Mr. President, I rise today to urge my colleagues to vote against the nomination of Tom Price to be the Secretary of the Department of Health and Human Services. The decisions made at HHS touch the…
Mr. President, I rise today to urge my colleagues to vote against the nomination of Tom Price to be the Secretary of the Department of Health and Human Services.
The decisions made at HHS touch the lives of every family in America. The Secretary who runs this agency makes decisions about everything from safety of the food we eat to the drugs we take, to the health insurance we buy and the quality of nursing homes we live in. This is an extremely important job, and we should not hand over the keys to this agency unless we are certain that the person will put the American people first every minute of every day.
President Trump has nominated Congressman Tom Price to serve in this job. Unlike many of the President's other nominees who are stunningly inexperienced in areas where they will be setting policy, Congressman Price has a lot of experience in health care policy. Yes, he has experience, but it is the kind of experience that should horrify us if we care about Medicare, if we care about Medicaid, or if we care about our own insurance coverage.
Congressman Price's record is perfectly clear. He wants to destroy fundamental protections that millions of Americans depend on for their health and economic security, and, frankly, he isn't very subtle about it. He has described ACA's ban on discriminating against individuals with preexisting conditions as ``a terrible idea.'' He has voted 10 times to defund Planned Parenthood--voted 10 times against a group that provides lifesaving cancer and sexually transmitted infection screenings to millions of patients a year. He has tried to privatize Medicare and raise the age of eligibility. Privatize Medicare; think about that. And he has been one of the chief boosters in Congress for gutting the Medicaid program--the Medicaid program, which provides health care for millions of kids, for people with disabilities, for families with parents in nursing homes--cut money to keep people in nursing homes.
Nonpartisan analyses of these plans are not pretty. Millions of people in this country, young and old, children and grandparents, poor and middle-class workers would be denied access to lifesaving care.
Congressman Price touts his own magic numbers that say differently, but make no mistake, this is the record of someone who wants to use his position at HHS to advance a radical, reckless agenda that puts rightwing, anti-government ideology ahead of the health and safety of the American people.
During his hearing before the HELP Committee, I asked Congressman Price some pretty simple questions. I asked him about more than $1 trillion in cuts that he has proposed to Medicare and Medicaid. I asked him if he would keep or undermine President Trump's campaign claim that he would protect these programs. I asked him to guarantee that not one dollar in cuts to Medicare would take place on his watch. I asked him to guarantee that not one dollar in cuts for Medicaid to help people living in nursing homes would happen on his watch. I asked him to guarantee that not one dollar in cuts for people with disabilities would happen on his watch.
I asked him three separate times to make this commitment, and three separate times he refused to do so. Think about that--cut Medicare for millions of seniors, cut help for people with disabilities, cut Medicaid for people living in nursing homes. This is the person Donald Trump wants to put in charge of those programs.
We have a lot of work we need to do on health care. We need to reduce the cost of insurance. We need to make sure insurance is available to small business owners, gig workers, and part-time workers. We need to make sure insurance continues to cover health care for women and people with preexisting conditions who otherwise are not going to be able to get insurance. What we don't need is to put someone in charge who is hell-bent on destroying health care in America.
For me, this is easy. When someone says he wants to cut Medicare, I am done with him. When someone says let's take away the money that people rely on to pay for nursing homes, this guy is finished. When someone says that protecting people with preexisting conditions is a bad idea, they don't get the job. This should be easy for everyone in Congress. This is a moment for Senator Republicans to step up and say no.
There is another reason to reject Congressman Price's nomination, a reason that has nothing to do with his terrible ideas, a reason that would disqualify him even if we agreed on every single issue. The reason is basic ethics.
During his time in Congress, Mr. Price has made money by trading hundreds of thousands of dollars' worth of stock in healthcare-related companies at exactly the same time that he pushed legislation that could affect the value of these stocks. His formula has been pretty simple. First he buys the stock, then he pushes bills to help the company, which helps the stock price go up.
For example, Congressman Price bought stock in a company that makes hip and knee replacements, and then he introduced a bill to suspend a Federal rule affecting Medicare reimbursements for hip and knee replacements. Congressman Price bought stock in a bunch of pharmaceutical companies, then cosponsored a bill to suspend a Federal rule that would hold down drug prices for the drugs that these companies manufacture. Congressman Price bought stock in an Australian biotech company with an experimental drug to treat multiple sclerosis, and then he voted for a bill that would make it easier for the FDA to approve these drugs.
So what does Congressman Price have to say for himself? How does he explain this connection between buying stock, then supporting changes in the law that would boost the value of the stock he just bought? Well, he has his excuses lined up, and I have to say they are doozies.
