H.R. 1533House115th Congress (2017-2019)In Committee

Ellie's Law

Introduced March 15, 2017

AI-Generated Summary

Updated April 15, 2026 at 1:45 PM UTC

Ellie's Law directs the National Institute of Neurological Disorders and Stroke to conduct expanded research on unruptured intracranial brain aneurysms. It authorizes $5 million each year from FY 2018 through FY 2022, with the money remaining available until September 30 2026. The goal is to improve understanding and treatment of these aneurysms for the roughly 6 million Americans who have them.

Key Provisions

  • Authorizes $5 million annually for FY 2018‑2022 for research on unruptured intracranial aneurysms at NINDS, with funds usable through September 30 2026.
  • Requires that the new funding supplement, not replace, existing brain‑aneurysm research funds.
  • Establishes the short title “Ellie's Law” and records congressional findings on the prevalence and impact of brain aneurysms.

Legislative Activity

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2 earlier actions
HouseCommittee Latest Action

Referred to the Subcommittee on Health.

March 17, 2017

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HouseIntro Referral

Introduced in House

March 15, 2017

HouseIntro Referral

Referred to the House Committee on Energy and Commerce.

March 15, 2017

HouseCommittee

Referred to the Subcommittee on Health.

March 17, 2017

Floor Debate

9 members

What members said about H.R. 1533 on the floor

7 Republicans2 Democrats
Nancy Pelosi
Rep. Nancy PelosiD-CA-12 · Feb 7, 2018

Mr. Speaker, I thank the gentlewoman for yielding, and I congratulate her on her extraordinary leadership as the ranking Democrat on the Financial Services Committee. She has been a champion for…

Maxine Waters
Rep. Maxine WatersD-CA-43 · Feb 7, 2018

Madam Speaker, I yield myself such time as I may consume. Madam Speaker, I rise today in opposition to H.R. 1153, the so-called Mortgage Choice Act of 2017. Unfortunately, this bill is yet another…

Bill Huizenga
Rep. Bill HuizengaR-MI-2 · Feb 7, 2018

Madam Speaker, I rise today in support of H.R. 1153. As someone who worked in the housing industry, in fact, for the third generation, this is a very important issue to me and, more importantly, to…

Jeb Hensarling
Rep. Jeb HensarlingR-TX-5 · Feb 7, 2018

Madam Speaker, pursuant to House Resolution 725, I call up the bill (H.R. 1153) to amend the Truth in Lending Act to improve upon the definitions provided for points and fees in connection with a…

David A. Trott
Rep. David A. TrottR-MI-11 · Feb 7, 2018

Mr. Speaker, I rise in support of the bipartisan, commonsense Mortgage Choice Act, sponsored by the Congressman from Michigan (Mr. Huizenga). Mr. Speaker, I am proud to be a cosponsor of this…

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Keith J. Rothfus
Rep. Keith J. RothfusR-PA-12 · Feb 7, 2018

Mr. Speaker, I rise today to express my support for H.R. 1153, the Mortgage Choice Act. As a cosponsor of the bill and the vice chairman of the Financial Institutions and Consumer Credit…

Ralph Norman
Rep. Ralph NormanR-SC-5 · Feb 7, 2018

Mr. Speaker, I rise today to speak in favor of H.R. 1153, the Mortgage Choice Act of 2017. This bipartisan legislation is essential to help low- and middle- income families gain access to qualified…

Warren Davidson
Rep. Warren DavidsonR-OH-8 · Feb 7, 2018

Mr. Speaker, I rise today to offer my support for H.R. 1153, the Mortgage Choice Act. This bill is another example of a rollback of the burdensome regulations of Dodd-Frank and, many would say,…

Ann Wagner
Rep. Ann WagnerR-MO-2 · Feb 7, 2018

Mr. Speaker, H.R. 1153, the Mortgage Choice Act, provides needed clarity to the calculation of points and fees for qualified mortgages, or QM, especially for those companies affiliated with real…

Bill Text

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Introduced in HouseIssued March 15, 2017

I

115th CONGRESS

1st Session

H. R. 1533

IN THE HOUSE OF REPRESENTATIVES

March 15, 2017

Ms. Clarke of New York introduced the following bill; which was referred to the Committee on Energy and Commerce

A BILL

To provide for further comprehensive research at the National Institute of Neurological Disorders and Stroke on unruptured intracranial aneurysms.

