H.R. 1173House113th Congress (2013-2015)In Committee

Personalize Your Care Act of 2013

Introduced March 14, 2013

Legislative Activity

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4 earlier actions
HouseCommittee Latest Action

Referred to the Subcommittee on Health.

April 11, 2013

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HouseIntro Referral

Introduced in House

March 14, 2013

HouseIntro Referral

Sponsor introductory remarks on measure. (CR E300)

March 14, 2013

HouseIntro Referral

Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

March 14, 2013

HouseCommittee

Referred to the Subcommittee on Health.

March 15, 2013

HouseCommittee

Referred to the Subcommittee on Health.

April 11, 2013

Floor Debate

17 members

What members said about H.R. 1173 on the floor

9 Republicans8 Democrats
Jim McDermott
Rep. Jim McDermottD-WA-7 · Mar 5, 2014

Madam Speaker, I yield myself such time as I may consume. Madam Speaker, today is a little like ``Groundhog Day.'' The Republican leadership has come out here and tried to decide what the weather is…

Lynn Jenkins
Rep. Lynn JenkinsR-KS-2 · Mar 5, 2014

Mr. Speaker, pursuant to House Resolution 497, I call up the bill (H.R. 4118) to amend the Internal Revenue Code of 1986 to delay the implementation of the penalty for failure to comply with the…

Sheila Jackson Lee
Rep. Sheila Jackson LeeD-TX-18 · Mar 5, 2014

Mr. Speaker, I rise in opposition once again to an attempt by the majority to defeat the Affordable Care Act. This begins the third year that the majority has attempted to put an end to affordable,…

Steven Horsford
Rep. Steven HorsfordD-NV-4 · Mar 5, 2014

Mr. Speaker, I have a motion to recommit at the desk. I am in its current form. Mr. Speaker, this is the final amendment to the bill, which will not kill the bill or send it back to committee. If…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Jul 9, 2013

Mr. Speaker, I would ask my colleagues a very simple question: Can this Congress approve legislation that is supported by over 85 percent of the American public that is truly bipartisan legislation,…

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Eric Cantor
Rep. Eric CantorR-VA-7 · Mar 5, 2014

Mr. Speaker, I want to thank the gentlelady and congratulate her on her leadership for this bill and making sure that we reinsert a notion of fairness back into the law for the people of this…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Mar 5, 2014

Madam Speaker, it is a pleasure for me to follow my good friend, Dr. Phil Roe, on the floor because we spent last weekend-- speaking of health care--along with Mr. McDermott--in Houston, Texas, at a…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Mar 12, 2014

Recently, the Reverend Billy Graham, in his latest book, talked about the situation that families face in the difficult circumstances surrounding end of life. Reverend Graham said: Refusing to act on…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Sep 17, 2014

Mr. Speaker, for the last 6 years, I have been spending a significant amount of time making sure that the Federal Government is a better partner in helping families as they deal with some of the most…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Mar 26, 2014

Madam Speaker, we have a health care crisis in this country, but one few have heard about because we don't think about it until it hits us or our family, but it almost always does. As we approach the…

Bill Posey
Rep. Bill PoseyR-FL-8 · Mar 5, 2014

Mr. Speaker, when the health care law was passed on a party line vote people were assured they could keep their current doctors and insurance plans, it would cost them less, it was not a tax, and…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Jul 22, 2013

Mr. Speaker, I arrived at my office this morning to a Politico with the front page headline ``Blumenauer's Death Panel Bill Lives on.'' It's actually a terrific article by Joanne Kenen, but the…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Apr 17, 2013

Mr. Speaker, Monday in the blink of an eye, hundreds of people at the Boston Marathon were faced with an awful decision. None of them woke up that morning expecting they, or a loved one, was going to…

Show 11 more
Charles B. Rangel
Rep. Charles B. RangelD-NY-13 · Mar 5, 2014

Madam Speaker, my colleagues, there is a cancer growing in the Republican Party in the House of Representatives, and as much of a Democrat as I am, I hate to see this happen because our government is…

Earl Blumenauer
Rep. Earl BlumenauerD-OR-3 · Oct 29, 2013

Mr. Speaker, I started my day with my friend and colleague Dr. Phil Roe, a Republican Congressman from Tennessee. We met with representatives from the American Academy of Hospice and Palliative…