He says he didn't know about the trades; his broker made them without asking him first. Oh, wait. He did know about the trades. He just happened to know about an obscure Australian biotech firm, and he just happened to decide to invest as much as $100,000 in it because it was a good investment. Then he hit his last excuse: It is all OK because he paid the same price as anyone else who bought the stock.
Wow, that is really a heaping, steaming pile of excuses, and the excuses stink. These are Congressman Price's stock trades, not anyone else's. He made those decisions to buy those stocks, and then he repeatedly pressed for rules that would increase the value of those stocks. In fact, with one of the deals, it isn't just a question of stinkiness; it is a question about whether he broke the law.
By his own account, Congressman Price found out about an Australian biotech company called Innate Immunotherapeutics from a fellow House Member who, it just so happens, sits on the company's board and holds the largest stake in the company. So when he decided to buy his latest batch of stock, Congressman Price got access to a private sweetheart deal, meaning he got a discount on the price of the shares the general public couldn't get.
This sequence of events might break the law. That is not good at all. And getting special access to a sweetheart deal doesn't help your claim that you are just an ordinary guy with a boring stock portfolio. So when Congressman Price appeared before the Finance and HELP Committees, he said he had not paid a lower price than had been available to other investors. That is just not true. The company itself pointed it out. In fact, Congressman Price got a
special discount that went to only 20 people in the country--20 special friends, including the Congressman who could help write the laws that would make the company even more valuable.
An outside watchdog has called for an SEC investigation into whether Congressman Price committed insider trading. Price lied to Congress about his trades, and that should be the end of it. No more nomination for Secretary of HHS. The Congressman should have the decency to withdraw his nomination. It should have happened weeks ago. And if he didn't go voluntarily, the President and his friends in Congress should have quietly but forcefully pushed him out, but that is not what happened either. Instead, Republicans barreled straight ahead, and they changed the rules to do it.
Since Congressman Price lied to the committee, Democrats wanted him back for another hearing to ask him about it. Republicans refused, and Democrats boycotted the Finance Committee to try to force Price to explain why he lied. So the Republican response was to just suspend the Senate rules so they can run around the Democrats and move forward Price's nomination anyway.
Do we do not care about basic ethics anymore? Is that just gone? A Congressman should not be buying stocks then pushing laws to help the company, and that Congressman sure shouldn't be lying to the United States Senate about it.
Because Congressman Price has no shame, it will take three Senate Republicans to reject his nomination. Where are the three Republicans who will say no to a man who bought stock and then tried to get the rules changed in Washington so the companies would be more profitable? Where are three Republicans who will say no to a man who got a special stock deal that went to only 20 people in the whole country? Where are three Republicans who will say no to a man who lied to a Senate committee? This has nothing to do with politics. It is about basic ethics. It is about potentially illegal behavior. Where are three Republicans who will say no to this man?
When Donald Trump selected Congressman Price for this job, he said Price was part of a ``dream team that will transform our healthcare system for the benefit of all Americans.'' Over the past few weeks, I have been trying to understand exactly what that dream looks like.
For families all over this country, the dream is pretty simple. They want to know that when they get sick, they can go to the doctor and not be hit with a surprise bill they can't pay. When they buy insurance, they want to be sure it covers birth control or cancer screenings and preexisting conditions. They want to be able to fight cancer and not lose their house or declare bankruptcy because their insurance company imposes a lifetime limit on benefits.
President Trump does not share this dream for health care in America, and neither does Congressman Price. From his first day in office, President Trump has acted to undermine access to health care. Now he has nominated an HHS Secretary who will help him sabotage our Nation's health care system from inside the Department of Health and Human Services.
Yes, we have our differences over health care, and, yes, there are fixes we need to make, but where are three Republicans who will say no to a man who wants to cut Medicare? Where are three Republicans who will say no to a man who wants to cut nursing home care? Where are three Republicans who will say no to a man who wants to cut insurance coverage? Democrats can't do this alone. Three Republicans need to put aside partisanship and stand up for the American people. We need you. The American people need you.
With my remaining time, I want to share some of the letters I have been getting from families in Massachusetts who have seen the reckless, radical plans that President Trump, Congressman Price, and Republicans in Congress have put forth for the Nation's health care system. These families know exactly what is at stake in this debate. Congressman Price didn't have an answer when I asked him to protect Medicare and Medicaid, but these letters are from constituents and they show just how important these programs are.
Lee from Holliston wrote to me, concerned about cuts to Medicare and Medicaid. I am just going to read an excerpt from his letter:
I am a 65 year old disabled woman who depends on the
generosity of MassHealth and Medicare to survive. I am
terrified that Medicare and Medicaid will be so drastically
cut that I will no longer be able to maintain my life. I live
in HUD housing, receive Medicare and MassHealth which covers
all of my healthcare and allows me to continue to live on my
own through senior services and the Personal Care Attendant
program.
