Thank you very much, Mr. President. Mr. President, I understand that the Republicans introduced the wrong tax bill yesterday. I think they got it right. I think the tax bill is the wrong bill. I don't think it was a drafting problem. I…
Thank you very much, Mr. President.
Mr. President, I understand that the Republicans introduced the wrong tax bill yesterday. I think they got it right. I think the tax bill is the wrong bill. I don't think it was a drafting problem. I think it is an economic problem. I don't think this tax bill is the right solution to what our economy is facing. The tax bill is the wrong bill. It is the wrong bill because it does not create jobs; it adds to our structural deficit; and it doesn't deal with the other economic issues facing our country.
I would like to have an economic package which clearly helps create jobs. If we are going to give tax breaks, they should be targeted to help families and small businesses. They should be temporary, such as aid to States and local communities that are reeling with their own problems. And they should not in any way weaken Social Security or weaken Medicare.
I think the tax bill is the wrong bill.
I believe if we put our heads together and think about targeted tax credits, we can help small business with health care and help families. Later on this week, I will offer an amendment to the tax bill to provide relief for family caregivers and help those who face the crushing consequences of caring for chronically ill family members.
Families are hurting. There is a weak economy. They worry about their jobs. They worry about their pension. They worry about skyrocketing health care. They are often holding down two jobs to make ends meet or are going into debt in order to put their children through college. They are finding it more difficult to be able to afford health insurance.
My targeted tax credit will give help to those who practice self- help. I think that should be a guiding principle. Let us give help to those who practice self-help.
My bill will provide a tax credit up to $5,000 for family caregivers who are caring for someone with a chronic condition.
Who would that be? Some families are facing extraordinary challenges--caring for loved ones with special needs, a child with autism or cerebral palsy, a parent with Alzheimer's or Parkinson's, or a spouse with multiple sclerosis. Those are just a few examples of what I mean by a chronic and severe condition.
My tax credit would help people pay for prescription drugs, home health care, specialized daycare, respite care, and specialized therapy, including occupational, physical, or rehabilitation therapy.
Family caregivers face so many stresses. There is the emotional and physical stress of caregiving. Then there is the financial stress of caregiving, and the long days of raising a family while caring for a loved one with a chronic disease such as cerebral palsy or Parkinson's. A dad would have to work two jobs to meet the cost of care for a handicapped child, or a dad and mom might be working to be able to afford the special care for grandma. It places incredible stress on the family checkbook, and it places great strains on the family marriage.
We need to give help to those families who are practicing self-help. If you took the total cost of caregiving, it would be $200 billion.
The first caregivers are the families--not government. But government should help the family with its responsibilities. They face high costs for prescription drugs, home health, adult daycare or specialized daycare for a handicapped child, physical therapy, durable medical equipment such as a wheelchair, and medical bills for care by specialists.
People who care for a chronically ill family member must often patch together whatever they can afford. They really go into debt. Many of them go into their college accounts or retirement savings or they go without in order to be able to care of their family.
Example one: Let's talk about a family in Baltimore who has a child named Jackson. These are real families. They gave me permission to talk about them on the Senate floor so that we would again be focusing on what a family is facing. Family responsibility, yes, but a family's stress needs to be helped.
This family has a 2-year-old son named Jackson. He was born with severe brain abnormalities. He has the motor skill development of a 4- month-old. This little guy has daily seizures, so he needs total, round-the-clock care. The emotional costs of caring for a severely disabled child are incalculable. The financial costs are also crushing.
It costs $650 a month for daycare for medically fragile children. His little wheelchair costs $1,400. Though his skills are not growing, he is growing, so they need to frequently replace his wheelchair. He even needs a special shower chair which costs $700. Then, of course, with all of those seizures and all the other complications, the cost of prescription drugs goes off the charts.
Let's talk about another family.
This is a family in Rockville. They have a 10-year-old girl named Rachel. She has autism. The mom does not work because the cost of specialized afterschool care would be so high; yet the family has very high costs, including $200 a month for medication, $150 a week for physical and speech therapy. That is $600 a month for physical and speech therapy. So that is $800 a month or $9,600 a year for just medication and physical and speech therapy.
This father works 70 hours a week to provide for his family and to meet Rachel's special needs but also to save for college for his three other children. This places great stress on the family.
Then there is a couple where the wife is in the advanced stages of Alzheimer's. She was a teacher and spoke five languages. Now she needs 24-hour-a-day care, but the husband will not put her in a nursing home, which, by the way, would cost over $60,000 a year. This family is spending $3,000 a month or $36,000 a year. They have gone through their savings, but they took a vow, ``for richer or for poorer, and in sickness and in health,'' and that man intends to keep his vow to his wife.
What is the social contract that we have with those families? These are real families. This is why we need to have a real tax bill that also gives help to those who practice self-help. There are 26 million people in this country who face those situations.
My amendment has been backed by the Autism Society of America, the Cystic Fibrosis Foundation, Easter Seals, the National Organization for
Rare Disorders, the United Cerebral Palsy Association, Arc of the United States, the National Health Council, the National Council on the Aging, Paralyzed Veterans of America, Family Voices, the National Respite Coalition, the National Family Caregivers Association, and the National Alliance for Caregiving.
Mr. President, one of my first milestones in the Senate was the enactment of something called the Spousal Anti-Impoverishment Act. That changed the cruel rules of Medicaid so families would not go bankrupt before they could get help for nursing home care.
I said: Family responsibility, yes, and always. Family bankruptcy due to the cruel rules of government, no.
That has helped over 1 million people. Now it is our turn to also help the caregivers. They are the backbone of our long-term care in this country.
I thank my colleagues, Senators Clinton and Sarbanes, and others, for supporting this amendment. If we really want to help the economy, let's start by helping the American family. I hope, when the Senate considers whatever is introduced, Senators will favorably consider my targeted tax credit to help family caregivers.
Mr. President, I yield the floor.