Steve Scalise
Rep. Steve ScaliseR-LA-1 · Mar 5, 2014

Mr. Speaker, I thank the gentlelady from Kansas for yielding and for her leadership on this bill that I am proud to cosponsor. The SIMPLE Fairness Act is about just that, providing fairness for…

Sander M. Levin
Rep. Sander M. LevinD-MI-9 · Mar 5, 2014

Madam Speaker, I yield myself such time as I shall consume. (Mr. LEVIN asked and was given permission to revise and extend his remarks.) Well, here they go again. But this time, it is the 50th time…

Kevin Brady
Rep. Kevin BradyR-TX-8 · Mar 5, 2014

Madam Speaker, I rise today in support of the SIMPLE Fairness Act and thank the leadership of the gentlelady from Kansas in this area. Back home, my people are frightened about the Affordable Care…

Henry A. Waxman
Rep. Henry A. WaxmanD-CA-33 · Mar 5, 2014

Madam Speaker, I thank the gentleman for yielding to me. The truth of the matter is no matter how many votes the Republicans cast to repeal the Affordable Care Act and no matter how many distortions…

Dave Camp
Rep. Dave CampR-MI-4 · Mar 5, 2014

Mr. Speaker, I thank the gentlewoman from Kansas for yielding. I rise today in support of H.R. 4118, the SIMPLE Fairness Act, which would give Americans some much-needed relief from the added costs…

Todd Young
Rep. Todd YoungR-IN-9 · Mar 5, 2014

Madam Speaker, as we approach the deadline for enrolling in ObamaCare-sanctioned insurance, it has become clear the system is not working as its supporters intended. For months, we have been learning…

Peter A. DeFazio
Rep. Peter A. DeFazioD-OR-4 · Mar 5, 2014

Mr. Speaker, I have always said that Congress would need to pass fixes to improve the Affordable Care Act. The original version of the bill that passed the House in 2009, and included my provision to…

David P. Roe
Rep. David P. RoeR-TN-1 · Mar 5, 2014

Madam Speaker, I thank the gentlelady for yielding to me. I rise in support of the SIMPLE Fairness Act and a level playing field for all Americans. In the span of about 7 months, the Obama…

James B. Renacci
Rep. James B. RenacciR-OH-16 · Mar 5, 2014

Mr. Speaker, I rise today in strong support of H.R. 4118, the SIMPLE Fairness Act. According to a recent Gallup poll, 51 percent of Americans disapprove of the President's health care law, and for…

Bill Text

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Introduced in HouseIssued March 14, 2013

I

113th CONGRESS

1st Session

H. R. 1173

IN THE HOUSE OF REPRESENTATIVES

March 14, 2013

Mr. Blumenauer (for himself, Mr. Hanna, Mr. Roe of Tennessee, Mr. Reed, Ms. Schwartz, Mr. Kind, Mr. George Miller of California, Mr. McDermott, Mr. Bera of California, Ms. Schakowsky, and Mrs. Capps) introduced the following bill; which was referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned

A BILL

To amend the Social Security Act to provide for coverage of voluntary advance care planning consultation under Medicare and Medicaid, and for other purposes.

1.

Short title; findings; table of contents

(a)

Short title

This Act may be cited as the Personalize Your Care Act of 2013.

(b)

Findings

Congress finds the following:

(1)

All individuals should be afforded the opportunity to fully participate in decisions related to their health care or the care of a person for whom they are the proxy or surrogate.

(2)

Every individual's values and goals should be identified, understood, and respected. Particular attention should be paid to populations which have not regularly had the opportunity to express their choices or preferences.

(3)

Advance care planning plays a valuable role in achieving quality care by informing physicians and family members of an individual’s treatment preferences should he or she become unable to direct care.

(4)

Early advance care planning is ideal because a person’s ability to make decisions may diminish over time and the person may suddenly lose the capability to participate in their health care decisions.

(5)

Advance directives (such as living wills and durable powers of attorney for health care) must be prepared while individuals have the capacity to complete them and only apply to future medical circumstances when decisionmaking capacity is lost. An individual can change or revoke an advance directive at any time.

(6)

Physician orders for life-sustaining treatment complement advance directives by providing a process to focus patients’ values, goals, and preferences on current medical circumstances and to translate them into visible and portable medical orders applicable across care settings. A patient (or proxy or surrogate) can change or revoke a physician order for life-sustaining treatment at any time.