I guess I am just feeling scared and hopeless as I realize
the potential for destroying the lives of seniors who live on
Social Security and nothing else. I wear an insulin pump,
have type 1 diabetes going on 53 years, and I have multiple
complications--including an amputation 11 years ago.
My healthcare costs are just unaffordable without all the
assistance. Medicare and MassHealth covers everything for me
so that the $1,050 per month I receive is doable for living
expenses.
I just need to know it is going to be OK.
Lee, we need three Republicans to help out here. Congressman Price has made it clear that he wants more than $1 trillion in cuts to Medicare and Medicaid, and that affects you. We have to find three Republicans to help out and to help stand up for you and the rest of America.
I also heard from Alan from South Shore, who is worried about his daughter Meg. Here is what he wrote:
My daughter Meg is 29. She was born with a condition called
neurofibromatosis. As a result of this, she has benign but
inoperable tumors on her spine. They cause her chronic pain
and problems walking. On some days, she cannot walk even one
step. On other days, she might begin walking with a walker,
then suddenly collapse on the floor.
Meg cannot hold down a job: She spent the last quarter of
2016 in and out of hospitals. She receives about $700/month
from Social Security Disability. She has no savings. She pays
for her Medicare prescription drug Part D supplement out of
her Social Security. MassHealth is free for her, and it pays
for Meg's Medicare Part B. I am retired, so I can only help
her a bit.
If Trump's first idea about TrumpCare goes into law--where
he assumes you will buy your health insurance out of
savings--I fear Meg will live in her bed, watching repeats of
quiz shows on her television. And her network of care--
including emergency services, rehab physical therapy, chronic
disease management prescription drugs--will be reduced.
I understand why you are worried, Alan. I am worried, too, because I think that is exactly the path we are on with Congressman Price's nomination to head up HHS. That is why we are fighting back.
Boston Center for Independent Living also shared with me a story from a constituent named Jill who receives health care from the State's Medicaid Program. Let me tell you a little bit about Jill.
Jill is 62 years old. She has a heart defect, a seizure disorder, and serious osteoporosis. She had a varied career as a manager of a women's clothing company a decade ago, and in the 1980s, she installed some of the first computer networks in public schools. In the past several years, Jill has had significant health problems: surgery for her heart condition and multiple broken bones due to her worsening osteoporosis.
MassHealth, the State's Medicaid Program, has covered hospital bills, appointments with specialists, rehab stays, and an affordable medication plan.
Jill is now hoping to use a personal care assistant to give her support with shopping, making meals, and basic housekeeping.
Jill said: ``For me, Medicaid is a lifeline--any cuts from Washington would be a disaster.''
I hear you on that, Jill. I just hope that Congressman Price, President Trump, and the Republicans hear you as well.
Medicaid helps a lot of people in Massachusetts, including the very youngest. I got a very powerful letter from Marika from Duxbury, who wrote to me about giving birth to her son Jack after just 28 weeks of pregnancy. I want to read parts of her letter:
I'm writing to you today because I am horrified about the
changes that may be happening to healthcare in the United
States.
My husband and I welcomed our son, Jack, at 28 weeks in
July of 2015. I had a very normal, healthy pregnancy--until
suddenly it wasn't. I ended up with rapid onset of HELLP, a
rare and life-threatening syndrome, and an emergency C-
section saved both my life and Jack's.
Jack was 1 pound, 14 ounces when he was born. We were both
in the ICU for some time,
my son Jack for 110 days. He had all the issues you'd imagine
at 28 weeks--cardiac, pulmonary, feeding.
Today, at 18 months old, Jack is a fighter--my hero
really--and despite still needing oxygen and a continuous
feeding tube that is surgically inserted into his intestines,
he is cruising, talking, and ALIVE.
He is alive, and quite frankly, I'm alive because of our
amazing healthcare. I have the benefit of an exceptional
employer plan from Harvard University. But Jack also
qualified (because of his birth weight) for MassHealth. And
our public health insurance has been an incredible resource:
Jack's hospital bills were in the millions after his 110
day stay in the NICU. This doesn't even include my own
hospital costs for my stay. Despite having excellent jobs and
resources, my husband and I would have been bankrupt, and
immediately so, without our private health insurance and
MassHealth benefits.
Since coming home from the NICU, Jack is still on a feeding
tube and oxygen, and he cannot be accepted into regular
daycare. He would go to a medical day care, but he has no
cognitive delays, and so placing him in such a facility would
not ensure that he gets the regular developmentally
appropriate engagement that he needs. And so MassHealth pays
for skilled nursing care in our home with no out of pocket
costs. This means that Jack gets the care that he needs, and
my husband and I can still work at the jobs that we love.
Jack participates in early intervention programs and
receives feeding therapy, physical therapy and occupational
therapy free of charge.
