S.Res. 794Senate118th Congress (2023-2025)Passed Congress

A resolution designating September 25, 2024, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure.

Introduced August 1, 2024

AI-Generated Summary

Updated January 20, 2026 at 6:22 PM UTC

The Senate resolution designates September 25, 2024 as National Ataxia Awareness Day. It seeks to raise public and health‑care‑professional awareness of ataxia, improve diagnosis and access to care, and promote research toward effective treatments and a cure. The measure applies to individuals in the United States living with ataxia, their families, and encourages state, territorial and local governments to support these goals.

Key Provisions

  • Recognizes the need for greater public awareness of ataxia.
  • Designates September 25, 2024 as National Ataxia Awareness Day.
  • Supports three goals: raise awareness of causes and symptoms, improve diagnosis and care access, and accelerate research for treatments and a cure.
  • Acknowledges the challenges faced by U.S. individuals with ataxia and their families.
  • Encourages states, territories, and localities to support the objectives of National Ataxia Awareness Day.

Legislative Activity

Stay on top of the latest movement without scrolling through every action

3 earlier actions
SenateFloor Latest Action

Resolution agreed to in Senate without amendment and with a preamble by Unanimous Consent. (consideration: CR S5946; text: 08/01/2024 CR S5786-5787)

September 10, 2024

View full timeline
SenateIntro Referral

Introduced in Senate

August 1, 2024

SenateIntro Referral

Referred to the Committee on the Judiciary.

August 1, 2024

SenateCommittee

Senate Committee on the Judiciary discharged by Unanimous Consent.

September 10, 2024

SenateFloor

Resolution agreed to in Senate without amendment and with a preamble by Unanimous Consent. (consideration: CR S5946; text: 08/01/2024 CR S5786-5787)

September 10, 2024

Floor Debate

1 member

What members said about S.Res. 794 on the floor

1 Democrat
Charles E. Schumer
Sen. Charles E. SchumerD-NY · Sep 10, 2024

Mr. President, I ask unanimous consent that the Committee on the Judiciary be discharged from further consideration and the Senate now proceed to S. Res. 794. I ask unanimous consent that the…

Bill Text

2 versions available

Reading Mode
Latest
Agreed to SenateIssued September 10, 2024

III

118th CONGRESS

2d Session

S. RES. 794

IN THE SENATE OF THE UNITED STATES

August 1, 2024

Mrs. Hyde-Smith (for herself, Mr. Murphy, Mrs. Capito, and Ms. Stabenow) submitted the following resolution; which was referred to the Committee on the Judiciary

September 10, 2024

Committee discharged; considered and agreed to

RESOLUTION

Designating September 25, 2024, as National Ataxia Awareness Day, and raising awareness of ataxia, ataxia research, and the search for a cure.

Whereas ataxia is a clinical manifestation indicating degeneration or dysfunction of the brain that negatively affects the coordination, precision, and accurate timing of physical movements;

Whereas ataxia can strike individuals of all ages, including children;

Whereas the term ataxia is used to classify a group of rare, inherited neurodegenerative diseases including—

(1)

ataxia telangiectasia;

(2)

episodic ataxia;

(3)

Friedreich’s ataxia; and

(4)

spinocerebellar ataxia;

Whereas there are many known types of genetic ataxia, but the genetic basis for ataxia in some patients is still unknown;

Whereas all inherited ataxias affect fewer than 200,000 individuals in the United States and, therefore, are recognized as rare diseases under the Orphan Drug Act (Public Law 97–414; 96 Stat. 2049);

Whereas some genetic ataxias are inherited in an autosomal dominant manner while others are inherited in an autosomal recessive manner;

Whereas ataxia symptoms can also be caused by noninherited health conditions and other factors, including stroke, tumor, cerebral palsy, head trauma, multiple sclerosis, alcohol addiction or misuse, and certain medications;

Whereas ataxia can present physical, psychological, and financial challenges for patients and their families;

Whereas symptoms and outcomes of ataxia progress at different rates and can include—

(1)

lack of coordination;

(2)

slurred speech;

(3)

cardiomyopathy;

(4)

scoliosis;

(5)

eye movement abnormalities;

(6)

difficulty walking;

(7)

tremors;

(8)

trouble eating and swallowing;

(9)

difficulties with other activities that require fine motor skills; and

(10)

death;

Whereas many patients with ataxia require the use of assistive devices, such as wheelchairs and walkers, to aid in their mobility, and many individuals with ataxia may need physical and occupational therapy;

Whereas few treatments and no cures have been approved for ataxia; and

Whereas clinical research to develop safe and effective treatments for ataxia is ongoing: Now, therefore, be it

That the Senate—

(1)

recognizes the need for greater public awareness of ataxia;

(2)

designates September 25, 2024, as National Ataxia Awareness Day;

(3)

supports the goals of National Ataxia Awareness Day, which are—

(A)

to raise awareness of the causes and symptoms of ataxia among the general public and health care professionals;

(B)

to improve diagnosis of ataxia and access to care for patients affected by ataxia; and

(C)

to accelerate ataxia research, including on safe and effective treatment options and, ultimately, a cure;

(4)

recognizes the individuals in the United States who face challenges due to having ataxia, and the families of those individuals; and

(5)

encourages States, territories, and localities to support the goals of National Ataxia Awareness Day.