1.

Short title

This Act may be cited as the Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act or Ellie’s Law.

2.

Findings

The Congress makes the following findings:

(1)

An estimated 6 million people in the United States, or 1 in 50 people, have an unruptured brain aneurysm.

(2)

Each year, an estimated 30,000 people in the United States suffer a brain aneurysm rupture. Ruptured brain aneurysms are fatal in about 40 percent of cases. Of those who survive, about 66 percent suffer some permanent neurological deficit.

(3)

Brain aneurysms are more likely to occur in women than in men by a 3 to 2 ratio. People who experienced a brain aneurysm rupture include the following:

(A)

Ellie Helton. On July 16, 2014, Ellie Helton, a vibrant, loving 14-year-old from Apex, North Carolina, passed away as a result of a ruptured aneurysm, stunning her parents, two sisters, and many, many loved ones. A day earlier, on her second day of high school, she woke up with a terrible headache after a plum-sized aneurysm on her brain stem ruptured. While she suffered headaches throughout her life, she was never diagnosed. Ellie was an avid reader and excellent student, loved the arts, and was incredibly creative. She had an unwavering, constant love for the family and friends in her life.

(B)

Lisa Colagrossi. On March 20, 2015, Lisa Colagrossi—WABC Eyewitness News reporter, wife of 17 years, and mother of two sons—unexpectedly passed away at the age of 49 years after suffering a massive ruptured brain aneurysm. Despite experiencing one of the classic warning signs of a brain aneurysm (the worst headache of my life), Lisa’s passing came as a tremendous shock to her family and friends, who did not know what a brain aneurysm was, let alone its signs and symptoms. She is remembered for being a loving wife, a mother, and a successful reporter, and for her love of the New York Rangers.

(C)

Teresa Anne Lawrence, devoted mother of three, beloved wife, and staple of her community, collapsed while visiting her son's school on December 8, 1983. She had been struggling with and taking medication for hypertension for several years. At age 34, after being unconscious for four days, she passed away as a result of a brain aneurysm. Her loving husband and extended family were left to raise their children, whom Teresa cherished so much.

(D)

Jennifer Sedney. On December 25, 2013, Jennifer Sedney, a beautiful, accomplished young woman, passed away suddenly at the age of 27 from a ruptured brain aneurysm. Her only symptom was the worst headache of her life, which none of her friends or family realized was a symptom of a potentially fatal condition. Jenny was a jogger, a disciplined exerciser, and a successful health care consultant and had recently launched a health blog founded on three principles—bee curious, bee radiant, bee well. Her brother, mother, father, and a large devoted network of friends and relatives remember her every day.

(4)

The combined lost wages of survivors of brain aneurysm ruptures and their caretakers are approximately $138,000,000 per year.

(5)

Despite the widespread prevalence of this condition and the high societal cost it imposes on the Nation, the Federal Government only spends approximately $0.83 per year on brain aneurysm research for each person afflicted with a brain aneurysm.

(6)

The first three iterations of the International Study on Unruptured Intracranial Aneurysms (ISUIA) have advanced researchers’ and clinicians’ understanding of how to most effectively manage and treat unruptured intracranial aneurysms.

3.

Funding

(a)

Authorization of appropriations

To conduct or support further comprehensive research on unruptured intracranial aneurysms, studying a broader patient population diversified by age, sex, and race, there are authorized to be appropriated to the National Institute of Neurological Disorders and Stroke $5,000,000 for each of fiscal years 2018 through 2022, to remain available through September 30, 2026.

(b)

Supplement, not supplant

Any funds made available pursuant to this section shall supplement, not supplant, other funding made available for research on brain aneurysms.