Mr. Speaker, Don Berwick was Acting Administrator of the Centers for Medicare and Medicaid Services for President Obama. Unfortunately, the minority party in the U.S. Senate was able to prevent him from being confirmed into the post and so…
Mr. Speaker, Don Berwick was Acting Administrator of the Centers for Medicare and Medicaid Services for President Obama. Unfortunately, the minority party in the U.S. Senate was able to prevent him from being confirmed into the post and so he was forced to leave at the end of 2011.
I've copied below a recent commencement address at Harvard Medical School by Dr. Berwick.
If Dr. Berwick doesn't embody the spirit we want for our medical professionals--as well as our public servants--I don't know who does.
I urge my colleagues to read this speech. Driving people like Dr. Berwick out of public service is not something of which anyone should be proud.
[From JAMA, June 27, 2012]
To Isaiah
(By Donald M. Berwick, MD, MPP)
THANK YOU FOR LETTING ME SHARE THIS GLORIOUS DAY with you
and your loved ones. Feel good. Feel proud. You've earned it.
In preparation for today, I asked your dean of students
what she thinks is on your mind. So, she asked you. The word
you used--many of you--was this one: Worried. You're worried
about the constant change around you, uncertain about the
future of medicine and dentistry. Worried about whether you
can make a decent living. You've boarded a boat, and you
don't know where it's going.
I can reassure you. You've made a good choice--a
spectacularly good choice. The career you've chosen is going
to give you many moments of poetry. My favorite is the moment
when the door closes--the click of the catch that leaves you
and the patient together in the privacy--the sanctity--of the
helping relationship. Doors will open too. You'll find ways
to contribute to progress that you cannot possibly anticipate
now, any more than I could have dreamed of standing here when
I was sitting where you are 40 years ago.
But look, I won't lie; I'm worried too. I went to
Washington to lead the Centers for Medicare & Medicaid
Services, full of hope for our nation's long-overdue journey
toward making health care a human right here, at last. In
lots of ways, I wasn't disappointed. I often saw good
government and the grandeur of democracy--both alive, even if
not at the moment entirely well.
But, like you, I also found much that I could not control--
a context torn apart by antagonisms--too many people in
leadership, from whom we ought to be able to expect
more, willing to bend the truth and rewrite facts for their
own convenience. I heard irresponsible, cruel, baseless
rhetoric about death panels silence mature, compassionate,
scientific inquiry into the care we all need and want in the
last stages of our lives. I heard meaningless, cynical
accusations about rationing repeated over and over again by
the same people who then unsheathed their knives to cut
Medicaid. I watched fear grow on both sides of the political
aisle--fear of authentic questions, fear of reasoned debate,
and fear of tomorrow morning's headlines--fear that stifled
the respectful, civil, shared inquiry upon which the health
of democracy depends.
And so, HSDM and HMS Class of 2012, I'm worried too. I too
wonder where this boat is going.
There is a way to get our bearings. When you're in a fog,
get a compass. I have one--and you do too. We got our compass
the day we decided to be healers. Our compass is a question,
and it will point us true north: How will it help the
patient?
This patient has a name. It is ``Isaiah.'' He once lived.
He was my patient. I dedicate this lecture to him.
You will soon learn a lovely lesson about doctoring; I
guarantee it. You will learn that in a professional life that
will fly by fast and hard, a hectic life in which thousands
of people will honor you by bringing to you their pain and
confusion, a few of them will stand out. For reasons you will
not control and may never understand, a few will hug your
heart, and they will become for you touch points--signposts--
like that big boulder on that favorite hike that, when you
spot it, tells you exactly where you are. If you allow it--
and you should allow it--these patients will enter your soul,
and you will, in a way entirely right and proper, love them.
These people will be your teachers.
Isaiah taught me. He was 15 when I met him. It was 1984,
and I was the officer of the day--the duty doctor in my
pediatric practice at the old Harvard Community Health Plan.
My nurse practitioner partner pointed to an exam room. ``You
better get in there,'' she said. ``That kid is in pain.''
He was in pain. Isaiah was a tough-looking, inner-city kid.
I would have crossed the street to avoid meeting him alone on
a Roxbury corner at night. I'm not proud of that fact, but I
admit it. But here on my examining table he was writhing,
sweating in pain. He was yelling obscenities at the air, and,
when I tried to examine him, he yelled them at me. ``Don't
you f-----g touch me! Do something!''
I didn't figure out what was going on that afternoon.
Nothing made sense. I diagnosed, illogically, a back sprain,
and I sent him home on analgesics. Then, that evening, the
report came: an urgent call from the lab. Isaiah didn't have
a back sprain; he had acute lymphoblastic leukemia. And we
didn't have his phone number.
