H.R. 1362House111th Congress (2009-2011)Passed House

National Neurological Diseases Surveillance System Act of 2010

Introduced March 5, 2009

Legislative Activity

Stay on top of the latest movement without scrolling through every action

18 earlier actions
SenateIntro Referral Latest Action

Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

September 29, 2010

View full timeline
HouseIntro Referral

Introduced in House

March 5, 2009

HouseIntro Referral

Sponsor introductory remarks on measure. (CR E565)

March 5, 2009

HouseIntro Referral

Referred to the House Committee on Energy and Commerce.

March 5, 2009

HouseCommittee

Referred to the Subcommittee on Health.

March 6, 2009

HouseCommittee

Subcommittee Hearings Held.

September 15, 2010

HouseCommittee

Subcommittee Consideration and Mark-up Session Held.

September 16, 2010

HouseCommittee

Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .

September 16, 2010

HouseCommittee

Committee Consideration and Mark-up Session Held.

September 16, 2010

HouseCommittee

Committee Consideration and Mark-up Session Held.

September 23, 2010

HouseCommittee

Ordered to be Reported (Amended) by Voice Vote.

September 23, 2010

HouseCommittee

Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-636.

September 28, 2010

HouseCalendars

Placed on the Union Calendar, Calendar No. 376.

September 28, 2010

HouseFloor

Mr. Pallone moved to suspend the rules and pass the bill, as amended.

September 28, 2010 • 10:01 PM

HouseFloor

Considered under suspension of the rules. (consideration: CR H7185-7186)

September 28, 2010 • 10:01 PM

HouseFloor

DEBATE - The House proceeded with forty minutes of debate on H.R. 1362.

September 28, 2010 • 10:01 PM

HouseFloor

Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H7185-7186)

September 28, 2010 • 10:05 PM

HouseFloor

On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H7185-7186)

September 28, 2010 • 10:05 PM

HouseFloor

Motion to reconsider laid on the table Agreed to without objection.

September 28, 2010 • 10:05 PM

SenateIntro Referral

Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

September 29, 2010

Floor Debate

8 members

What members said about H.R. 1362 on the floor

3 Republicans5 Democrats
Virginia Foxx
Rep. Virginia FoxxR-NC-5 · Apr 28, 2010

I thank my colleague from New York for yielding time. Mr. Speaker, I am very concerned that the underlying bill we have before us today is being brought forward under a structured rule, adding to the…

Louise McIntosh Slaughter
Rep. Louise McIntosh SlaughterD-NY-28 · Apr 28, 2010

Mr. Speaker, by direction of the Committee on Rules, I call up House Resolution 1300 and ask for its immediate consideration. Mr. Speaker, for the purpose of debate only, I yield the customary 30…

Barbara Lee
Rep. Barbara LeeD-CA-9 · Apr 21, 2010

Madam Speaker, let me thank, first of all, my colleague, the gentlelady from California (Mrs. Capps), for yielding me the time. Also, let me just thank you for using your invaluable background as a…

Michael C. Burgess
Rep. Michael C. BurgessR-TX-26 · Apr 21, 2010

Madam Speaker, I yield myself such time as I may consume, and I thank the gentlelady from California (Mrs. Capps) for her recognition. As cochairman of the Congressional MS Caucus, I rise today in…

Michael C. Burgess
Rep. Michael C. BurgessR-TX-26 · Sep 28, 2010

I yield myself such time as I may consume. Mr. Speaker, I rise tonight in strong support of H.R. 1362, which I authored with Mr. Van Hollen. There are over 400,000 Americans living with MS and…

Show 4 more
Lois Capps
Rep. Lois CappsD-CA-23 · Apr 21, 2010

Madam Speaker, I move to suspend the rules and agree to the resolution (H. Res. 1116) supporting the goals and ideals of Multiple Sclerosis Awareness Week. Madam Speaker, I ask unanimous consent that…

Glenn Thompson
Rep. Glenn ThompsonR-PA-5 · Jan 20, 2010

Mr. Speaker, I rise today in support of the March for Life, which will take place this Friday, January 22nd. It marks the 37th anniversary of the Supreme Court decision in Roe v. Wade. I will head to…

Russ Carnahan
Rep. Russ CarnahanD-MO-3 · Apr 21, 2010

Madam Speaker, I want to thank the gentlelady from California for her leadership and work on this important legislation, supporting the MS Awareness Week. Every week, around 200 people are diagnosed…

Frank Pallone, Jr.
Rep. Frank Pallone, Jr.D-NJ-6 · Sep 28, 2010

Mr. Speaker, I move to suspend the rules and pass the bill (H.R. 1362) to amend the Public Health Service Act to provide for the establishment of permanent national surveillance systems for multiple…

Bill Text

4 versions available

Reading Mode
Latest
Referred in SenateIssued September 29, 2010

IIB

111th CONGRESS

2d Session

H. R. 1362

IN THE SENATE OF THE UNITED STATES

September 29, 2010

Received; read twice and referred to the Committee on Health, Education, Labor, and Pensions

AN ACT

To amend the Public Health Service Act to provide for the establishment of permanent national surveillance systems for multiple sclerosis, Parkinson’s disease, and other neurological diseases and disorders.