Jack's Synagis shots cost zero dollars. Synagis is a
prescription medication that is used to prevent a serious
lung disease caused by respiratory syncytial virus, RSV, in
children at high risk for severe lung disease from RSV. The
average wholesale price is $780.15 for the 50 milligram
Synagis vial, and $1,416.48 for the 100 milligram vial. Jack
gets a 150 milliliter shot every month.
I cannot imagine this life without my son's public health
insurance. I recently enjoyed the NICU Family Advisory Board
at Beth Israel Deaconess Medical Hospital in Boston (where
Jack and I were cared for) as a way to give back. Today, I
mentor other families who have unexpectedly found themselves
the parent to a tiny premature baby fighting for life. In
nearly every case, navigating the insurance system and fears
about money are top of mind.
I am glad to hear that Jack is doing well, but I understand why it is that you want to hang on to MassHealth and why it is that we cannot take the cuts Congressman Price has proposed.
Families in Massachusetts are also deeply worried about the future of the Affordable Care Act. Jackie from Norwood wrote to me about how the ACA helped her get coverage for therapy after her mother was killed. She wrote:
My mother was murdered when I was 24. I was on her
healthcare, which kicked me off the day after she died. I had
recently accepted a new job and I was set to start that
Monday (she was killed on Saturday). I had already left my
previous full-time job the Friday before.
Due to having to move states after her death, I couldn't
start my new job. I didn't know when I'd have work again that
could provide insurance, nor did I have another parent whose
plan I could join. I also had no way of affording COBRA
payments.
So in the matter of one night, I was left helpless in so
many ways. Not having health insurance was one of many side
effect issues that no homicide victim's family should have to
worry about. Especially the next day and when planning a
funeral.
Thanks to the Affordable Care Act, I was able to get
covered almost immediately, which meant I could still afford
my current medications and I was able to get into needed
therapy right away. If it weren't for the ACA, I would have
been left struggling and sick as a result of something FAR
out of my control.
Very true, Jackie.
Jackie goes on to say:
I ended up finding work within a couple of months, and I am
still in treatment for PTSD. I was lucky enough to find
employment at Harvard University and no longer needed
coverage through the ACA. I have generous health benefits
provided to me. However, I never want a fellow citizen or
victim of homicide to be without medical care due to cost,
preexisting conditions, or other setbacks. I am happy my tax
dollars go to help programs like MassHealth and the ACA. We
all work hard, but that doesn't mean we are all as fortunate.
I am not the typical poster child for a homicide victim/
survivor. I am white and college educated. I work for an Ivy
League school. I still needed help when disaster struck, and
so many others less privileged than me need help finding
affordable health care.
Please continue fighting for me and other victims and
survivors of homicide.
That is what we are here for, Jackie. That is what we are supposed to do. We just need three Republicans to help us out on this.
I also heard from Jennifer from Northampton, who is terrified for her family if the ACA is repealed. She says:
I suppose I can't say when our story starts. Maybe the day
I met my then-life partner (now wife) of 16 years. Maybe it
begins when she had to have emergency surgery in Maryland
when she wasn't covered under my insurance, because our union
wasn't legally recognized. Maybe it begins with the tens of
thousands of dollars of debt we incurred in uncovered medical
expenses when we tried to get pregnant with our son.
Or maybe it started two days ago when the unthinkable
happened. My wife got laid off. After seven years of
exemplary services to a large human services agency whose
mission is supporting individuals and families affected by
homelessness, my wife was given no warning, no severance and
no compassion in her sudden dismissal from the agency. For
any family this would be devastating. Now we come to the dire
part.
About a year ago, my younger sister, Stephanie, was
diagnosed with an aggressive form of Triple Negative Breast
Cancer at 35 years of age. But this story isn't about that.
Six months later, my mother got diagnosed with Stage 4
Metastatic Breast Cancer.
I didn't have to be an over-educated lesbian to know that
there was something genetic going on in my family. I got
tested for the BRCA gene and was found positive for the
mutation that causes breast cancer, specifically Triple
Negative (like my sister had) and am currently looking at an
80% chance of developing Breast Cancer in my lifetime.
I need a double mastectomy and I need it soon. It's
scheduled, in fact, for March 6th, 2017. And now, my wife
doesn't have a job. I am a Behavior Analyst who specializes
in the treatment of children with Autism Spectrum Disorder. I
have a small private practice and don't make enough money to
support our household. I also don't have access to health
insurance through any of my contracts.
That is why it's dire.
One laid-off spouse, one four year old son, one self-
employed wife with an 80% chance of developing breast cancer
and fear of the ACA being repealed. This is dire.
We are terrified, I am terrified.
This isn't a ``wait and see'' situation for my family. This
is us. This is now. And this is real.
