S. 3396Senate112th Congress (2011-2013)In Committee

Congenital Diaphragmatic Hernia Research Act of 2012

Introduced July 18, 2012

Legislative Activity

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2 earlier actions
SenateIntro Referral Latest Action

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

July 18, 2012

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SenateIntro Referral

Introduced in Senate

July 18, 2012

SenateIntro Referral

Sponsor introductory remarks on measure. (CR S5135-5136)

July 18, 2012

SenateIntro Referral

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

July 18, 2012

Floor Debate

22 members

What members said about S. 3396 on the floor

13 Republicans8 Democrats1 Independent
Mitch McConnell
Sen. Mitch McConnellR-KY · Jul 18, 2012

Madam President, I indicated to the majority leader before the Senate convened today that I wanted to have a discussion, the two of us, on several items. No. 1, I understand my friend the majority…

Richard J. Durbin
Sen. Richard J. DurbinD-IL · Jul 18, 2012

Madam President, I ask unanimous consent to speak as in morning business. Madam President, there is an old adage that sunlight is the best disinfectant. The reason it is an old adage is it is true.…

James M. Inhofe
Sen. James M. InhofeR-OK · Jul 18, 2012

Mr. President, I thank the Senator from Alabama. A lot has been said, and those of us who serve on the Armed Services Committee have been watching what is going on with a lot of distress. I think it…

Harry Reid
Sen. Harry ReidD-NV · Jul 18, 2012

Madam President, I move to proceed to Calendar No. 442. Madam President, I suggest the absence of a quorum. Madam President, I ask unanimous consent that the order for the quorum call be rescinded.…

Lamar Alexander
Sen. Lamar AlexanderR-TN · Jul 18, 2012

Mr. President, I ask unanimous consent that the order for the quorum call be rescinded. I ask unanimous consent to speak for up to 15 minutes as in morning business. Mr. President, would the Chair…

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Daniel Coats
Sen. Daniel CoatsR-IN · Jul 18, 2012

Mr. President, I ask unanimous consent that the order for the quorum call be rescinded. Mr. President, I come to the floor today to comment on a couple of things. One is the dialog that took place…

Roger F. Wicker
Sen. Roger F. WickerR-MS · Jul 18, 2012

I thank my friend. Absolutely. I thank my friend for leading us in this colloquy. We ought to be talking about jobs and the economy. We ought to be bringing legislation to the floor and giving our…

Bernard Sanders
Sen. Bernard SandersI-VT · Jul 18, 2012

I thank the Senator from Illinois. Madam President, I appreciate the remarks of the Senator from Illinois, and I wanted to amplify on them a little bit. But before I do, I wanted to mention something…

Roy Blunt
Sen. Roy BluntR-MO · Jul 18, 2012

Madam President, I ask unanimous consent to enter into a colloquy with some of my colleagues on the minority side for 30 minutes. I will yield to Mr. Wicker who I believe has a unanimous consent…

Christopher A. Coons
Sen. Christopher A. CoonsD-DE · Jul 18, 2012

Madam President, I appreciate the opportunity to speak today. I am following the Senator from the State of Colorado. My topic is also about manufacturing jobs in the United States. I thank the…

Debbie Stabenow
Sen. Debbie StabenowD-MI · Jul 18, 2012

Mr. President, I first want to thank my friend and colleague from Connecticut for his commitment and compassion and passion on this issue. I appreciate very much his joining with me and others to…

Jeff Sessions
Sen. Jeff SessionsR-AL · Jul 18, 2012

Mr. President, I ask unanimous consent that the order for the quorum call be rescind. I thank the Chair, I yield the floor, and I suggest the absence of a quorum. Would the Senator yield for a…

John McCain
Sen. John McCainR-AZ · Jul 18, 2012

Madam President, I ask unanimous consent that the order for the quorum call be rescinded. Madam President, rarely do I come to the floor of this body to discuss particular individuals. But I…

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Sherrod Brown
Sen. Sherrod BrownD-OH · Jul 18, 2012

Madam President, I ask unanimous consent that the order for the quorum call be rescinded. Madam President, I ask unanimous consent to speak for up to 10 minutes as in morning business. Madam…

John Barrasso
Sen. John BarrassoR-WY · Jul 18, 2012

Mr. President, I ask unanimous consent to speak as in morning business. Mr. President, I come to the floor, as I do each week, as a physician who practiced medicine in Wyoming for a quarter of a…

Barbara Boxer
Sen. Barbara BoxerD-CA · Jul 18, 2012

Mr. President, I am here to speak in favor of the Bring Jobs Home Act. I wish to thank my colleague Senator Stabenow of Michigan, who understands this issue because in her State of Michigan they…

John Thune
Sen. John ThuneR-SD · Jul 18, 2012

Mr. President, I would say to my colleagues who are here on the floor that this is a defining moment for our country. The most basic responsibility and the most important priority we have as…

Carl Levin
Sen. Carl LevinD-MI · Jul 18, 2012

Madam President, I thank the Senator from Illinois for his leadership in dealing with the offshore tax haven problem. This is not a new issue. It is not a new issue for me. In fact, my Permanent…

Kelly Ayotte
Sen. Kelly AyotteR-NH · Jul 18, 2012

Mr. President, I wish to thank Senator Sessions. I appreciate his leadership as the ranking member on the Budget Committee and also as a senior member of the Armed Services Committee. This is so…