The police helped track him down that night, to a lonely
three-decker, third floor, a solitary house in a weedy lot on
Sheldon Street in the heart of Roxbury. Isaiah lived there
with his mother, brothers, and his mother's foster children.
What followed was the best of care . . . the glory of
biomedical science came to Isaiah's service. Chemotherapy
started, and he went predictably into remission. But we knew
that ALL in a black teenager behaves badly. Unlike in younger
kids, cure was unlikely. He would go into remission for a
while, but the cancer would come back and it would kill him.
Three years later, he relapsed.
I drove to his apartment one evening in 1987 and sat with
Isaiah and his graceful, dignified mother around a table with
a plastic red-checkered tablecloth and explained the only
option we knew for possible cure--a bone marrow transplant,
not when he felt sick, but now, at the first sign of relapse,
when he was still feeling fine. He was feeling fine, and I
was there to propose treatment that might kill him.
They didn't hesitate. Isaiah wanted to live. He got his
transplant, from his brother. His course was stormy,
admission after admission followed, then chronic
complications of his transplant--diabetes and asthma. His
Children's Hospital medical record that year took up five
four-inch-thick volumes. But he got through. Isaiah was
cured.
We became very close, Isaiah and I, through this time and
for years after--long conversations about his life, his
hopes, his worries. He always asked me about my kids. And his
mother, close, as well. An angel--a tough angel raised by her
sharecropper grandfather on a North Carolina farm, who read
Isaiah the not act when she had to and who fiercely protected
him--and who, during the darkest times of his course,
continued to tend her ten foster children, as well as her
own.
I came to know Isaiah well, but it wouldn't be quite right
to call us friends--our worlds were too far apart--different
galaxies. But my respect and affection for Isaiah grew and
grew. His courage. His insight. His generosity.
But there is more to tell.
Isaiah smoked his first dope at age 5. He got his first gun
before 10, and, by 12, he had committed his first armed
robbery; he was on crack at 14. Even on chemotherapy, he was
in and out of police custody. For months after his transplant
he tricked me into extra prescriptions for narcotics, which
he hoarded and probably sold. Two of his five brothers were
in jail--one for murder; and, two years into Isaiah's
treatment, a third brother was shot dead--a gun blast through
the front door--in a drug dispute.
Isaiah didn't finish school, and he had no idea of what to
do for legitimate work. He got and lost job after job for not
showing up or being careless. His world was the street corner
and his horizon was only one day away. He saw no way out. He
hated it, but he saw no way out. He once told me that he
thought his leukemia was a blessing, because at least while
he was in the hospital, he couldn't be on the streets.
And Isaiah died. One night, 18 years after his leukemia was
cured, at 37 years of age, they found him on a street corner,
breathing but brain-dead from a prolonged convulsion from
uncontrolled diabetes and even more uncontrolled despair.
Isaiah tried to phone me just before that fatal convulsion.
He had my home number, and I still have the slip of paper on
which my daughter wrote, ``Isaiah called. Please call him
back.'' I never did. He would have said, ``Hi, Dr Berwick.
It's Isaiah. I'm really sick. I can't take it. I don't know
what to do. Please help me.'' Because that is what he often
said.
Isaiah spent the last two years of his life in a vegetative
state in a nursing home where I sometimes visited him. At his
funeral, his family asked me to speak, and I could think of
nothing to talk about except his courage.
Isaiah, my patient. Cured of leukemia. Killed by
hopelessness.
I bring Isaiah today as my witness to two duties; you have
both. It's where your compass points.
First, you will cure his leukemia. You will bring the
benefits of biomedical science to him, no less than to anyone
else. Isaiah's poverty, his race, his troubled life-line--not
one of these facts or any other fact should stand in the way
of his right to care--his human right to care. Let the
Supreme Court have its day. Let the erratics and vicissitudes
of politics play out their careless games. No matter. Health
care is a human right; it must be made so in our nation; and
it is your duty to make it so. Therefore, for your patients,
you will go to the mat, and you will not lose your way. You
are a physician, and you have a compass, and it points true
north to what the patient needs. You will put the patient
first.
But that is not enough. Isaiah's life and death testify to
a further duty, one more subtle--but no less important. Maybe
this second is not a duty that you meant to embrace; you may
not welcome it. It is to cure, not only the killer leukemia;
it is to cure the killer injustice.
Antoine de Saint-Exupery wrote, ``To become a man is to be
responsible; to be ashamed of miseries that you did not
cause.'' I say this: To profess to be a healer, that is, to
take the oath you take today, is to be responsible; to be
ashamed of miseries that you did not cause. That is a heavy
burden, and you did not ask for it. But look at the facts.
