Mr. Speaker, I move to suspend the rules and pass the bill (H.R. 2019) to eliminate taxpayer financing of presidential campaigns and party conventions and reprogram savings to provide for a 10-year pediatric research initiative through the…
Mr. Speaker, I move to suspend the rules and pass the bill (H.R. 2019) to eliminate taxpayer financing of presidential campaigns and party conventions and reprogram savings to provide for a 10-year pediatric research initiative through the Common Fund administered by the National Institutes of Health, and for other purposes, as amended.
Mr. Speaker, I ask unanimous consent that all Members may have 5 legislative days to revise and extend their remarks and insert extraneous materials in the Record on the bill.
Mr. Speaker, I yield myself 3 minutes.
Mr. Speaker, I rise today in support of the Gabriella Miller Kids First Research Act of 2013. H.R. 2019, authored by my colleague, Gregg Harper, is a bill that will help countless kids and families across the country.
The Gabriella Miller Kids First Research Act would prioritize funding for the research of pediatric diseases and disorders such as cancer, autism, and Fragile X. It would eliminate taxpayer financings of party conventions, political money, and use these funds instead to expand pediatric research at the NIH Common Fund through their common fund. This bill certainly does put kids first.
You know, Gabriella Miller was a little warrior in the battle against childhood cancer. At only 10 years of age, she had the courage miles beyond her years. A frying pan and a walnut is all you need to understand her brave outlook on life.
When she was diagnosed with brain cancer, she was told that the size of that tumor was about like a walnut; and from then on, Gabriella traveled with her trusty frying pan squashing countless walnuts along the way all over the world.
That is the kind of courage and outlook on life that she had. Advancing health research for millions of young patients who suffer from rare and genetic diseases has got to be a priority. While we have made great strides in the country in finding cures and treatments, we certainly have a great amount of work to do. Included in the work is pushing for research that is going to help uncover cures for pediatric diseases.
In order for clinical trials and other advancements to meet their full potential, adequate resources have got to be directed for pediatric research. The legislation is an example of how much can be accomplished by ending wasteful spending and redirecting those funds towards national priorities like pediatric research.
This effort is going to help families like the Kennedys in Mattawan, Michigan, my constituents. Eric and Sarah have two wonderful little girls, Brooke and Brielle, who have the rare disease called spinal muscular atrophy. Those two little angels, who are fighting SMA with the same vigor and sunny outlook exhibited by Gabriella, are decorated little generals in the effort to boost research for rare diseases and serve as inspiration for every one of us.
The sad reality is that it is often difficult to conduct research into rare diseases due to the small number of individuals with those diseases; but we are working to change that--yes, we are--and provide families with greater hope for a cure and in advances of treatment.
This bill has over 150 cosponsors and is supported by a long list of patient advocacy groups including Autism Speaks, Juvenile Diabetes Research Foundation, Leukemia and Lymphoma Society, and FightSMA.
I wholeheartedly agree with the bill's Democrat sponsor, Peter Welch from Vermont, who recently said last night on CNN:
Can we just put the battle axes down for a while and take a
step forward?
He thinks we can. We need to.
With all of us today with so many diseases, we need to pass this bill.
I reserve the balance of my time.
Angelman Syndrome Foundation,
Aurora, IL, July 5, 2013.
Hon. Eric Cantor,
Majority Leader, House of Representatives,United States
Capitol, Washington, DC.
Hon. Gregg Harper,
House of Representatives, Cannon House Office Building,
Washington, DC.
Dear Leader Cantor and Congressman Harper: On behalf of the
Angelman Syndrome Foundation, ASF, I write in strong support
for H.R. 2019, the Kids First Research Act. This important
legislation will
expand pediatric medical research activities at the National
Institutes of Health, NIH, by approximately $130 million.
Pediatric research should be a national priority, and ASF
applauds Congressman Harper for his leadership on this issue.
This legislation has the potential to develop treatments and
unlock the cure for thousands of impacted children, including
those with Angelman Syndrome.
Angelman syndrome is a single-gene neurodevelopmental
disorder that is related to autism. Continued research for
pediatric neurodevelopmental disorders, such as Angelman
syndrome, will lead to effective treatments that will help
combat the autism epidemic in the U.S. The Angelman Syndrome
Foundation's mission is to advance the awareness and
treatment of Angelman syndrome through education and
information, research, and support for individuals with
Angelman syndrome, their families and other concerned
parties. We exist to give all of them a reason to smile, with
the ultimate goal of finding a cure.
