and other physical disabilities and their caregivers;

(C)

testing model intervention programs to improve health and quality of life; and

(D)

coordinating existing services with State-based disability and health programs.

(d)

Coordination of activities

The Secretary shall ensure that activities under this section are coordinated as appropriate with other agencies of the Department of Health and Human Services.

(e)

Authorization of appropriations

For the purpose of carrying out this section, there are authorized to be appropriated $25,000,000 for each of fiscal years 2008 through 2011.

August 3, 2007

Reported with an amendment