In our nation--in our great and wealthy nation--the wages
of poverty are enormous. The proportion of our people living
below the official poverty line has grown from its low point
of 11% in 1973 to more than 15% today; among children, it is
22%--16.4 million; among black Americans, it is 27%. In 2010,
more than 46 million Americans were living in poverty; 20
million, in extreme poverty--incomes below $11 000 per year
for a family of four. One million American children are
homeless. More people are poor in the United States today
than at any other time in our nation's history; 1.5 million
American households, with 2.8 million children, live here on
less than $2 per person per day. And 50 million more
Americans live between the poverty line and just 50% above
it--the near-poor, for whom, in the words of the Urban
Institute, ``The loss of a job, a cut in work hours, a
serious health problem, or a rise in housing costs can
quickly push them into greater debt, bankruptcy's brink, or
even homelessness.'' For the undocumented immigrants within
our borders, it's even worse.
For all of these people, our nation's commitment to the
social safety net--the portion of our policy and national
investment that reaches help to the disadvantaged--is life's
blood. And today that net is fraying--badly. In 2010, 20
states eliminated optional Medicaid benefits or decreased
coverage. State Social Services Block Grants and Food Stamps
are under the gun. Enrollment in the TANF program--Temporary
Assistance to Needy Families--has lagged far behind the need.
Let me be clear: the will to eradicate poverty in the United
States is wavering--it is in serious jeopardy.
In the great entrance hall of the building where I worked
at CMS--the Hubert Humphrey Building, headquarters of the
Department of Health and Human Services--are chiseled in
massive letters the words of the late Senator Humphrey at the
dedication of the building in his name. He said, ``The moral
test of government is how it treats people in the dawn of
life, the children, in the twilight of life, the aged, and in
the shadows of life, the sick, the needy, and the
handicapped.''
This is also, I believe, the moral test of professions.
Those among us in the shadows--they do not speak, not loudly.
They do not often vote. They do not contribute to political
campaigns or PACs. They employ no lobbyists. They write no
op-eds. We pass by their coin cups outstretched, as if
invisible, on the corner as we head for Starbucks; and
Congress may pass them by too, because they don't vote, and,
hey, campaigns cost money. And if those in power do not
choose of their own free will to speak for them, the silence
descends.
Isaiah was born into the shadows of life. Leukemia could
not overtake him, but the shadows could, and they did.
I am not blind to Isaiah's responsibilities; nor was he. He
was embarrassed by his failures; he fought against his
addictions, his disorganization, and his temptations. He
tried. I know that he tried. To say that the cards were
stacked against him is too glib; others might have been able
to play his hand better. I know that; and he knew that.
But to ignore Isaiah's condition not of his choosing, the
harvest of racism, the frailty of the safety net, the
vulnerability of the poor, is simply wrong. His survival
depended not just on proper chemotherapy, but, equally, on a
compassionate society.
I am not sure when the moral test was put on hold; when it
became negotiable; when our nation in its political discourse
decided that it was uncool to make its ethics explicit and
its moral commitments clear--to the people in the dawn, the
twilight, and the shadows. But those commitments have never
in my lifetime been both so vulnerable and so important.
You are not confused; the world is. You need not forget
your purpose, even if the world does. Leaders are not leaders
who permit pragmatics to quench purpose. Your pur pose is to
heal, and what needs to be healed is more than Isaiah's bone
marrow; it is our moral marrow--that of a nation founded on
our common humanity. My brother, a retired schoolteacher,
tells me that he always gets goose bumps when he reads this
phrase: ``We, the people . . . We--you, and me, and Isaiah--
inclusive.
It is time to recover and celebrate a moral vocabulary in
our nation--one that speaks without apology or hesitation of
the right to health care--the human right--and, without
apology or hesitation, of the absolute unacceptability of the
vestiges of racism, the violence of poverty, and blindness to
the needs of the least powerful among us.
Now you don your white coats, and you enter a career of
privilege. Society gives you rights and license it gives to
no one else, in return for which you promise to put the
interests of those for whom you care ahead of your own. That
promise and that obligation give you voice in public
discourse simply because of the oath you have sworn. Use that
voice. If you do not speak, who will?
If Isaiah needs a bone marrow transplant, then, by the oath
you swear, you will get it for him. But Isaiah needs more. He
needs the compassion of a nation, the generosity of a
commonwealth. He needs justice. He needs a nation to recall
that, no matter what the polls say, and no matter what
happens to be temporarily convenient at a time of political
combat and economic stress, that the moral test transcends
convenience. Isaiah, in his legions, needs those in power--
you--to say to others in power that a nation that fails to
attend to the needs of those less fortunate among us risks
its soul. That is your duty too.
This is my message from Isaiah's life and from his death.
Be worried, but do not for one moment be confused. You are
healers, every one, healers ashamed of miseries you did not
cause. And your voice--every one--can be loud, and forceful,
and confident, and your voice will be trusted. In his honor--
in Isaiah's honor--please, use it.
Donald M. Berwick, MD, MPP