H.R. 1280House118th Congress (2023-2025)In Committee

Cerebral Palsy Research Program Authorization Act of 2023

Introduced March 1, 2023

AI-Generated Summary

Updated January 20, 2026 at 4:14 AM UTC

The bill creates a new federal program to fund research on cerebral palsy. It directs the Secretary of Health and Human Services, through the CDC, to conduct and support studies on diagnosis, treatment, prevention, costs, and public health surveillance, and to provide education and training. The program is funded with $5 million each year from 2024 through 2029 and applies to public and nonprofit partners involved in the research.

Key Provisions

  • Authorizes HHS/CDC to carry out cerebral palsy research via grants or contracts, focusing on diagnosis, treatment, mitigation factors, health‑care and societal costs, and public‑health surveillance.
  • Allows the Secretary to provide technical assistance to public and nonprofit entities to support the research efforts.
  • Requires evaluation of the research activities to assess effectiveness and impact on different demographic groups.
  • Appropriates $5 million annually for fiscal years 2024‑2029 to fund the program.

Legislative Activity

Stay on top of the latest movement without scrolling through every action

2 earlier actions
HouseCommittee Latest Action

Referred to the Subcommittee on Health.

March 10, 2023

View full timeline
HouseIntro Referral

Introduced in House

March 1, 2023

HouseIntro Referral

Referred to the House Committee on Energy and Commerce.

March 1, 2023

HouseCommittee

Referred to the Subcommittee on Health.

March 10, 2023

Floor Debate

22 members

What members said about H.R. 1280 on the floor

22 Democrats
Sheila Jackson Lee
Rep. Sheila Jackson LeeD-TX-18 · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman from Florida for having this Special Order Hour. What a privilege to know Donald Payne, Sr., and to know Donald Payne, Jr. I sat here tonight listening to my…

Sheila Cherfilus-McCormick
Rep. Sheila Cherfilus-McCormickD-FL-20 · Apr 30, 2024

Mr. Speaker, I ask unanimous consent that all Members have 5 legislative days to revise and extend their remarks and include any extraneous material on the subject of this Special Order hour today.…

Steven Horsford
Rep. Steven HorsfordD-NV-4 · Apr 30, 2024

Mr. Speaker, I thank my colleague, Representative Cherfilus-McCormick, for leading this very important Special Order hour. I thank all of my colleagues who are here and the assistant Democratic…

Frank Pallone, Jr.
Rep. Frank Pallone, Jr.D-NJ-6 · Apr 30, 2024

Mr. Speaker, I am honored to have an opportunity to highlight the legacy of our colleague and my friend, Donald Payne, Jr. Last week, New Jersey lost a great public servant far too soon. Many knew…

Gabe Amo
Rep. Gabe AmoD-RI-1 · Apr 30, 2024

Mr. Speaker, I join my colleagues in Congress and the Congressional Black Caucus in honoring a committed public servant and dedicated champion: Congressman Donald Payne, Jr. Mr. Speaker, I did not…

Show 8 more
Nancy Pelosi
Rep. Nancy PelosiD-CA-11 · Apr 30, 2024

Mr. Speaker, I thank Congresswoman Cherfilus-McCormick very much for bringing us together to honor this great person. Anyone who ever watches the House of Representatives knew that Mr. Payne was…

Yvette D. Clarke
Rep. Yvette D. ClarkeD-NY-9 · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman from Florida for yielding. I rise today on behalf of the people of the Ninth District of New York, the Clarke family, and myself to remember a true gentleman from…

Barbara Lee
Rep. Barbara LeeD-CA-12 · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman for yielding and for bringing us together tonight. It is hard to stand here and look over here. Where is Don? Every night, here he was speaking truth to power.…

Troy A. Carter
Rep. Troy A. CarterD-LA-2 · Apr 30, 2024

Mr. Speaker, I thank my dear friend and colleague Congresswoman Cherfilus-McCormick for yielding to me. We are here to honor the memory of a dear friend and colleague, Congressman Donald Payne, Jr.,…

Bennie G. Thompson
Rep. Bennie G. ThompsonD-MS-2 · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman from Florida (Mrs. Cherfilus-McCormick) for yielding me the time. Mr. Speaker, today, we mourn the loss of Congressman Donald Payne, Jr., a thoughtful leader, a…

Stacey E. Plaskett
Rep. Stacey E. PlaskettD-VI · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman from Florida for anchoring this time. Mr. Speaker, I am proud that we have gathered here this evening to celebrate the life and legacy of our dear friend and…

Josh Gottheimer
Rep. Josh GottheimerD-NJ-5 · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman from Florida for convening tonight's Special Order hour. Mr. Speaker, I rise tonight to honor the life and legacy of our very dear friend and colleague,…

Hakeem S. Jeffries
Rep. Hakeem S. JeffriesD-NY-8 · Apr 30, 2024

I thank the distinguished gentlewoman for yielding. It is with great sadness that we gather here today to honor the life and the leadership and legacy of Don Payne, Jr., but also celebrate that life,…

Show 9 more
Mikie Sherrill
Rep. Mikie SherrillD-NJ-11 · Apr 30, 2024

Mr. Speaker, I rise today to remember our dear friend and colleague, Donald Payne, Jr. He was a model public servant, a man who represented the best our State had to offer. From a very young age, he…

Sanford D. Bishop, Jr.
Rep. Sanford D. Bishop, Jr.D-GA-2 · Apr 30, 2024

Mr. Speaker, I thank the gentlewoman for yielding. Mr. Speaker, I rise today to honor the life of a remarkable man, my colleague and dear friend, Donald Payne, Jr. Donald was a kindhearted public…