(7)

Advance care planning should be routinely conducted in community and clinical practices. Care plans should be periodically revisited to reflect a person’s changes in values and perceptions at different stages and circumstances of life. This shared decisionmaking and collaborative planning between the patient (or proxy or surrogate) and the clinician of their choice will lead to more person-centered, culturally appropriate care.

(8)

Effective, respectful, and culturally competent advance care planning requires recognition that both overtreatment and undertreatment may be concerns of individuals contemplating future care.

(9)

More should be done within local health systems to establish specific policies and programs to assist people with sensory, mental, and other disabilities in order to maximize the degree to which they are active participants in the decisions related to their health care, including training health care providers to be aware of augmentative communication devices and how to communicate with people with developmental, psychiatric, speech, and sensory disabilities.

(10)

Studies funded by the Agency for Healthcare Research and Quality have shown that individuals who talked with their families or physicians about their preferences for care had less fear and anxiety, felt they had more ability to influence and direct their medical care, believed that their physicians had a better understanding of their wishes, and indicated a greater understanding and comfort level than they had before the discussion. Patients who had advance planning discussions with their physicians continued to discuss and talk about these concerns with their families. Such discussions enabled patients and families to reconcile any differences about care and could help the family and physician come to agreement if they should need to make decisions for the patient.

(11)

A decade of research has demonstrated that physician orders for life-sustaining treatment effectively convey patient preferences and guide medical personnel toward medical treatment aligned with patient wishes. Programs for these orders have developed locally on a statewide or communitywide basis and have different program names, forms, and policies, but all follow the principle of patient-centered care.

(12)

According to research published in the Archives of Internal Medicine, between 65 and 76 percent of physicians whose patients had an advance directive were not aware that it existed.

(13)

Including completed advance care planning documents within a patient’s electronic health record can increase the likelihood these documents are kept up-to-date and available at the right place at the right time.

(c)

Table of contents

The table of contents of this Act is as follows:

Sec. 1. Short title; findings; table of contents.

Sec. 2. Voluntary advance care planning consultation coverage under Medicare and Medicaid.

Sec. 3. Grants for programs for physician orders for life-sustaining treatment.

Sec. 4. Advance care planning standards for electronic health records.

Sec. 5. Portability of advance directives.

2.

Voluntary advance care planning consultation coverage under Medicare and Medicaid

(a)

Medicare

(1)

In general

Section 1861 of the Social Security Act (42 U.S.C. 1395x) is amended—

(A)

in subsection (s)(2)—

(i)

by striking and at the end of subparagraph (EE);

(ii)

by adding and at the end of subparagraph (FF); and

(iii)

by adding at the end the following new subparagraph:

(GG)

voluntary advance care planning consultation (as defined in subsection (iii)(1));

; and

(B)

by adding at the end the following new subsection:

(iii)

Voluntary advance care planning consultation

(1)

Subject to paragraphs (3) and (4), the term voluntary advance care planning consultation means an optional consultation between the individual and a practitioner described in paragraph (2) regarding advance care planning. Such consultation may include the following, as specified by the Secretary:

(A)

An explanation by the practitioner of advance care planning and the uses of advance directives.

(B)

An explanation by the practitioner of the role and responsibilities of a proxy or surrogate.

(C)

An explanation by the practitioner of the services and supports available under this title during chronic and serious illness, including palliative care, home care, long-term care, and hospice care.

(D)

An explanation by the practitioner of physician orders for life-sustaining treatment or similar orders in States where such orders or similar orders exist.

(E)

Facilitation by the practitioner of shared decisionmaking with the patient (or proxy or surrogate) which may include—

(i)

use of decision aids and patient support tools;

(ii)

the provision of patient-centered, easy-to-understand information about advance care planning or disease-specific care planning; and

(iii)

the incorporation of patient preferences and values into the medical plan, an advance directive, and a physician order for life-sustaining treatment as appropriate.

(2)

A practitioner described in this paragraph is a physician (as defined in subsection (r)(1)), nurse practitioner, or physician assistant.

(3)

Payment may not be made under this title for a voluntary advance care planning consultation furnished more often than once every 5 years unless there is a significant change in the health, health-related condition, or care setting of the individual.