Jeff Sessions
Sen. Jeff SessionsR-AL · Jul 18, 2012

Mr. President, I rise today to introduce legislation, along with my friend and able colleague, Senator Ben Cardin of Maryland, that would create a national campaign at the Department of Health and…

Jeff Sessions
Sen. Jeff SessionsR-AL · Jul 18, 2012

Mr. President, I rise today to introduce legislation, along with my friend and able colleague, Senator Ben Cardin of Maryland, that would create a national campaign at the Department of Health and…

Jerry Moran
Sen. Jerry MoranR-KS · Jul 18, 2012

Mr. President, I ask unanimous consent to address the Senate as in morning business. Mr. President, Kansas has a long and remarkable history of supporting our Nation's aviation industry both…

Michael F. Bennet
Sen. Michael F. BennetD-CO · Jul 18, 2012

Mr. President, I have come to the floor to talk about Colorado. This summer, most people have been thinking about the wildfires we have had up there. These fires were widespread throughout the State,…

Orrin G. Hatch
Sen. Orrin G. HatchR-UT · Jul 18, 2012

Mr. President, today I introduce the Preserving Work Requirements Act of 2012. Chairman Camp of the House Committee on Ways and Means will introduce a companion measure in the House. This bill halts…

Bill Text

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Introduced in SenateIssued July 18, 2012

II

112th CONGRESS

2d Session

S. 3396

IN THE SENATE OF THE UNITED STATES

July 18, 2012

Mr. Sessions (for himself and Mr. Cardin) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions

A BILL

To amend the Public Health Service Act to provide for a national campaign to increase public awareness and knowledge of Congenital Diaphragmatic Hernia, and for other purposes.

1.

Short title

This Act may be cited as the Congenital Diaphragmatic Hernia Research Act of 2012.

2.

Findings

Congress finds as follows:

(1)

Congenital Diaphragmatic Hernia is a birth defect.

(2)

Congenital Diaphragmatic Hernia has a rate of occurrence of 1 in every 2500 babies.

(3)

Congenital Diaphragmatic Hernia affects approximately 1600 babies each year in the United States.

(4)

Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth.

(5)

The majority of Congenital Diaphragmatic Hernia patients have underdeveloped lungs or poor pulmonary function.

(6)

Congenital Diaphragmatic Hernia patients often endure long-term complications such as pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflex, feeding disorders, and developmental delays.

(7)

Congenital Diaphragmatic Hernia survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition, and hypoxic brain injury.

(8)

Congenital Diaphragmatic Hernia has a survival rate of 50 percent.

(9)

Congenital Diaphragmatic Hernia has affected more than 600,000 babies worldwide since 2000.

(10)

Babies born with Congenital Diaphragmatic Hernia endure extended hospital stays in intensive care with multiple surgeries. Extended hospital stays in some cases have exceeded 1 year.

(11)

Congenital Diaphragmatic Hernia is as common as Spina Bifida and Cystic Fibrosis.

(12)

Congenital Diaphragmatic Hernia is diagnosed in utero in only 75 percent of cases.

(13)

Congenital Diaphragmatic Hernia is treated through mechanical ventilation, heart and lung bypass (Extracorporeal Membrane Oxygenation) machines and surgical repair.

(14)

Congenital Diaphragmatic Hernia surgical repair is often outgrown thus leading to reherniation and requiring additional surgery.

(15)

Congenital Diaphragmatic Hernia does not discriminate based on race, gender, or socioeconomic status.

(16)

The cause of Congenital Diaphragmatic Hernia is unknown.

(17)

The average hospital bill per Congenital Diaphragmatic Hernia patient is $500,000.

(18)

The estimated total annual economic impact of Congenital Diaphragmatic Hernia in the United States is in excess of $800,000,000.

(19)

Annual Federal support for Congenital Diaphragmatic Hernia research at the National Institutes of Health is currently estimated at less than $4,000,000.

3.

National CDH Public Awareness Campaign

Part P of title III of the Public Health Service Act (42 U.S.C. 280g et seq.) is amended by adding at the end the following:

399V–6.

National CDH Public Awareness Campaign

(a)

In general

The Secretary shall carry out a national campaign to increase public awareness and knowledge of Congenital Diaphragmatic Hernia.

(b)

Components of campaign

The measures to increase the public awareness and knowledge of Congenital Diaphragmatic Hernia under the national campaign under subsection (a) shall include—

(1)

the dissemination of information on the definition of Congenital Diaphragmatic Hernia;

(2)

the dissemination of information on good neonatal care of Congenital Diaphragmatic Hernia patients;

(3)

the outreach to minority populations regarding Congenital Diaphragmatic Hernia; and

(4)

the promotion of good prenatal care and ultrasound to detect Congenital Diaphragmatic Hernia in utero.

(c)

Evaluation

The Director of the National Institutes of Health shall conduct an evaluation of the amount of Federal assistance provided for Congenital Diaphragmatic Hernia research at the National Institute for Health to determine whether funding levels are adequate.

(d)

Sense of the Senate

It is the Sense of the Senate that the Director of the National Institutes of Health should consider allocating funds and other resources for Congenital Diaphragmatic Hernia research.

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