Yes, Jennifer, and that is why we are here tonight, in the U.S. Senate, to debate whether or not Congressman Price--a man who wants to cut Medicare, cut Medicaid, repeal the Affordable Care Act--is going to be the next head of Health and Human Services. That is why we are fighting. That is why we are looking for three Republicans to step up with the Democrats and turn him down. We must protect the Affordable Care Act.
I also got a letter from Olivia, a college student from North Reading. Olivia wrote me about what the ACA means to her as someone living with multiple chronic illnesses. She wrote:
I am a twenty-two year old white woman from a middle-class
suburb of Boston. I attend the University of Massachusetts
Amherst and will be applying to graduate school next year. I
eat an anti-inflammatory diet, I exercise regularly, do not
smoke, and drink lots of water. I am on my parents'
insurance, which they receive through their employer. I am a
patient at some of the best hospitals in the world.
I am so fortunate to live in a state that protects my right
to affordable health care. I was also hopeful when I heard
that President Trump was considering modifying ObamaCare
rather than repealing it. However, I am still worried about
the actions that will be taken in 2017 by his administration
and by Congress.
If you met me you would see a ``young, vibrant, and
ambitious woman''--other people's words, not mine. Many
people and politicians in this country would meet me and not
assume that I rely on the ACA. I am not from a low-income
family, I don't live in an area that doesn't have adequate
medical facilities, and I appear well. I am, however, living
with multiple chronic illnesses. I suffer from asthma,
fibromyalgia, chronic urticaria, chronic migraines,
irritable bowel system, gastro-esophageal reflux disease,
and a rare-genetic kidney disorder.
I take multiple medications daily that keep me alive,
prevent further health complications, and that allow me to
take care of myself. I also seek other therapies to manage my
conditions, such as chiropractic care and physical therapy. I
currently have great health insurance, yet I still pay
hundreds of dollars a month just to give myself any quality
of life.
I read the Trump/Pence administration's health care plan
and I am aware of the efforts by the GOP to repeal Obamacare
and their readiness to do so now that President Trump has
taken office. I don't believe I have to explain to you why
this worries me.
No, you don't.
I won't go on a rant about why health care reform should be
about the people not the money (though I could). I will also
not talk about why we should have universal health care
(though I could). I am hoping that my story offers a slightly
different perspective on why certain aspects of the ACA
cannot be modified.
Please remind your fellow senators that millions of
Americans suffer from multiple chronic illnesses, many of
which are invisible, and that we are a minority that is often
forgotten. Many people are just like me. We are college
students and new graduates who have to learn to manage our
medical conditions before going out into the real world.
To do this, we may have to stay on our parents' insurance
until we are twenty-six years old. We are people who can only
work part-time jobs and will need insurance to help keep our
medical costs down. We may require expensive prescriptions
and numerous doctor visits a year; we cannot have a cap on
our care because our conditions are chronic and
unpredictable. We are people who will have to apply for
insurance with pre-existing conditions which should not be
held against us. We are thankful for preventative care
because it prevents illnesses that would exacerbate our other
conditions.
Health care is a business that we need but that we didn't
ask to be a part of. It is a business we all take part in,
whether we plan to or not. We are NOT burned-down houses--we
are citizens who provide meaningful contributions to our
country.
I hope that Congress can work together to continue to give
people like me a fighting chance.
I am with you on that. I hope Congress can work together to give people like you a fighting chance.
I also got a letter from Christine in Canton, who wrote to me about her son. She writes:
My oldest child is a 21-year-old college student (soon to
turn 22 in February), who is also transgender. He suffers
from anxiety and depression. He's been working very hard to
complete college while also seeking treatment for his mental
health issues. He sees a therapist weekly and has also been
hospitalized twice for mental health issues since he's been
in college.
Luckily, due to the Affordable Care Act, he is able to
remain on our insurance, where the co-payments for both
therapy and hospitalization are at least manageable. If he
were not to have coverage through our insurance, I'm not sure
that we could afford to pay for his treatment--and as a
college student, he certainly could not afford to pay for it.
It frightens me to think of what will happen to him if he is
not able to receive treatment to keep him healthy.
Like so many others covered by the Affordable Care Act, it
is a life or death situation. I need to know that you will
fight by any means possible to keep the Affordable Care Act
from getting repealed.
I also have a 19-year old college freshman and a 17-year
old high school senior. While they do not have the same
health issues as their brother, we all know how that can
change in an instant. The repeal of the Affordable Care Act
will also have consequences for them down the line.
I guarantee, Christine, I will be here to fight for you, to fight for keeping the Affordable Care Act for you and for families like yours.
Denise from southeastern Massachusetts wrote to me about how her family is fighting cancer. Here is what she said:
We are family of four, with three cancer survivors. My
husband is a childhood cancer survivor who is now fighting a
blood disorder and is a patient at Dana Farber. I am a three-
time cancer survivor. Having been diagnosed with breast
cancer at age 42 (with no family history), I have since had
two recurrences.