On behalf of ASF, thank you again for your leadership and
for supporting the Kids First Research Act.
Sincerely,
Eileen Braun,
Executive Director.
Mr. Speaker, I yield 2 minutes to my friend from Virginia (Mr. Wolf), a member of the Appropriations Committee.
Mr. Speaker, I yield myself 30 seconds.
Mr. Speaker, I just want to remind my friends that this is bipartisan legislation. I congratulate Mr. Welch for being the lead Democratic sponsor.
I just want to say, too, in terms of looking at the money, the bill itself says:
All amounts in each account maintained for the national
committee of a major party or minor party under this section
shall be transferred to a fund in the Treasury to be known as
the ``10-Year Pediatric Research Initiative Fund,'' which
shall be available only for the purpose provided in section
402A(a)2 of the Public Health Service Act, and only to the
extent and in such amounts as are provided in advance in
appropriations Acts.
Tell me how to write it tougher. We did it.
I yield 2 minutes to the gentleman from California, (Mr. McCarthy), the majority whip.
Mr. Speaker, I yield 1 minute to the gentleman from Virginia (Mr. Cantor), majority leader of the House.
Mr. Speaker, I yield 3 minutes to the gentleman from Mississippi (Mr. Harper), the sponsor of the bill.
Mr. Speaker, at this point, I yield 1 minute to the gentleman from New Jersey (Mr. Lance), a cosponsor of the bill and a member of the Energy and Commerce Committee.
Mr. Speaker, at this point, I yield 3 minutes to the gentleman from Oklahoma (Mr. Cole), a member of the Appropriations Committee and a cosponsor of the bill.
Mr. Speaker, I yield 2 minutes to the gentleman from Georgia (Mr. Collins), a cosponsor of the bill.
Mr. Speaker, I yield myself the balance of my time.
Mr. Speaker, I did appreciate the nice words that were directed to me by my friend, Mr. Hoyer, in support of the NIH. And I will remind those that don't know that I was the Republican lead a number of years ago with Mr. Waxman and Mr. McCain and Mr. Wellstone to double the money for the NIH, one of the most significant things that this Congress, I think, has ever done.
But I have got to say, I simply don't understand the opposition to this bill. Yes, I am absolutely supportive of the NIH bill, and will continue to do that, and more money. The Ryan-Murray budget agreement which we will be voting on tomorrow, I will be supporting it. It includes programs like the NIH, which I am told will be increased about $23 billion, or 2 percent over the current levels.
In today's ``The Hill,'' there is a full-page ad offered by First Focus Campaign for Children. It says, ``Thank you for making children your First Focus,'' and it lists maybe as many as 80 to 100 Members, including many of those who spoke today against the bill, but it says, ``Thank you for making children your First Focus.'' That is what this bill is about.
It is not just a simple authorization. Yes, we do pass those from time to time. This actually directs. The language of the bill says, ``shall be transferred.'' Shall. It doesn't use the word ``may,'' ``may be,'' whatever. ``Shall be transferred to a fund in the Treasury to be known as the `10-Year Pediatric Research Initiative Fund' which shall''--not may--``which shall be available only for the purpose provided in . . . the Public Health Service Act, and only to the extent and in such amounts as are provided in advance in appropriation Acts.''
We made it pretty tight. The authors of this bill made it pretty tight. Tell me how we can make it tighter.
I yield to the gentleman from Maryland.
Well, to me, we use ``shall'' a number of different times.
Well, that is what we do. We take money.
The money comes from the political conventions. I mean, that is the direct offset that is used.
All of us cry for these families that lose these beautiful little kids. This bill, if it passes and gets enacted, will provide money to help families like Gabriella's, who lost a beautiful little girl, who really used the last year of her life to promote a fund like this and work with the NIH. That is what this should be all about, and I commend Mr. Cantor and others.
The rule that we hear is you have to find an offset when you increase spending. That is what this bill does. And it finds an offset that I think many of us could accept to actually fund the program and direct the dollars to a fund within the NIH to make sure that it works. That is what we want to have happen.
I would urge my colleagues to vote for this bill. Yes, it is under suspension, no amendments. We need a two-thirds vote, so I ask my colleagues to support this bill.
I yield back the balance of my time.