Patient Navigator Outreach And Chronic Disease Prevention Act Of 2004
Mr. Speaker, I want to thank my colleague from Ohio (Mr. Brown) as well as the gentleman from Michigan (Mr. Dingell), ranking member on the Committee on Energy and Commerce, as well as the gentleman from Texas (Mr. Barton) and the…
Mr. Speaker, I want to thank my colleague from Ohio (Mr. Brown) as well as the gentleman from Michigan (Mr. Dingell), ranking member on the Committee on Energy and Commerce, as well as the gentleman from Texas (Mr. Barton) and the gentleman from Florida (Mr. Bilirakis), chairman on the Subcommittee on Health, and all their staff for bringing us here today. I want to particularly thank my good friend and lead cosponsor from Ohio (Ms. Pryce) and her staff who have been actively engaged in this effort and have been instrumental in getting the bill to the floor today. And, of course, the gentlewoman from Ohio's own personal experiences and her family with the questions of cancer have made her such a powerful advocate in this regard.
This is truly a bipartisan effort and a case study in how, if we choose to work together across the aisle, we can really make a difference. I began working on this legislation several years ago to address the health disparities I saw in my district, a true melting pot of America with a very significant Hispanic population. There have been many people involved behind the scenes in this effort that I want to take the opportunity to thank.
The first person I spoke to about this issue was David Woodmansee, who is the Northeast regional representative for the American Cancer Society. The second person I met with was Licy Do Canto who was with the American Cancer Society and has continued the fight for patient navigators at the National Association of Community Health Centers. Dave and Licy, along with the help of ACS employees, were instrumental in helping us to take a concept such as patient navigation and turn it into a legislative solution for improving health outcomes among all populations, particularly underserved populations. I also want to thank Karissa Willhite, the Democratic Caucus policy director, for her untiring efforts to achieve the success we expect to have today. And we cannot talk about patient navigators without thanking three doctors, Drs. Harold Freeman, Elmer Huerta and Gil Friedell, who have been pioneers in creating patient navigator programs that can be replicated across the country, which is exactly what we are doing today.
There is no question that we as a Nation must do more to improve health outcomes and that can only be done when we start at the bottom and bring those with the greatest disparities up out of despair. Reducing health disparities has been a much-talked-about goal, but we cannot achieve better health outcomes without action. We cannot just talk about the problem. We have to take action to end the problem.
The patient navigator bill is an effort to do just that. It will ensure that all Americans, regardless of income, race, ethnicity, language or geography will have access to prevention screening and treatment, and that they will have an advocate at their side helping them navigate through today's complicated health care system.
The bill addresses what I believe are the root causes of health disparities in minority and underserved communities. That is, lack of access to health care, particularly prevention and early detection. The bottom line is, the only way to stay healthy is to see a doctor when you are healthy. Unfortunately, patients in health disparity communities are less likely to receive early screening and detection, so their disease is found at a much later stage and they have less chance of survival. That is why we are here today, to give those people the chance they deserve for a long, healthy life.
The patient navigator bill does this by replicating the successful models developed by Drs. Freeman, Huerta and Friedell in a national demonstration project. It focuses on outreach and prevention through community health centers, rural health clinics, Indian health clinics and cancer clinics. And it does so by providing patient navigator services and outreach in health disparity communities to encourage people to get screened early so that they can receive the care they need. Patient navigators educate and empower patients, serving as their advocates in navigating the health care system.
In addition to having visited both Dr. Freeman's program in Harlem and Dr. Huerta's program here in Washington, my constituents in New Jersey and I have seen firsthand the difference patient navigators can make in a community. I was able to secure funding for a 1-year demonstration project at a community health center in Jersey City, New Jersey. The program has screened 842 people and has a caseload of about 140 patients who were identified
through these screenings with abnormal findings and are currently benefiting from the help of the patient navigator in finding follow-up care and treatment.
Before I close, I just want to share a story about Hazel Hailey, one of the patient navigators at this center and her daughter, Robin Waiters. Robin, who was only 36 years old, suffered severe stomach pains for 2 years and refused to see a doctor, despite her mother's pleas for her to seek medical care. Finally, she had no choice but to go see a doctor. Tragically, 3 months later, Robin died from colorectal cancer. Her mother, Hazel, who is now a patient navigator, tells us about her daughter's last request. She made her mom promise to tell all of her friends, family and everyone she could ``that if your body is trying to tell you something, listen to it. You could possibly save your life.'' Hazel quotes her daughter as saying, ``I am dying because I chose not to get help. Fear set in, and I lost out on life.''
Hazel is fulfilling her promise to her daughter as a patient navigator, working every day to ensure that what happened to her daughter does not happen to other families. That is why we are here today, to ensure that the Hazels across the country have the tools they need to educate and empower people about the importance of early detection screening and to help them navigate the complexities of the health care system so that they can get the treatment and follow-up care they need.
Again, I want to thank my colleague from Ohio (Ms. Pryce) for all of her work on this effort as well as all of those who have worked behind the scenes to make this concept a reality. We have come too far and are too close to simply let the issue die at the end of this Congress, so I call upon our colleagues in the other body to join us in making this bill a reality this year. There is simply too much at stake if we do not act.