I have had radiation, five years of tamoxifen therapy, a
bilateral mastectomy, and reconstruction. My reconstruction
has been difficult, with five surgeries within 18 months. I
have been postponing another surgery due to cost, since my
insurance has changed for the worse. At age 23, my daughter
was diagnosed with Hodgkin's lymphoma and underwent surgery
and seven months of chemotherapy.
We are a family that has always been proactive and
responsible in receiving regular health care. Now, my husband
and I have been rejected for long-term care. My daughter, who
has two children, pays a higher premium for life insurance
and has been denied cancer insurance. We are in a position
where we cannot even succeed in our attempts to take
responsibility for ourselves.
This outreach to you is a further attempt to do just that;
to maybe give you one more example of reality in your fight
for us. We are not whining; we are fortunate to be a close,
loving family that has had the strength to rally every time
adversity has struck.
But we are tired from the fight and very afraid for the
future. It is shocking to us that, in the richest country in
the world, after years of working, planning and saving, that
we are at the point of fearing a possible bankruptcy in our
later years. We also fear financial destruction for our hard-
working children due to uncovered medical expenses or the
possible exorbitant premiums of a high-risk insurance pool.
Please, please never tire in the fight for access to
comprehensive affordable healthcare. Good medical care should
not be a privilege for the rich, but a fundamental right for
all.
Boy, I am with you on that one, Denise. It is a fundamental right for all, and that is what we will continue to fight for.
I also received a letter from Jenny in Worthington. And I want to read you Jenny's entire letter because she really underlines what is at stake in this fight.
My husband and I have spent our entire careers in the arts.
I write music for the theater; my husband is a novelist,
playwright, and freelance medical writer. We have two
children. We own a home. We paid back every dime on our
student loans and we contribute regularly to our self-funded
retirement accounts. We have no consumer debt. In short, we
are hardworking, fiscally responsible people.
We recognize the trade-offs that come with being our own
bosses. We enjoy the freedoms of self-employment, and take
seriously the extra burden that society imposes on us,
including making our own Social Security payments,
contributing to Medicare, and buying health care on the
individual market, something we have done our entire adult
lives.
When the Affordable Care Act was passed, we were thrilled.
For the first time, we had adequate coverage for our family.
Our deductibles shrank. We lost the dreaded co-insurance
provision and began to think that we could prepare
financially should we face the worst.
Or so we believed.
Our difficulties began in late 2014, when I was diagnosed
with breast cancer. Over the weeks that followed, I endured 5
surgeries, including a unilateral mastectomy and
reconstruction. Almost immediately after, I began to
experience complications. Since then, I've come to learn that
I was having a reaction to the silicone implant used in my
reconstruction and that was just the early stage of a complex
autoimmune condition that still lacks a name.
Back then, all I knew was that I was wracked with constant,
severe pain. I lost the ability to walk. I could no longer
think straight and I lost sight in my right eye. Luckily, we
stumbled upon an article by a Dutch team that had examined a
cohort of women suffering from the same condition. After
consulting with the lead author of the paper, we decided that
my implant was to blame, and we determined to have it
removed.
Although I experienced some relief immediately after ex-
plantation, I have never fully recovered. The joint pain and
exhaustion persist. I have shed more than a third of my body
weight. The battery of medications I take do little more than
keep my pain at bay, permitting me to drive my son to school
or shop for groceries, but not much more.
As for my artistic life, it has been put on hold. I have
unfinished commissions from two theaters--Chicago Shakespeare
Theater and Playwrights Horizons, in New York City--and both
institutions have been incredibly patient. Yet the truth is
that I have been unable to work for more than two years.
Severe cognitive impairment is a hallmark of my condition,
and I have serious problems with my short-term memory.
Holding the thread of conversation is incredibly difficult,
and I experience blinding headaches if I write music for more
than a couple of hours. Frequently, it feels as though
someone has reorganized my brain but forgotten to leave me
the instructions. It is frustrating; it's terrifying.
Only one thing has made it possible for me to survive this
at all: the coverage I receive through the ACA.
The day I got my cancer diagnosis, I was in the process of
re-certifying through the Massachusetts Health Connector. I
was thrilled when my local Navigator told me that thanks to
my new diagnosis, I qualify for Massachusetts' Breast and
Cervical Cancer Treatment Program, a Medicaid-backed
initiative designed to cover middle and low-income women
through their treatments. Not only would I be covered, but
our two children would also be insured by MassHealth, our
state's Medicaid program. Though my husband continued to
purchase care through a separate plan, this single event
saved our family from financial ruin.