1.

Short title

This Act may be cited as the National Neurological Diseases Surveillance System Act of 2010.

2.

National neurological diseases surveillance system

Part P of title III of the Public Health Service Act (42 U.S.C. 280g et seq.) is amended by adding at the end the following:

399V–5

Surveillance of neurological diseases

(a)

In general

The Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall—

(1)

enhance and expand infrastructure and activities to track the epidemiology of neurological diseases, including multiple sclerosis and Parkinson’s disease; and

(2)

incorporate information obtained through such activities into a statistically-sound, scientifically-credible, integrated surveillance system, to be known as the National Neurological Diseases Surveillance System.

(b)

Research

The Secretary shall ensure that the National Neurological Diseases Surveillance System is designed in a manner that facilitates further research on neurological diseases.

(c)

Content

In carrying out subsection (a), the Secretary—

(1)

shall provide for the collection and storage of information on the incidence and prevalence of neurological diseases in the United States;

(2)

to the extent practicable, shall provide for the collection and storage of other available information on neurological diseases, such as information concerning—

(A)

demographics and other information associated or possibly associated with neurological diseases, such as age, race, ethnicity, sex, geographic location, and family history;

(B)

risk factors associated or possibly associated with neurological diseases, including genetic and environmental risk factors; and

(C)

diagnosis and progression markers;

(3)

may provide for the collection and storage of information relevant to analysis on neurological diseases, such as information concerning—

(A)

the epidemiology of the diseases;

(B)

the natural history of the diseases;

(C)

the prevention of the diseases;

(D)

the detection, management, and treatment approaches for the diseases; and

(E)

the development of outcomes measures; and

(4)

may address issues identified during the consultation process under subsection (d).

(d)

Consultation

In carrying out this section, the Secretary shall consult with individuals with appropriate expertise, including—

(1)

epidemiologists with experience in disease surveillance or registries;

(2)

representatives of national voluntary health associations that—

(A)

focus on neurological diseases, including multiple sclerosis and Parkinson’s disease; and

(B)

have demonstrated experience in research, care, or patient services;

(3)

health information technology experts or other information management specialists;

(4)

clinicians with expertise in neurological diseases; and

(5)

research scientists with experience conducting translational research or utilizing surveillance systems for scientific research purposes.

(e)

Grants

The Secretary may award grants to, or enter into contracts or cooperative agreements with, public or private nonprofit entities to carry out activities under this section.

(f)

Coordination with other Federal agencies

Subject to subsection (h), the Secretary shall make information and analysis in the National Neurological Diseases Surveillance System available, as appropriate, to Federal departments and agencies, such as the National Institutes of Health, the Food and Drug Administration, the Centers for Medicare & Medicaid Services, the Agency for Healthcare Research and Quality, the Department of Veterans Affairs, and the Department of Defense.

(g)

Public access

Subject to subsection (h), the Secretary shall make information and analysis in the National Neurological Diseases Surveillance System available, as appropriate, to the public, including researchers.

(h)

Privacy

The Secretary shall ensure that privacy and security protections applicable to the National Neurological Diseases Surveillance System are at least as stringent as the privacy and security protections under HIPAA privacy and security law (as defined in section 3009(a)(2)).

(i)

Report

Not later than 4 years after the date of the enactment of this section, the Secretary shall submit a report to the Congress concerning the implementation of this section. Such report shall include information on—

(1)

the development and maintenance of the National Neurological Diseases Surveillance System;

(2)

the type of information collected and stored in the System;

(3)

the use and availability of such information, including guidelines for such use; and

(4)

the use and coordination of databases that collect or maintain information on neurological diseases.

(j)

Definition

In this section, the term national voluntary health association means a national nonprofit organization with chapters, other affiliated organizations, or networks in States throughout the United States.

(k)

Authorization of appropriations

To carry out this section, there is authorized to be appropriated $5,000,000 for each of fiscal years 2012 through 2016.

.

Passed the House of Representatives September 28, 2010.

Lorraine C. Miller,

Clerk.