I thank the gentleman for yielding very much. Madam Speaker, I believe today we stand on the cusp of something very significant, and that is the chance to spare families forevermore from having to hear the words ``your child has cancer.''…
I thank the gentleman for yielding very much.
Madam Speaker, I believe today we stand on the cusp of something very significant, and that is the chance to spare families forevermore from having to hear the words ``your child has cancer.'' Today, after many hard years of work by staff here on Capitol Hill, by people in the administration, by grassroots groups across the country, by concerned citizens everywhere, we will consider a bill that will make a historic difference in the lives of more than 12,000 children a year who are diagnosed with cancer.
I would like to thank my colleagues, especially Chairman Dingell and Chairman Pallone, Ranking Members Barton and Deal, my cosponsor Chris Van Hollen who just spoke, a great supporter on my side of the aisle, Mike McCaul, and for a new friend that I have found here in Congress, Joe Sestak, who also knows the issue far too well and who also has heard the words ``your child has cancer.''
Madam Speaker, some of us that I have just named are rivals of the highest degree and the strongest of adversaries when it comes to politics and even some issues. But as for the issue of cancer, we have a unique way of transcending the political and tapping into what is uniquely human among us.
I would also like to thank my friend Darlene Hooley and my very dear friend Lois Capps, also on the committee, and also Mrs. Capps has been one of those sad Members of the club who has heard the words, ``Your daughter has cancer.'' I want to thank them for their thoughtfulness, that they suggested that this bill be renamed in honor of my daughter, Caroline, who as it was mentioned lost her courageous battle with cancer 9 years ago.
In the years that I've been working on this legislation, my friends have been with me every step of the way, as has Caroline, making sure that her little promise to help those other kids that she played with in their fights and so all the kids who come after her won't have to go through what she did. Madam Speaker, Caroline would have graduated from high school last Friday. This is our graduation gift to her.
So, yes, this bill is very personal to me, and it should be very personal to everyone because there is not a single American who hasn't been touched by this dreadful disease called cancer. Unfortunately, there are far, far too many, and we must know that a Nation with our resources or a Nation with our scientists, our committed doctors and oncologists and our fighting spirit, we can and we will do more to defeat this disease that attacks our children and put an end to their suffering.
You know, cancer is no longer the mystery that it once was. The scientific and medical communities continue to crash through barriers every day to unlock cancer's deadly secrets. We will continue to cut this opponent down to size, but we continue to lose one in every five children diagnosed. Each and every school day, 46 children, more than two classrooms, will be diagnosed with cancer; 2,300 of them will die from it. We can and we will do better.
The bill before us today provides the lifeblood necessary to continue our advancements in pediatric cancer research, $30 million annually over 5 years. It is a very small price to pay for the life years that will be saved.
This bill creates a national database on childhood cancers to help researchers detect trends in these diseases, variables like genetics, geography and environmental influences that may be sources that are possibly causing these diseases which we can't figure out.
The bill provides for education and information services to patients and families to ensure that they are aware of and have access to appropriate clinical treatment, as well as the array of needed support services. Madam Speaker, nothing equates to the fear and uncertainty felt when a parent hears a cancer diagnosis for their child. This will give them somewhere to turn.
What this bill will help us learn about pediatric cancer will likely yield breakthroughs in our understanding of other diseases and treatments. And pediatric cancer research is leading the way in clinical advancements.
You see, last year, roughly 1.4 million people were diagnosed with cancer; yet, a measly 3 percent of those patients were enrolled in clinical trials. Now, by contrast, clinical trials are now part of the standard of care for pediatric cancer, and the vast majority of children diagnosed are enrolled in these trials.
And we're learning so much because of these enrollments. We're learning more about the trials than we thought possible. We're learning how to successfully handle survivorship issues. We're helping these kids live longer, and more importantly, we're inching closer to a cure.
For the past few weeks, hundreds of thousands of people filled the streets of our Nation's cities in the National Race for the Cure. It is an emotional, humbling and awe-inspiring experience to bear witness to this sea of pink humanity, women, men, and children from all walks of life, united by the common goal of defeating breast cancer.
Today, with this bill, we have a chance to capture that same spirit and resolve, to reclaim the many hundreds of life years lost, to save countless families the grief and despair of this sickness and death of a little one, and to one day look back upon this moment as a true catalyst that led to the end of childhood cancer.
I urge all my colleagues to support this legislation, and I urge them to urge our Senate colleagues to support this legislation, as we look forward to seeing the end of this plague upon our children.