Now, all of that stands to change. With the repeal of the
life-saving provisions guaranteed by the ACA, we are faced
with the complete erosion of our savings. The Republican
Congress has already voted to eliminate the ban on denying
individuals coverage on the basis of previously existing
conditions, meaning that I will most likely be uninsurable.
What will happen then? Will we go bankrupt? Will we lose our
home? How will I cope without my medications when we can no
longer afford to pay for them?
The passage of the ACA did more to shore up our little
family than any other piece of legislation in my lifetime. It
has enabled me to face my grave illness without worrying
whether cost would be a factor in my treatment or whether I
could try the next medication my doctors prescribed to
relieve my pain.
In sharing our story on social media, I have been
overwhelmed by the outpouring of concern from our tiny
community of theater professionals. The President of the
Dramatists' Guild, a professional association for theatre
artists, called me to offer the assistance of their Emergency
Fund should we need it. And while it is heartwarming to
receive the support of my professional community, the hard
truth is that even the most doggedly determined not-for-
profits can't possibly replace the broad social safety net of
the Federal government--a safety net Republicans are
determined to shred.
In every industrialized country but ours, health care is
considered an inalienable human right. It is abhorrent to
claim that
care is something Americans should have to ``shop for.''
Price-comparison shopping may seem like a wonderful market-
driven design, but in reality it forces us to confront the
terrifying arithmetic of balancing how much care we need
against what we can afford. The sicker one grows, the harder
it becomes to solve that equation.
We have no idea what the Republicans intend by way of a
replacement to the ACA. They refuse to specify, despite their
years of claiming that the ACA is a failure. They talk of
expanding Health Savings Accounts (HSAs), though such
accounts represent nothing but a disingenuous transfer of the
cost to the consumer. Even if such an approach made sense,
how far would $6,750 (the current HSA limit) go in meeting
actual health care costs? That amount would be wiped out
after a single visit to the emergency room.
What's more, where do they expect sick Americans--those
fighting for their lives and unable to work precisely because
of their illnesses--to suddenly uncover $6,750 to sink into a
tax-sheltered HSA?
Clearly, this idea has been put forward by people who do
not depend on their health insurance for their very lives.
They pretend that this sort of thing will save ``our
system,'' but their proposal is like offering a patient an
Advil for an amputation--laughably inadequate at best; an
utter horror at worst.
What's more, efforts like the expansion of Medicaid under
the ACA have already saved us. Or many of us. Certainly me,
in any case. A Republican friend wrote me recently, venting
about the ``third-world'' coverage Medicaid provides. What he
had to say was ignorant and false. Medicaid isn't failing. To
the contrary, it has saved my life and the lives of many
others who have simply had the misfortune of falling ill. And
isn't that, after all, one of the primary functions of
government? To care for its citizens and return them to the
ranks of the healthy and productive?
We have no idea what the year ahead holds for us. It is
likely we will face health premiums of $24,000 or more for a
low-level plan. Our premiums will consume 30% of our income,
more than our mortgage. Despite MassHealth, we shelled out
nearly $15,000 for uncovered medical expenses in 2016, and we
are already on track to surpass that number this year. On top
of everything else, this is the year our daughter starts
college. I'm not the typical Medicaid patient that people
seem so fond of demonizing, nor am I some poster child of the
ACA. I am simply one of the countless individuals whose story
does not fit the narrative the Republicans are attempting to
feed us about the ACA and about what it means to be sick in
America. Medicaid is on the chopping block not because it is
failing, but because the people who benefit from it too often
fail to speak up on their own behalf. Their silence has
nothing do with a lack of will or words. They are simply too
busy struggling to survive.
Medicaid benefits our poorest, yet it also assists those
slightly higher on the income ladder--people like me who
would vastly prefer to be thriving without it. Many more
people than you suspect have turned to it in a time of need.
They aren't merely characters in some musical or play. Trust
me, I know. They are your friends and neighbors. They are
families whose lives have been unended by illness. This is
what happened to my family. And, with a single diagnosis, it
could be your family too.
Thank you. Thank you for writing. This is why we are here to fight.
I also heard from Kaitlyn, from Cambridge, who said the ACA has allowed her to continue pursuing her postdoctoral research. She says:
I am postdoctoral fellow at MIT, and I have a pre-existing
condition. In 2012, during my second year of grad school, I
started having debilitating pain in my abdomen. The pain was
so bad I couldn't eat or sleep, and I lost 30 pounds over two
months. The pain was so bad I couldn't wait the full 3 months
to see a specialist, and I went to the ER and finally got a
diagnosis for an autoimmune disease and began treatment.
However, my condition was so advanced that a little over a
year later I needed an emergency surgery while I was visiting
family out of state. I spent six nights in the hospital and
rang up a bill in excess of $50,000. Luckily, I was 25 and
still on my parent's insurance. Additionally, I was doubly
insured by the student health insurance from the University
of California, for which I was automatically enrolled through
my graduate program. Other than a $200 deductible, my
hospital bill was paid in full.