(4)

For purposes of this section, the term physician order for life-sustaining treatment means, with respect to an individual, an actionable medical order relating to the treatment of that individual that effectively communicates the individual’s preferences regarding life-sustaining treatment, is in a form that is sanctioned or approved under State law or regulation or is widely recognized by health care providers in the State, and permits it to be followed by health care professionals across the continuum of care. Such an order may be changed or revoked by the individual (or proxy or surrogate) at any time.

.

(2)

Construction

The voluntary advance care planning consultation described in section 1861(iii) of the Social Security Act, as added by paragraph (1), shall be completely optional. Nothing in this section shall—

(A)

require an individual to complete an advance directive or a physician order for life-sustaining treatment;

(B)

require an individual to consent to restrictions on the amount, duration, or scope of medical benefits an individual is entitled to receive under this title; or

(C)

violate the Assisted Suicide Funding Restriction Act of 1997 (Public Law 105–12) by encouraging the promotion of suicide or assisted suicide.

(3)

Payment

Section 1848(j)(3) of such Act (42 U.S.C. 1395w–4(j)(3)) is amended by inserting (2)(GG), before (3),.

(4)

Frequency limitation

Section 1862(a) of such Act (42 U.S.C. 1395y(a)) is amended—

(A)

in paragraph (1)—

(i)

in subparagraph (O), by striking and at the end;

(ii)

in subparagraph (P) by striking the semicolon at the end and inserting , and; and

(iii)

by adding at the end the following new subparagraph:

(Q)

in the case of voluntary advance care planning consultations (as defined in paragraph (1) of section 1861(iii)), which are performed more frequently than is covered under such section;

; and

(B)

in paragraph (7), by striking or (P) and inserting (P), or (Q).

(5)

Effective date

The amendments made by this subsection shall apply to consultations furnished on or after January 1, 2014.

(b)

Medicaid

(1)

Mandatory benefit

Section 1902(a)(10)(A) of the Social Security Act (42 U.S.C. 1396a(a)(10)(A)) is amended, in the matter preceding clause (i), by striking and (28) and inserting , (28), and (29).

(2)

Medical assistance

Section 1905(a) of such Act (42 U.S.C. 1396d(a)) is amended—

(A)

by striking and at the end of paragraph (28);

(B)

by redesignating paragraph (29) as paragraph (30); and

(C)

by inserting after paragraph (28) the following new paragraph:

(29)

voluntary advance care planning consultation (as defined in section 1861(iii)(1)); and

.

(c)

Definition of advance directive under Medicare and Medicaid

(1)

Medicare

Section 1866(f)(3) of the Social Security Act (42 U.S.C. 1395cc(f)(3)) is amended by striking means and all that follows and inserting the following: means a living will, medical directive, health care power of attorney, durable power of attorney for health care, advance health care directive, health care directive, or other statement that is recorded and completed in a manner recognized under State law by an individual with capacity to make health care decisions and that indicates the individual’s wishes regarding medical treatment in the event of future incapacity of the individual to make health care decisions..

(2)

Medicaid

Section 1902(w)(4) of such Act (42 U.S.C. 1396a(w)(4)) is amended by striking means and all that follows and inserting the following: means a living will, medical directive, health care power of attorney, durable power of attorney for health care, advance health care directive, health care directive, or other statement that is recorded and completed in a manner recognized under State law by an individual with capacity to make health care decisions and that indicates the individual’s wishes regarding medical treatment in the event of future incapacity of the individual to make health care decisions..

(d)

Effective date

The amendments made by this section take effect on January 1, 2014.

3.

Grants for programs for physician orders for life-sustaining treatment

(a)

In general

The Secretary of Health and Human Services shall make grants to eligible entities for the purpose of—

(1)

establishing statewide programs for physician orders for life-sustaining treatment; or

(2)

expanding or enhancing existing programs for physician orders for life-sustaining treatment.

(b)

Authorized activities

Activities funded through a grant under this section for an area may include—

(1)

developing such a program for the area that includes hospitals, home care, hospice, long-term care, community and assisted living residences, skilled nursing facilities, and emergency medical services within a State; and

(2)

expanding an existing program for physician orders regarding life-sustaining treatment to serve more patients or enhance the quality of services, including educational services for patients and patients’ families, training of health care professionals, or establishing a physician orders for life-sustaining treatment registry.