Joe Neguse
Rep. Joe NeguseD-CO-2 · Apr 30, 2024

Mr. Speaker, I thank my colleague from Florida (Mrs. Cherfilus-McCormick) for her leadership. I also thank the chairman of the Congressional Black Caucus, Chairman Horsford, and all of my colleagues…

Robert Menendez
Rep. Robert MenendezD-NJ-8 · Apr 30, 2024

Mr. Speaker, I thank my colleague for yielding. I rise today to pay tribute to the life and legacy of my friend and colleague, Congressman Donald Payne, Jr. Congressman Payne was a fierce advocate…

Ayanna Pressley
Rep. Ayanna PressleyD-MA-7 · Apr 30, 2024

Mr. Speaker, I rise today to honor the life of our beloved colleague, Donald M. Payne, Jr., of New Jersey's 10th District. He was born into a legacy of service but forged his own path. He was warm,…

Andy Kim
Rep. Andy KimD-NJ-3 · Apr 30, 2024

Mr. Speaker, I rise today to honor the memory of my colleague and my friend, Congressman Donald Payne, Jr. It is difficult standing in this Chamber knowing that we will never see Donald walk in here…

Maxine Waters
Rep. Maxine WatersD-CA-43 · Apr 30, 2024

Mr. Speaker, it is difficult for me to stand here this evening as I mourn the loss of my dear friend, Donald Payne, Jr. In my own way, I adopted Donald Jr. and he accepted me as his other mother. I…

Ilhan Omar
Rep. Ilhan OmarD-MN-5 · Apr 30, 2024

Mr. Speaker, it is an honor to join my colleagues to honor the life and legacy of the late Congressman Donald Payne, Jr. Donald was one of the first people to say hello to me. I recognized his name…

Bonnie Watson Coleman
Rep. Bonnie Watson ColemanD-NJ-12 · Apr 30, 2024

Mr. Speaker, first, let me thank the Congresswoman for affording me this opportunity. Mr. Speaker, I am heartbroken by the passing of my dear friend, Donald Payne, Jr. Like myself, Don came from a…

Bill Text

Latest available legislative text

Reading Mode
Latest
Introduced in HouseIssued March 1, 2023

I

118th CONGRESS

1st Session

H. R. 1280

IN THE HOUSE OF REPRESENTATIVES

March 1, 2023

Mr. Cohen (for himself, Mr. Fitzpatrick, and Mr. Cleaver) introduced the following bill; which was referred to the Committee on Energy and Commerce

A BILL

To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research related to cerebral palsy, and for other purposes.

1.

Short title

This Act may be cited as the Cerebral Palsy Research Program Authorization Act of 2023.

2.

Findings

Congress finds the following:

(1)

Cerebral palsy is the most common motor disability in children, affecting more than 1,000,000 Americans, 1 in 345 children, and over 17,000,000 people worldwide.

(2)

In the United States, more than 10,000 babies are diagnosed with cerebral palsy each year.

(3)

Cerebral palsy is a broad group of disorders disrupting a person’s ability to move, sit, stand, walk, talk, and use their hands.

(4)

In more than 80 percent of cases, the cause of cerebral palsy is unknown.

(5)

Seventy-five percent of individuals with cerebral palsy also have 1 or more additional developmental disabilities including epilepsy, intellectual disabilities, communication problems, learning and attention disorders, chronic pain, autism, hearing disorders, and visual impairments or blindness.

(6)

Children with cerebral palsy are more likely to die from the flu and related viruses, including COVID–19, than children without neurologic disorders.

(7)

There is no consensus of best practices for a person with cerebral palsy at the time of diagnosis or through the lifespan.

(8)

It is estimated that the lifetime care and medical costs for all people with cerebral palsy who were born in 2000 alone will total more than $13,500,000,000. The loss of productivity and lost wages of the individual with cerebral palsy and their family members is more than $35,000,000,000.

(9)

There is no known cure for cerebral palsy, and in most cases, it is not preventable.

3.

Cerebral palsy research

Title III of the Public Health Service Act is amended by inserting after section 317C of such Act (42 U.S.C. 247b–4) the following new section:

317C–1.

Cerebral palsy research

(a)

In general

The Secretary, acting through the Director of the Centers for Disease Control and Prevention, and in consultation with other Federal agencies and partners, shall carry out (directly or through grants or contracts) a program of research related to cerebral palsy, including—

(1)

research on—

(A)

the most promising avenues of cerebral palsy diagnosis and treatment;

(B)

factors that may mitigate the prevalence of cerebral palsy; and

(C)

the health care and societal costs of cerebral palsy;

(2)

public health surveillance; and

(3)

other research that the Director of the Centers for Disease Control and Prevention determines to be appropriate to provide education and training for health professionals and the general public for purposes of diagnosing, treating, and explaining the causes, prevalence, and lifelong effects of cerebral palsy.

(b)

Technical assistance

The Secretary may (directly or through grants or contracts) provide technical assistance to public and nonprofit private entities in furtherance of research under this section.

(c)

Evaluations

The Secretary shall (directly or through grants or contracts) provide for the evaluation of activities under subsection (a) in order to determine the extent to which such activities have been effective, including evaluation of the effects of such activities on various demographic populations.

(d)

Authorization of appropriations

To carry out this section, there is authorized to be appropriated $5,000,000 for each of fiscal years 2024 through 2029.

.