Now that I have a chronic illness, having quality
healthcare and regular checkups is vital to staying healthy
and productive. My medication, Humira, costs $5,000 a month
out-of-pocket, which was more than double my grad school
stipend. With insurance, I only pay $25 a month. Though
surgery helped me tame the inflation in my intestines, my
disease began to express itself as arthritis in my joints.
The pain was so bad that one Christmas I canceled my trip
home to see my family and spent the whole time alone on my
couch. I had a bad reaction to some of the medications and
became so severely anemic that I needed a blood transfusion.
Additionally, one of the medications I take causes severe
birth defects. So I needed an IUD to prevent pregnancy.
Easily, all these conditions could become overwhelmingly
expensive. But with my student health insurance through the
University of California, I could afford it. The premium was
$300 per month, part of which was covered by the university.
My medications cost $110 a month, and I had a yearly out-of-
pocket maximum of $2,000. While I didn't get my insurance
through the exchanges, the other conditions of the ACA which
determine the minimum quality of care made it possible for my
care to be affordable.
By having proper treatment and care, I can be a productive
member of society. I have received my PhD in Applied
Mathematics and my research contributes to the design of
medical devices that can be used for cancer screening. I am
able to mentor young girls and encourage them to study math
and science. And who knows--one of them may cure cancer one
day! Since I am no longer in pain and I am not in debt, I was
able to find a prestigious job after graduation. When a state
provides for the health of its people, they can thrive at
home and at work. It is not only the moral choice, but also a
good choice for the economy.
Kaitlyn, thanks for writing and thanks for being one of the big success stories under the Affordable Care Act. This is what we are fighting for tonight.
I also heard from a young woman in Somerville named Samantha. Here is what she wrote:
I've been dealing with severe mental health issues since I
was a kid. I am now 27. In that time, I have been through
numerous hospitalizations, residential treatment, day
treatment, intensive outpatient treatment, and outpatient
treatment.
When I was 18, I had to drop out of college and spent 3
months in residential treatment for my eating disorder. The
year prior, I spent 2 months in residential treatment and 6
months between day and intensive outpatient treatment, and I
had been in therapy for 4 years.
Due to Massachusetts law, I was still covered by my
parent's insurance, but the Massachusetts health care reform
didn't stop insurance companies from imposing lifetime
limits. At 18 years old, fighting for my life, I overheard my
parents discussing lifetime limits in regard to my health
care. I don't know how much all that treatment cost, or how
much of my lifetime limit I had consumed. For the next 7
years, I was in and out of treatment at various levels.
Mr. President, I ask unanimous consent to extend my time by 10 minutes, if I might, to finish my stories.
Thank you.
In 2014, when I had my own health care, I had a bad
relapse. For the first time I was paying for my own
treatment. I had health insurance through my employer that
was really good, but even with that, for 1 month of
residential treatment, 1 month of day treatment, and 3 months
of intensive outpatient, plus therapy, a nutritionist, a
psychiatrist and medication--all crucial to my recovery--my
out-of-pocket health care costs reached almost $10,000.
These days, I am much more stable and have remained in
relatively good health, but all because of the continued
support I get from my therapist, psychiatrist, and doctor. I
can only imagine how much money has been spent and how close
I'd be to my lifetime limit if those were still in place. And
of course, all that adds up to being a ``pre-existing''
condition.
The simple fact is that I would most likely be dead today
were it were not for the protections provided by the ACA, and
if I lose those protections, if I have another relapse, I
will either end up dead or unemployed and mired in debt.
Samantha, thank you for writing. Thank you for fighting. That is why we are on the floor of the Senate tonight, to continue to fight for the Affordable Care Act and to continue to fight against cuts to Medicare and Medicaid. This is what is at stake for families in Massachusetts.
As Jennifer said in her letter: This is us. This is now, and this is real. Congressman Price wants to cut more than $1 trillion from Medicare and Medicaid. But I am not giving up, because I am here to fight for Lee and Meg and Jill and Marika's baby Jack.
Congressman Price wants to rip up the behavioral health protections in the Affordable Care Act. But I am not giving up, because I am here to fight for Christine's son and Jackie and Samantha.
Congressman Price wants to get rid of the ACA's ban on discriminating against individuals with preexisting conditions. But I am not giving up, because I am here to fight for Jenny and Kaitlyn and Olivia and Denise and Jennifer.
I will fight for every one of them and for the tens of millions of people who are counting on Medicare and who are in need of Medicaid to pay nursing home bills and to help with home health care for people with disabilities and who need that Medicaid money for children with serious problems. I will
fight for every one of them. Where are three Republicans who will do the right thing and fight alongside me? That is what tonight is all about.
I yield the floor.