(c)

Distribution of funds

In funding grants under this section, the Secretary shall ensure that, of the funds appropriated to carry out this section for each fiscal year—

(1)

at least one-half are used for establishing new programs for physician orders regarding life-sustaining treatment; and

(2)

remaining funds are to be used for expanding or enhancing existing programs for physician orders regarding life-sustaining treatment.

(d)

Definitions

In this section:

(1)

The term eligible entity includes—

(A)

an academic medical center, a medical school, a State health department, a State medical association, a multistate task force, a hospital, or a health system capable of administering a program for physician orders regarding life-sustaining treatment for a State; or

(B)

any other health care agency or entity as the Secretary determines appropriate.

(2)

The term physician order for life-sustaining treatment has the meaning given such term in section 1861(iii)(4) of the Social Security Act, as added by section 2.

(3)

The term program for physician orders for life-sustaining treatment means a program that—

(A)

supports the active use of physician orders for life-sustaining treatment in the State; and

(B)

is guided by a coalition of stakeholders that includes patient advocacy groups and representatives from across the continuum of health care services, such as disability rights advocates, senior advocates, emergency medical services, long-term care, medical associations, hospitals, home health, hospice, the State agency responsible for senior and disability services, and the State department of health.

(4)

The term Secretary means the Secretary of Health and Human Services.

(e)

Authorization of appropriations

To carry out this section, there are authorized to be appropriated such sums as may be necessary for each of the fiscal years 2014 through 2019.

4.

Advance care planning standards for electronic health records

Notwithstanding section 3004(b)(3) of the Public Health Service Act (42 U.S.C. 300jj–14(b)(3)), not later than January 1, 2015, the Secretary of Health and Human Services shall adopt, by rule, standards for a qualified electronic health record (as defined in section 3000(13) of such Act (42 U.S.C. 300jj(13)), with respect to patient communications with a health care provider about values and goals of care, to adequately display the following:

(1)

The patient’s current advance directive (as defined in section 1866(f)(3) of the Social Security Act (42 U.S.C. 1395cc(f)(3)), as applicable.

(2)

The patient's current physician order for life-sustaining treatment (as defined in section 1861(iii)(4) of the Social Security Act (42 U.S.C. 1395x(iii)(4)), as applicable.

A standard adopted under this section shall be treated as a standard adopted under section 3004 of the Public Health Service Act (42 U.S.C. 300jj–14) for purposes of certifying qualified electronic health records pursuant to section 3001(c)(5) of such Act (42 U.S.C. 300jj–11(c)(5)).
5.

Portability of advance directives

(a)

In general

Section 1866(f) of the Social Security Act (42 U.S.C. 1395cc(f)) is amended by adding at the end the following new paragraph:

(5)
(A)

An advance directive validly executed outside the State in which such directive is presented must be given effect by a provider of services or organization to the same extent as an advance directive validly executed under the law of the State in which it is presented.

(B)

In the absence of knowledge to the contrary, a physician or other health care provider or organization may presume that a written advance health care directive or similar instrument, regardless of where executed, is valid.

(C)

In the absence of a validly executed advance directive, any authentic expression of a person’s wishes with respect to health care shall be honored.

(D)

The provisions of this paragraph shall preempt any State law on advance directive portability to the extent such law is inconsistent with such provisions. Nothing in the paragraph shall be construed to authorize the administration of health care treatment otherwise prohibited by the laws of the State in which the directive is presented.

.

(b)

Medicaid

Section 1902(w) of the Social Security Act (42 U.S.C. 1396a(w)) is amended by adding at the end the following new paragraph:

(6)
(A)

An advance directive validly executed outside the State in which such directive is presented must be given effect by a provider or organization to the same extent as an advance directive validly executed under the law of the State in which it is presented.

(B)

In the absence of knowledge to the contrary, a physician, other health care provider, or organization may presume that a written advance health care directive or similar instrument, regardless of where executed, is valid.

(C)

In the absence of a validly executed advance directive, any authentic expression of a person’s wishes with respect to health care shall be honored.

(D)

The provisions of this paragraph shall preempt any State law on advance directive portability to the extent such law is inconsistent with such provisions. Nothing in the paragraph shall be construed to authorize the administration of health care treatment otherwise prohibited by the laws of the State in which the directive is presented.

.